Feeling disparate mum of 10 year old with Crohns...

I find if I follow a gluten and dairy free diet and avoid fizzy drinks especially coke and also chocolate my symptoms are far less extreme. You could try this until he is next seen by a doctor, it may not work but it's worth a go. Very sorry to hear that someone so young if suffering, with diet and medication thing will be easier, keep your chin up.

Thank you for replying, I have bought all the gluten free foods but it is so hard getting a 10 year old to stick to it, his appetite is not very good and already so underweight. All the on line information seems to be saying such early onset ibd has a poor prognosis, so very frightened of what lies ahead for him. So many of you out there seem to be suffering.

Hi

Its very hard watching you child in pain

My child has just been diagonsed with

Oral chrons , orofacial granulonatosis

At the age of 7 years old. when he gets

the right medication he will be on the up.

Dont read things you get on the net it will

Put your head away. Good luck.

Thanks for replying - sorry to hear of another young person needing medical help. Yes the whole thing just really messing with my head with just such a lack of help and info from the doctors so far. I think we will be making a nuisance of ourselves at A & E until they at least start some sort of treatment.

I agree, don't try and read up on it on the internet, there are a lot of scaremongers out there. Try keeping a food diary for triggers, I also find very small but frequent meals help. Keeping positive is half the battle. I can't speak from your point of view though, as parents it must be very hard to see your children unwell. Best wishes to you all.

I will do my best to keep positive. We have been such a lucky family so far with good health and have always taken care of ourselves with healthy food and exercise but some illnesses just don't care. I will keep a food diary too. Thank you everyone, I have never used a forum like this before but it helps not feeling quite so alone.

This is stuff to stay away from

I have not heard of some of these things. It sounds like everyone is so different and it is going to be a big learning curve with a rocky road ahead. At least when you are an adult you can make diet changes for yourself but to make such changes to a child who just wants to be like his friends is going to be difficult. Thank you for info.

My brother and his family are on the gaps diet. My nieces have weird

allergies to food. One of his girls, every gets fruit as a dessert and loves it. And if you

offer her candy she says no because it makes her rash she says.

If your son understands the reality of his affliction. I'm sure his new diet will become

less of an issue for him.

I am hopeful the dieticians will also help with issues once the diagnosis and extent of disease is confirmed and hopefully my son will manage better, he is a lovely, bright and happy character and I think this will carry him through whatever lies ahead. Thank you all for taking the time to reply.

I agree with a lot of what has been said here, diet and attitude are very important. Have had uc for 30 years and am currently using herbs and vitamins to keep myself in check. Just suffered an obstruction this weekend, first one in 2 years....soooo upsetting. After years of fretting about loose BMs I am finding now that I am getting backed up. Any advice?

My heart goes out to you and your child. Watch his diet, mushy foods pass better. I have found avacodos and bananas helpful. I also use a number of herbs and vitamins, vitamin d being of utmost importance. Also, lots of fluids. There is a product called sedacrohn that I got online and it stops my loose BMs within hours. I would talk to them about their dosage recommendations as he is so young.

Lots of information available on the Crohn's and Colitis UL website, section dedicated to children, good luck

Hi Michelle

im 20 but can relate to the wait time. I was told it was 99% sure I have crohns but ended up paying to see specialist and only got endoscopy done quick due to paying for the first consultation, in the end they found it wasn't crohns and this was 3 months ago now and they still haven't got a clue what's wrong with me. My mum says it's awful to see me in so much pain and it's so hard not knowing, I know it's hard but hopefully you will find some answers soon. 

x 

Hi I've had crohns over ten years for me boiled kent pumkin or roasted helped my problem,relaxing,and if he gets contipated (sorry i have got a broken key boared)

hard that he is just a child because I would have a red wine but he must keep up with any medication he is given good luck what ever you try