Posted , 4 users are following.
Feeling isolated. My family and friends don’t understand symptoms of ME/fibro. It seems my personality has changed.I have become more sensitive, and fearful that the few friends are. Distancing themselves. Anyone else feel this way?
0 likes, 6 replies
I'm so sorry to hear that you're family and friends do not understand. Maybe you can find a video or book for them to take a look at so they can get a better understanding of how debilitating this illness can be! My personality is definitely different when I'm feeling exhausted, not that uncommon. Are you homebound or can you function some? Do you have both good and bad days/periods or are you symptoms constant? I think all of us (at times) have felt lonely and isolated. Hope you have someone in your life that is understanding!
"they don’t see me when I am sick." This is often a problem for understanding this illness.
I do not know where you live, but there are many ME online help groups and some of them have material which explains ME. This often helps.
To become more sensitive and fearful when you are more vulnerable that you used to be is natural.
Friends is a problem. They live at another pace, and to some extent in another world. Only the best of friendships can survive this, but there is the option of finding new friends who live at our pace, for reasons of ME or other illnesses.
Adaption is the key. Good luck!
Join this discussion or start a new one?New discussion Reply