Feeling ill for a year - Wondering about Lyme but doctor said in my head

Last summer went in rainforest a lot got a 2 inch flat oval red bite appear end of 2 weeks in Costa Rica.

After 3 weeks started feeling ill - fluish, aches and pains, bone ache, constant dizziness, really tired. Dismissed by doctor. 12 days off work.

Continued getting ill a lot and work got a OH assessment. OH said wfh 4 days a week. Did but continued to worsen. Getting infections every 3 weeks or so, bleeding red blood from everywhere, very dizzy and off balance, bone pain. Falling asleep middle of day.

Blood tests done (not Lyme) normal except iron but symptoms continued even when rectified. Sent for several cancer tests due to bleeding, operation to remove fibroids, otherwise clear but CT showed enlarged adrenal gland.

Continued to worsen having to be bed bound and starting to get trouble breathing. Collapsed a few times, mainly on standing. Improved on double antibiotics. Became confused at one stage / brain fog and almost hallucinations but these improved after medicine. Putting on weight though still thin never happens to me but could be lack of exercise. Cannot manage exercise if standing too dizzy, swimming managed twice but became very dizzy on getting out, rowing did twice and collapsed both times after. Really bad heart pains for 24 hours once but clear tests.

Work made me get signed off and been off now for a few months with no solution being offered other than I am anxious. I feel like mild flu 2 weeks out of 4 then as if I about to die other 2.

Sorry its long, completely desperate as feel I will never improve. Spoke to doctor who said I would be far more ill if it where Lyme so there's zero chance it is, an American medic said they think it is but they are just a friend. Thanks very much for any ideas. I am mid 40s female with 2 secondary aged kids.

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