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I am curious about peoples diagnosis experiences? Mine has been incredibly painstaking and it has me feeling incredibly frustrated and frankly very confused and in the dark. How did people cope with the lengthy process? I am finding myself become more and more depressed.
Heres my very shortened story...
I began feeling "off" about a year ago and after months of doctors visits, tests, and being dismissed it felt like a breakthrough when I was finally referred to an endocrinologist for the possibility of cushings. I am a 23 year old woman and prior to the onset of my symptoms I was living an incredibly healthy an happy life. I was always very slim, athletic, and full of energy but this disease has stripped me of everything that makes me myself. I finally completed my 24 hr urine cortisol tests and have incredibly elevated levels (it honestly came as a relief to finally get an abnormal test result as I have been feeling ill for so long and my doctors were about to give up on me). Although now I am finding it frustrating to continue to keep things moving along. My doctors are taking an incredibly long time to get back to me since my results have come in and just keep telling me to "stay tuned for further instruction." I am feeling really helpless and discouraged right now. I do not know what it is taking so them to move forward and continue to get the tests done that I need in order to move forward to treatment and being healthy again!!
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