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feeling helpless after hearing I might have TN

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cary14293
cary14293

After I went through an initial visit with my Periodontist and all signs were pointing to TN, she went ahead and performed surgery on me to remove all the extra bone growth underneath my gums. It’s been a month pain is now worse my life has completely changed. Being sent to a Neurologist for what they thought in the first place. The surgery has made the 10,000 times worse. Symptoms have become worse and now just this last week I cannot even go anywhere that has air conditioning, teeth are sensitive, all in right side of face cannot touch my mouth or it feels like someone is stabbing and sharp pains up through my eye and around my ear. I talked to one person who said she should have never done any surgery on me if she even thought I had TN that she should have referred me immediately to a Neurologist 

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  • linda30391
    linda30391 cary14293

    Posted

    my husband has suffered from TN for about 10 years.  He was put on prescription after prescription...the only help he ever got was from prednisone ( which is a steroid) but as soon as he stopped it (as that can not be taken very long.) his pain was atrocious and it interfered with his entire life as sometimes he would have four flare ups a day- other times he would have one.  Some were hours long- others 20 minutes.  Out of desperation, as nothing was working, I started looking up natural substitutes for these medications.  I found DONG QUAI ( sold at a health food store) was a substitute for prednisone and CURAMIN ( also at the health food store) helps to control pain and inflammation and pain.  After some trial and tribulations with experimenting with a salve called comfrey cream ( a great muscle rub- but did not help the pain of the TN- but still not a wasted purchase so that is good), then we tried spraying on magnesium flakes and letting that set on his legs, arms, and stomach one hour every morning to absorb into his system, then we tried a mixture of Organic cayenne pepper and coconut oil mix to rub on the painful area ( you can tell we were desperate) he tried these two pills three times a day....Dong Quai and Curimin (extra strength).  Well lets see, he took them three times a day and I would say within 5 to 7 days he stopped experiencing flare ups.  We proceeded cautiously as, really, who would believe this would help...so not to tell anyone he was getting relief- they would think we are crazy.  But one week went by, two weeks, three weeks...I know I started to relax a little bit at this time.  It has probably been since February or March....no flare ups.  He has cut the pills back to two a day.  He has had blood work two times as he told his doctor what he was taking.  His blood work is coming back fine...actually great.  I hope this will help you and others.  I know one thing can help one person and not another but I know he was suffering and myself right along with him.  Our entire life was controlled by this disease.  If you or five or ten or one hundred people, or more tried this and it helped them as it has my husband, it would be wonderful.  It is a horrible debilitating disease.  No One should suffer and go through what I watched my husband experience.  Good Luck!   
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