Feeling horrible after been on the steroid prednisone
Posted , 129 users are following.
Hi all , wonder if anyone can help .. I was put on prednisone steroid for 5 days after I went to my doctor last Thursday wif a cough and slightly tight chest .. I was on 8 tabs a day and I'm sure they were 5mg .. I finished them on Monday past .. Since Sunday tho I have been feeling quite weird like my whole body is aching and I just don't feel normal my legs r the worst wif really bad pains like I have ran a marathon and feel really hot and just like i have flu I'm usually fit and healthy so to be feeling like this is making me feel anxious .. I did read that this steroid can have these effects .wish I never started them now tho as hate feeling like this so glad there finished , just wondered if anyone else had any of these feelings wif it ? Thank u X
2 likes, 548 replies
connor24976 tammi31
Posted
I am still feeling the effects after having an allergic reaction to acne medication and then I was prescribed prednisone which I FELT TERRIBLE after taking and I my dr told me to get off immediately around day 6 . SO I i got hit with 2 bad medicines. IT HAS BEEN 9 months . i feel a little better but still not myself . I have back aches and I have anxiety of which i never had before. I was an active college student before this . I have to admit I am scared. My vitamin D level was low I take supplements . My mom recently took me to a naturopath doctor who recommended eating clean as well as eliminating gluten from my diet. He added magnesium and whey protein for my smoothies. I hope this works every doctor i have gone to say that it cant be the prednisone still but i believe it is. if anyone has any more suggestions please let me know . My anxiety is getting worse im trying not to take anything but i might have to.
jochia75302 connor24976
Posted
Sorry your are dealing with this. I believe it is the prednisone because I also took it and experience similar side effects.
I took Prednisone from Tuesday October 8, 2019 to Monday October 14, 2019. I was taking 20 mg per day. After my prescribed duration, I experienced withdrawal symptoms such as fatigue, irregular heartbeat feeling (pounding and rapid), trouble sleeping, dry mouth and eyes, indigestion feeling, gastritis (gnawling feeling), rage (rushing to cook food and eat), increased appetite, hyperness, mood swings, severe anxiety and depression.
It is currently December, I am still experiencing symptoms such as dry mouth, puffy eyes, indigestion feeling but have slow bowel movements, gastritis, rapid heartbeat, trouble sleeping, depression and anxiety. I recently started experiencing upper abdominal discomfort feeling in chest and back. Hopefully, this is just gas.
If I had a do over, I regret taking this medication. This drug disrupts my excitement of life in many ways. I pray that others and I feel better soon. I researched online that Predisone withdrawal can last from several weeks to 12 months. This period depends on how long you was taking the drug and the dosage. Prayer helps me.
connor24976 jochia75302
Posted
it has been since August 2018 for me, I still don't feel much better. I had to take off this semester of college and I am now taking meds for anxiety. i still have stomach throat and back pains. I ound info about toxic reaction to minocycline which is the antibiotic and prednisone together and i am using some of the supplements that were suggested to get better. I will post to let everyone know if the supplements work.
jochia75302 connor24976
Posted
Conner, What dosage were you taking at the time of the prednisone and did you wean off of it or stopped cold turkey?
connor24976 jochia75302
Posted
I was on 10 mg started with 5 pills a day for three days than 4 Pills and so on however at three pills a day I was having such a bad reaction that my doctor made me go to 1 pill for only 2 days so i tapered abruptly but also I was taking the prednisone because I had an allergic reaction to monocycline which I took to treat my acne. I wish I never took either.
irene_88946 tammi31
Edited
I doubt that being on steroids for 6 days has caused the problems you describe. Suggest you see a good internist to find out what's really going on with you. Good luck and feel better soon.
kathryn74621 irene_88946
Posted
it absolutley can be. i was on them for only four and had a ton of side effects. then stopped them and had the withdrawals and i didnt even finish the full cycle. everyone reacts to meds differently and steroids wreak havoc on your body. sure theyre great for some stuff but if you have a bad reaction its terrible. ive seen two different doctors and one even jokes that with steroids being as strong as they are he could make a dead man walk with enough of them. they are awful and cause long lasting problems while your body adjusts back. no one here is crazy and she has similar symptoms to even people who have been on it longer. so have some courtesy and dont downplay how she or anyone else is feeling.
lauren04447 kathryn74621
Posted
THANK YOU! Using steroids was the worst decision ever and I havent recovered yet from taking them almost two months ago. Side effects are very very real and this drug has hurt so many.
daniel96503 lauren04447
Posted
how long was you taking them before you stop
irene_88946 kathryn74621
Posted
Are you talking to me? I was only expressing my experiences having been on steroids for over 2 years. I didn't say anyone was crazy, not sure how you got that out of my post. Have a great day!
lauren04447 daniel96503
Posted
about two weeks
robert15197 lauren04447
Posted
how are u feeling now
Danny9090 irene_88946
Edited
In people with severe intolerance, the half-life of this drug is not "a few hours" like the doctors claim, it's more like 6 months. It gets stored in the body and causes side effects long after the last dose. Not enough research has been done.
Danny9090 irene_88946
Edited
If you've been taking it for two years with no problem then it means you don't have intolerance.
robert15197 Danny9090
Posted
this is such a roller coaster. back to face feeling tight . ughh I just want to be normal again
Danny9090 robert15197
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By "tight" do you mean bloated face from water retention?
robert15197 Danny9090
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hard to explain just tight .
robert15197
Posted
had st stay up all night due to work holy crap I'm feeling it today!! my legs are so weak and sore
robert15197
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how's everyone else doing??
robert15197 Danny9090
Posted
how are u feeling now
Danny9090 robert15197
Posted
A bit better than a month ago. How about you?
robert15197 Danny9090
Posted
a bit better. everyday is a guessing game of how the day is going to be .
Danny9090 robert15197
Edited
The mental side effects are pretty much gone. Now I just have some remaining physical side effects.
rita58152 Danny9090
Posted
That's great that you are feeling mentally better. Hopefully you will be feeling physically fit soon too.
lauren04447 robert15197
Posted
Do you ever have weird muscle jerks? I was feeling better for about two weeks and then the weird "high" out of body feeling, tingling feet, and muscle jerks started. I feel so defeated and don't understand! I just hope this ends at some point.
robert15197 lauren04447
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yes I have been off them 9 months now still have bad days but they get less . all this week was great I worked a full week . then today just the odd feeling. back
lauren04447 robert15197
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This has been the most awful thing to experience. I felt that I was getting for about two weeks and now I feel like I did months ago. I'm praying that I am healed eventually.
Danny9090 lauren04447
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Yes I was also feeling improvement for a few weeks but then out of nowhere I had a big spike of side effects this afternoon. Each time it happens though it's a bit less intense.
robert15197 Danny9090
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same here .now when I get the side effect. they dont last as long and not nearly as bad
robert15197 lauren04447
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yes its truly horrible. every time I think it's all the way gone it comes back but slowly gets better. .like just moments ago walking to mail box. hit me hard then anxiety back witch makes my hands sweaty and feet . ughhhhhhh
lauren04447 robert15197
Posted
I had a week of not wanting to just give up and now it's all back again. It's so emotionally exhausting
robert15197 lauren04447
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yes that's the way it is soon as u think it's gone. it will come back. today my anxiety is threw the roof. when I go a week feeling great then have a bad day it takes a few days to start feeling good again. caffeine is a big trigger for me .
robert15197
Posted
how are u feeling? I'm back to bad side effects. every Tim I thinks it's gone and work alot I'm on day 3 now of laying down all day . ughhh
Danny9090 robert15197
Posted
Another weird side effect. For the first few months I was extremely weak, like I couldn't even ride a bike without losing all strength and feeling sore. Then about 8 months later I started lifting weights again and to my surprise, I felt as strong or even stronger than a year earlier and my muscles didn't even get sore after working out. I felt like superman while working out with a ton of energy. Now that the side effects are getting very weak my strength is going down and I'm feeling more sore after working out.
This made no sense to me until I read a study that showed that daily prednisone in mice led to reduced muscle repair and strength, but when given weekly doses it increased their muscle repair and strength compared to placebo. When the drug is very strong in your body it makes you weak and sore, then when it gets to mid-range you actually get stronger than before. Over time once the drug gets very weak however you can expect to lose some strength and feel more soreness, still stronger than the first few months however.
lauren04447 robert15197
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not feeling very good. I still feel spacey/high/weird and my feet still tingle all the time. Praying for miracle at this point.
Danny9090 lauren04447
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Do you have the side effects of thin skin and/or bloating at this point?
robert15197 Danny9090
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how do you guys deal with the random anxiety. I never had this before I took prednisone. so it's a crazy feeling. and freaks me out I do not take anything for it I try to read and such when it comes on .
lauren04447 Danny9090
Posted
I have not experienced that. my symptoms are:
-weird spacey/detached feeling, almost like I'm high on something
-tingling in feet
-rashes
-shortness of breath and increased heart rate
Praying for everyone that they can heal and we can all live in peace once again.
Danny9090 lauren04447
Posted
I had a big reaction last night and today I feel tightness in chest, adrenaline, pacing, swollen face, mood swings etc. It's less intense than previously but it seems like this happens once at the end of each month, almost like it's literally on a 30-day cycle.
Danny9090 lauren04447
Posted
Also can feel the veins in my arm constricting. It's even visible because before the injection I had large vein sticking out in the middle of my arm, but now it's completely hidden.
lauren04447 Danny9090
Posted
Your symptoms only happen once a month??
I was also just diagnosed with 2nd degree heart block, i'm wondering if the pred had anything to do with it. I hate this so much. I'm scared i'm never going to feel like my old self.
Danny9090 lauren04447
Posted
No I get side effects every day, but it seems like it suddenly becomes stronger at the end of each month and then over the next few weeks it settles down. Over time all the side effects get weaker though. It's definitely a huge difference now compared to the first few months though. I would recommend taking vitamins to make sure your body is getting what it needs while the drug is still active in your body.
lauren04447 Danny9090
Posted
do you think I will ever go back to feeling normal again?
Danny9090 lauren04447
Posted
I'm almost at 20 months but I had a cortisone injection and a much more serious reaction than anyone posting here. I almost died and I started losing bone mass. Cortisone is the same type of drug as prednisone. On another forum for cortisone reactions the mildest cases get better in two months, and the most severe cases take about 1.5 years. My case isn't the norm.
Danny9090 lauren04447
Posted
So basically worst case scenario for you is 18 months, and people have said that all the side effects disappear eventually, both mental and physical.
robert15197 Danny9090
Posted
mine also seems to be bad one week out of the month. never thought about it tell u said that . its horrible. I wonder everyday if I'll ever be my old self again. I have not been to Walmart in months because one time the side effects hit while I was in there did not think I would make it to my truck to wait for my wife to get there .I felt so weak felt like I was miles from my truck worst feeling ever. and has me so scared of it happening again
lauren04447 robert15197
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Wow, thank you so much for sharing that with me. Talking with people like you has given me hope to continue fighting this. I'm sorry you're still battling this. I cannot believe doctors dont tell patients about the side effects
lauren04447 robert15197
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i'm mostly just scared that the weird spacey/foggy/high feeling wont go away
robert15197 lauren04447
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they all deny that it's from prednisone but I never had any of these problems before. all I had was a sinus infection. now months of hell . and tons of doctor Bill's. the main thing kept my head right was this form . every time I feel the side effects I just start reading the post it helps so much . I also get the wired feeling. had bad mood swings . that drug messes with brain and body . its horrible and doctors throw it out like candy I had one doctor that sad . that it messed with my hole body. and all the others just wanted to throw me on xanax or other meds . I just stopped taking everything. and been letting my body reset itself. takes time that's for sure I'm on my 8th month off of it .and noone around me understand what I was going through so made it even harder . my wife started reading this blog and then she understood. and I did not talk mu h about it because I was tired of people thinking I was crazy lol. but I wonder everyday if I'll ever be my self again
Danny9090 robert15197
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I have a new side effect for the past few days. Now instead of feeling that intense adrenaline and energy when the drug goes active I feel this weird spaced out feeling and kind of numb like I'm disconnected from my body.
robert15197 Danny9090
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that's the wired feeling I was talking about. hard to explain
lauren04447 robert15197
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I have been getting that same feeling. For me its like i'm high or drunk and my clarity in thought is gone.
robert15197 lauren04447
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yea it comes and goes for me how did u get your anxiety to come down
Danny9090 robert15197
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You also get sudden shortness of breath, fast heart rate, and tightness in face?
robert15197 Danny9090
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not near as often as I used to
lauren04447 robert15197
Posted
I was on xanax for about two months but stopped because I didnt want to be addicted. I still get it now. I quit drinking coffee. My heart rate is still high so I just try to keep myself calm if I get too anxious
Danny9090 lauren04447
Edited
Does this look familiar?
i.imgur.com/W97FNo7.png
Danny9090 robert15197
Posted
Another new mental side effect, both good and bad. Before the injection I had a bit of depression triggered by a breakup one year earlier. After the injection I felt extreme euphoria, or mania, for no reason. Even though I was really sick my depression was completely gone. As the side effects got weaker and the months went by, the extreme euphoria went away but the depression didn't come back, I thought it was somehow cured.
Well over the past week I've felt that old depression coming back, and it feels exactly the same as it did before the injection. It's nothing severe, but it's just a sign of the side effects wearing off.
robert15197 Danny9090
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I get random anxiety really bad never had this before. and all this lock down stuff just makes it worse
robert15197 lauren04447
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my anxiety is like a roller coaster. and never had this before .so it freaks me out
Danny9090 robert15197
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When I get side effects it also affects my mood, I can start feeling very angry especially at the doctors who treated me like I was crazy.
robert15197 Danny9090
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anyone else get the random forgetting things or forget what the heck u was doing for a min . I get mood swings too and like out of nowhere .
Danny9090 robert15197
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In the first few months I had memory problems, but it's gone now. Has your side effects improved since two months ago?
robert15197 Danny9090
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longer better days with out . but still there and then every now and then I'll have a bad 24 hour period where its hell . and now being stuck over this lock down. makes hard to get out
robert15197
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today is starting off horrible! went to work couldn't walk 100 feet legs felt weak felt like I was going to pass out . I feel horrible! felt like I did at the one month mark. anyone else get the random really bad days
robert15197 lauren04447
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hope you all had a great Easter. how are you feeling the last few days have been total hell . I feel like I did at the 2 week mark . only thing I have done out my new normal was take a tylenol for a headache. and holy crap . I read that some meds can trigger side effects. I'm just lost at this point. 😔😔😔😔
Danny9090 robert15197
Posted
I wouldn't take ANY drugs while you still have side effects, it affects drug metabolism. At this point I have side effects just for like 3 hours each day, otherwise feel mostly normal. The 1-year mark is where you should start seeing big improvement.
matt46147 lauren04447
Posted
Hi Lauren, I am curious if your brain fog/high feeling ever went away? I am 6 weeks of pred and most symptoms are gone. What remains is serious trouble with sleeping and a feeling of being disconnected or lack of focus/high feeling. Not sure what I can do to eliminate this. Thank you