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tammi31 tammi31

Feeling horrible after been on the steroid prednisone

Hi all , wonder if anyone can help .. I was put on prednisone steroid for 5 days after I went to my doctor last Thursday wif a cough and slightly tight chest .. I was on 8 tabs a day and I'm sure they were 5mg .. I finished them on Monday past .. Since Sunday tho I have been feeling quite weird like my whole body is aching and I just don't feel normal my legs r the worst wif really bad pains like I have ran a marathon and feel really hot and just like i have flu I'm usually fit and healthy so to be feeling like this is making me feel anxious .. I did read that this steroid can have these effects .wish I never started them now tho as hate feeling like this so glad there finished , just wondered if anyone else had any of these feelings wif it ? Thank u X

148 Replies

  • anapp anapp tammi31

    Did you just quit the 8mg or gradually reduce the mgs? Sounds like normal withdrawal to me although I would not have expected it on such a short term low dose but think you still have to wean off. Hope it passes soon

    • tammi31 tammi31 anapp

      Hi , no I didn't wean off them just got 5 days course doctor never said to go back or that so finished them on Monday I don't feel to bad today but still got sore legs and joints hopefully it passes soon thank u 😀

  • cjb106 cjb106 tammi31

    I have to take Prednisolone periodically for a different condition, prescribed 30mg a day to start (6 x 5mg tabs) and usually only for a week or two but still have to wean off by 5mg a day per week. So even if I take the 30mg pd for a week, it's still another 6 weeks before I am steroid free. Steroids can and do cause aching and tiredness. They are powerful drugs that take over the normal function of the adrenal glands and the body reacts to that. Hope you feel better soon.

  • fatgran fatgran tammi31

    Shocked  to see tammi31s post! no excuse for doctor not prescribing properly - steroids are powerful drugs which need to be carefully used. A 40mg dose should be tapered off over several weeks. As someone who has taken steroids periodically for several years, I know the side effects well, & also the regime. I have a problem with the darned things myself at the moment so will open a seperate discussion.

    • Polly J Polly J fatgran

      I have just been prescribed Prednisolone 5x5mg tablets twice a day for 10 days for Bell's Palsy. I have not been told to come off them slowly, just finish the course, should I be worried?

    • Rimmy Rimmy fatgran

      Disturbing so many doctors seem to have little understanding of the importance of SLOWLY tapering this drug. It can be very effective for several conditions but slow reductions are vital !!

    • georgina glover georgina glover Rimmy

      hi rimmy , i,ve just come off pred after being on it for only 5 weeks for chest infection , after stopping after 2 weeks i felt really ill . phoned docs he said cantbe the pred but gave me another 2 weeks course to ween myself off them i,ve now been off them for over a month in that month i have lost over 2 stone in weight and shake like mad i did,ent put any weight on while on pred , i asked my doc 3 times about the shakes and weight loss no interest at all i,m now down to 6st 2lb after being 8st i for 1 will never take pred again and patients need to be made aware of the damage this drug can do , i certainly was,ent 

  • jean1948 jean1948 tammi31

    Hi Tammy,

    I can remember having the same symptoms as you after a cold and my doctor put me on a short dose of steroids like you, I can't remember the exact dosage as it was so long ago but it was a 5 or 7 day gradually decreasing dose which is what I think most doctors should really do for a short term blast, it is surprising that you have withdrawal symptoms after only 5 days but everyone is different and these are powerful drugs. . If you need any info on steroids this is a fantastic website, there are loads of people on here who have a very good knowledge of them from personal experience. Glad you are feeling Better!

  • cristina42849 cristina42849 tammi31

    Hi I'm new on this forum and same with you I'm also experiencing severe tiredness/weakness of my body especially when I went to work but after few hours I need to go home coz my body is so tired. I been diagnosed last Tuesday 03/01 of PMR so my Gp gave me prednisolone 15mg/daily called him yesterday and told him about my severe tiredness he ask about the pain but nothing changes and still experiencing some sudden pain felt on my legs and arm but after few minutes will disappear. My Gp told me to see him on Monday and might stop the steroids. Just want to know how are you after the steroids and is it the pain gone. Did your doctor gave any alternative drugs for your pain. Thanks and hope you doing well. God Blessx

  • angela009 angela009 tammi31

    Needing some help. I was given 20mg of Prednisone 3 times a day so 60mg a day for 4 days for hives. I finished them 3 days ago and i feel like i have the flu, weak, dizzy, hot red face ears neck, i can't concentrate or do much of anything.  I had asked the doctor if there were any side affects and he said no that it was just a low dose of steroid. Now i'm seeing that i was on a very high amount, and my hives are still happening. i feel so sick how long should this last? Hoping for relief soon.

    • julie24710 julie24710 angela009

      Dear angela009, I see your post is a month old so I sure hope you're better now. Let me know so I have hope. I was put on prednisone 60mg a day for four days with a taper of 40 for four and 20 for four. After the third day I became extremely ill and was no way going to continue. I am experiencing severe dizziness, nausea, head pressure (feels like it's swollen inside but doesn't look it). My arms and legs are weak. I went to work and had to come right back. What a mess. I looked up online and after 5 days or less it's ok to abruptly stop taking it (no taper necessary) but oh my that doesn't stop the effects of what's already been taken.  I feel so ill. Are you ok now? I'll never take this again ! I had no idea 🤢🤕😔

    • angela009 angela009 julie24710

      Hey julie i got notified of your comment in my email this morning, i'm so so sorry you are experiencing the same side affects i had. I took me a couple of weeks to start feeling somewhat normal i actually had to take almost a week off work i was so weak and my face and eyes had extreme pressure and puffiness it was horrible. I am still experiencing hives however so that might be the reason the it had taken be so long to start feeling better, i wasn't feeling very good before i took the prednisone so take that into consideration. I stopped after 3 days and i'm not a doctor but do not take any more of you are feeling ill i will never ever take that medicine again in my life. I still notice fave and eye pressure but it has gotten better. aeveryoke is different so don't let my experience get you down. I am so sorry again, let me know how you are doing and how it all turns out. What were you taking the medicine for? 

    • julie24710 julie24710 angela009

      Dear Angela, thank you for responding. I was taking the prednisone for constant and severe headaches and migraines. It was supposed to calm my brain down after trying so many meds and failing, and prepare me to try something else. I’ve suffered with this for many, many years but my neurologist and I thought I could explore a few more med options to see if I could get more relief than just continuing with what I’ve been doing.  It turned out to be an awful experience, but at least I found out what I was already doing isn’t so bad after all! I seem to be over the nausea and dizziness. Still suffering from very frequent headaches/migraines and the swelling in my head feeling. I was off work Thursday and Friday, and it worked out that it was then the weekend and Columbus Day, so got 5 days to recover so far but, if not for the holiday  weekend, I would have been off work a whole week too, no doubt. I am much better than I was. What a lesson learned. Thanks for your interaction. It really helps to know I’m not alone.  So, so glad you’re better. 

    • angela009 angela009 julie24710

      No problem i'm glad you're feeling a little better. I completely relate to the swelling in the head feeling that was horrible, i had so much pressure in my face, took a few weeks for that to completely go away for me but it does get better. Also, a couple weeks later i threw up and found out that prednisone is extremely hard on your stomach producing a lot of acid i wouldn't be afraid to take tums or something to help your stomach recover, i was told to take pepcid. Glad you're doing better take care.

    • mkohpredyuck1 mkohpredyuck1 julie24710

      Hi Julie, Angela and everyone,

      Thank you for sharing your experience with prednisone. I was on a 9-day course starting at 30mg down to 10mg tapering every 3 days for a sinus infection. I am  having all sorts of side effects from flu-like symptoms (chills, muscle aches, fatigue) to loss of

      appetite, stomach ache and sadness.  When I asked my friend who’s a doctor she said that the taper schedule I have is normal. My ENT is on vacation the whole time on this regimen and it drives me nuts not being able to ask questions. I am having such a hard time and i am becoming a whiner. I had two good days then most days I am just way fatigued and feel hopeless. During the bad days it’s like I’m on a rollercoaster - good one moment and then extreme symptoms. I’ve never felt this way before.  Whereas I’m normally positive and upbeat, I’m  barely functioning and it’s a problem because I have two kids.  The stuffy post nasal drip is still here - even after 8 days of antibiotics

      Tomorrow is my last day on prednisone and your messages give me hope that I will be fine soon.  At least with the symptoms stemming from taking prednisone. 

      - M

    • julie24710 julie24710 mkohpredyuck1

      You do have complete hope.  Give it a few days and you’ll begin feeling better - unfortunately you do have to ride it out after stopping  - there’s no quick fix sad   and in a week it’ll be behind you. It’s a terrible feeling and I’m so sorry for how you feel. You got through the full dose/tapering period!  Wondering why you wasn’t prescribed a normal antibiotic instead of prednisone.  Hugs 🤗.  hang on - relief is around the corner. Julie

    • toni06655 toni06655 julie24710

      How long did it take you to get past this? I took 60mg one day, 50mg the next, then 40mg, 30mg, 20mg and done. So only 5 days. I didn’t feel anything during that 5 days but immediately after stopping I started to feel extremely sick - nausea, diarrhea, sweating and chills, and severe anxiety. Heavy chest, sadness, almost feeling like an out of body experience. Every time I eat, I feel sick. For one day, I would be starving but my anxiety was so bad I couldn’t even put food in my mouth and chew it. I was so shaky and jittery. It’s been happening for four days now. I’ve been off them since Saturday (today is Wednesday). I’m praying these anxiety attacks are from the medicine and will be over soon - I’ve never experienced anything like this. Sunday and Monday were the worst, yesterday was better, but tonight has been bad again. Ughhh. 

    • julie24710 julie24710 toni06655

      Hi, it’s been a while now, thank God, so I don’t remember the exact amount of time, but after stopping the prednisone I still felt I’ll for about a week or more. I’m so sorry for how you feel. I know how horrible it is. Please know it will go away and I needed to hear that badly when it was me.  Let’s be grateful we were only on it for a few days. Apparently people on it for long periods of time suffer much more when they stop (can you imagine?). I felt like I was going to die! I will pray for you. You’ll be better soon. Julie

    • karen19808 karen19808 toni06655

      Sorry to ask did it feel like an out of body experience like u were doin normal things but didn't feel myself I too finished a course on Wednesday but today is Monday and I'm not feeling myself at all.

    • caitlin92642 caitlin92642 mkohpredyuck1

      Hi M,

      ​How are you feeling now? did the steroids help with your sinus infection? Also how did you know you had a sinus infection, did you get a nasal endoscopy or brain/face mri? I ask bc my sister is in the same situation. Her ENT thinks its a sinusitis and gave her Prednisone 30mg for 10days including tapering but now she feels achy. She was on doxy for 10days but is still having facial pain and headaches. SO the doctor thought she could have inflammation and gave her prednisone. So I was wondering if it helped with your infection and its the side effects. Thanks in advance!

    • lisa05826 lisa05826 julie24710

      Hi Julie

      I’ve taken steroids a lot over the years for ulcerative colitis and never before have I felt so out of body like I did on this occasion. The doctor gave me 30 mg a day for 7 days I’ve never felt so ill headaches nausea and a general feeling of pain and tiredness I’ve never felt so awful.

    • julie24710 julie24710 lisa05826

      Lisa, I feel so sorry for you, sincerely. I felt exactly the same and it was the worst feeling for me too. You poor thing. All you can do is ride it out. It will go away soon. Hang in there.  This drug is just awful for some (us) and great for some.  Hang in there. You’ll be back to normal in a few days. I know you don’t want to feel like this for a few days but it took that long for me.  Not that long though. Something supposed to help and does this. What a mess. 

    • heather75806 heather75806 julie24710

      Hello Julie, after reading your post to lisa I feel encouraged. My doctor gave me prednisone 50 mg a day for 5 days. Worst feeling ever!! My legs are so weak to the point I think that there is something else going on here. I have missed a period and I am not pregnant. It has been 6 days since my last dose and and it had gotten a little better but side effects are still here. I hope and pray I feel better soon!

    • georgina glover georgina glover heather75806

      hi heather , don,t go on a downer my love but i,ve been off them for 5 wks now & still feel ill , people sometimes put weight on with the pred i went the other way & lost 2 stone & have really bad shakes . i now only wiegh 6st  but my doc is adament its not the pred . over the last month i,ve had 2 xrays and a ct scan nothing has shown up so to me it is the pred . i for one will never take it again no matter how many chest infections i get .

    • terryd73 terryd73 georgina glover

      3 months of my body feeling weird and all the test results are good. It’s frustrating when the doctors doubt it’s the prednisone, but I know I wasn’t feeling the way I do now. I’ve been off of them for months 

    • karina56082 karina56082 terryd73

      Same here, 2 months off the drug ( took it 6 days only) and still not myself . My Sinologist can’t understamd what is going on with me since my cortisol levels are high and sugar is low after breakfast. Before my blood work she was sure that  fine and it can’t be prednisone. However seeing my hormone levels she still doesn’t know what it is. Literally she says “it doesn’t make sense” and keep asking me to come back every two weeks for blood work. Only thing what helps me is running ! I feel much better after run 

    • georgina glover georgina glover karina56082

      its not right ,  i think doctors use pred as a quick fix i always thought it was for chest infections only but having read some of the posts on here its used for allsorts , the annoying thing is i don,t think even the doc,s are aware of the after effects . i,ve just been left now to get on with it , no come back in 2 weeks so they can check on the weight loss or shake,s 

    • heather75806 heather75806 georgina glover

      Hi Georgina,

      I agree, I will definitely not take this drug again. It has been almost 3 weeks since I have finished prednisone, and thank God that things have gotten much better. I mean I can walk, I'm not in the bed for days, and I am not feeling like im losing it anymore. But I must admit, I am still feeling aches hear and there on different parts of my body, but I know God will fully heal me in due time. This is the worst drug I have ever taken and I will forever be cautious of any meds I have to take and there side effects. You would think that the docs know best but half the time they prescribe something they probably wouldn't take themselves. To everyone on this forum, have faith. God is a healer! We will get through the effects of the horrible drug, it does get better! God bless!

    • karina56082 karina56082

      Good morning all!!! I’m on my 3 month and now I’m getting severe insomnia, I didn’t sleep for 3 or 4 days already, I’m a zombi... have anyone had this ? How to battle it? Do you have any tips? I do breathing and yoga before but it doesn’t seems to work. 

    • macd279 macd279 karina56082

      Hi Karina, I had bad insomnia while I was on the med. It took a couple of months for me to start sleeping more than 2 hours at a time. My Dr. told me, if I absolutely had to, I could take melatonin. I decided to ride it out since I could always fall back to sleep and piece together fragmented sleep. I just went to bed super early until I could sleep longer stretches. The usual tips help - no tv couple hours before bed, dark, cold, wear socks, etc.

      If I had to make a hypothesis, I would say, based on your cortisol tests, that your circadian rhythm is being messed up by cortisol jolts. As far as I know (not a Dr), your body is supposed to release some cortisol in the morning to wakeup, then come down to level throughout the day, then drop down at night. I bet, if you checked your cortisol levels at night, they may be going higher than they should. If it's a new issue, maybe your body is still trying to come back to homeostasis and trying to figure out its rhythm? I think your previous cortisol tests were very revealing.

      If it was me, in addition to talking to my primary dr, I would be speaking to naturopathy dr and/or accupunturist. I haven't done either of these, but I have heard good things.  I'm still having some issues 2 months in and will be seeing accupuncturist next month for a few sessions. If no luck, I will see naturopathy in several months. I'm trying to let my body heal itself to the extent possible. Obviously sleep is very important and can lead to other issues so you don't want it to linger too long.

      As far as practical recommendations, not that it will make you go to sleep right away, but try to relax as much as possible. Something I was guilty of is turning to dr google too much and freaking myself out. We all know there are many weird things that happens to people after this medicine but we all have to calm down as much as possible to let our bodies heal. The mind is very powerful, which is why placebo has such a high success rate!

      Sorry I couldn't help

    • karina56082 karina56082 macd279

      Thank you! It helps ! I’ll try do not stress out. I’m going to do my labs tomorrow again , including insulin levels. My endocrinologist for some reasons did not order night levels, I want to ask her to do it as well. Hopefully my adrenals will go back to normal soon, it’s been one of the hell journey. So tired( 

    • heather75806 heather75806 macd279

      Well said macd279, I really admire the fact that you brought to focus of how powerful our minds are. There are studies that show that negative thinking can actually bring about physical symptoms. Now trust me, I know that the prednisone brought about actual side effects and I know how hard it is to stay positive with all the aches, pain, fatigue, and anxiety that we are experiencing, but we must try and I pray that we find a way to look on the brighter side, pray, and meditate to get through the experience. And you are right, dr. Google doesn't help(probably an added cause to my anxiety). I wish all the best! God is a healer! Fight the good fight of faith!

    • karina56082 karina56082 heather75806

      Hi Heather,

      Thanks for asking. I’m very frustrated with doctors... I did two more blood works and my cortisol was still high. After I did 24 hr urine test on free cortisol and levels came back normal. So she said, nothing else needs to be done. Consult with your primary care... well, thanks! So not sure what to do with high blood cortisol levels. I’m kind of ok but still have head tension and trouble with sleep, without melatonin I wouldn’t be able to survive. I’m trying my own way now , got some herb and supplements and see how it goes. In a month redo a blood work. What about yourself ?

    • heather75806 heather75806 karina56082

      Hi Karina

      From the initial symptoms I am better, although new symptoms appear here and there when after over 4 weeks of being off prednisone which I only took for 5 days, 50 mg. I hate the drug, and even more so I hate the fact that the er doc didn't tell me about the side affects. Now I am dealing with anxiety and slight aches and pains here and there. I hope this disappears soon. I'll say a prayer for you. God bless!


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