Feeling lost
Posted , 6 users are following.
Hiya all hope you are all feeling okay, my carbimazole was reduced 4 weeks ago from 30mg to 15mg things going well until the last week and a half my hands have tremers again increased heart rate and now I have had a miagraine the past 2 days! Im due my blood test to check my levels on monday my guess is that they are off! I was diagnosed witj graves in August 2014. I know it can take a while for things to settle down its just thrown me feeling like this again. An other thing is who do I speak to for professional advice about how I feel I was never giving a contact number to get intouch with anyone I just feel you get thrown tablets to sort it out but down get the physical/emotional support As you can probably tell im not feeling to good these past weeks!
1 like, 10 replies
jennifer_84715
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linda187 jennifer_84715
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joy87504 jennifer_84715
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Sorry to hear you`ve not been too good. Have you seen an endo yet?
I`m asking because a similar thing happened to me and my GP didn`t seem to know what to do- when it was obvious my carbimazole was reduced by too much.
So I phoned the endo`s secretary to ask advice. The secretary was only too pleased to help and asked the doctor`s advice for me. I called back 2 days later and was told to take 20 mg of carbimazole instead of 15mg. Hope this helps and you begin to feel a bit better soon. x
jennifer_84715 joy87504
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karen0810 jennifer_84715
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Can't really add much other than what has already been said. It sounds like your dose was reduced by too much too soon. I was diagnosed last September and was also started on 40mg for a month then reduced to 30mg for another month then down to 20mg then 15, 10, 5 and now I'm on 2.5 (well, 5mg but every other day). It's over a year now since I started taking carbimazole and I was hoping to be off it by now but, equally, I don't want the symptoms to come back by my stopping taking it too soon. You don't say whether your GP has referred you to an endocrinologist yet but, to be honest, I still felt that they were only interested in looking at my blood results and adjusting the dosage, there was no emotional support at all.
Following advice on this board, I also experimented with L-Carnitine and it seemed to make me feel more normal. I'm not sure what effect it had on my bloods but I definitely started feeling more like myself when I started taking it. I think the feeling that you've done some research and done something for yourself is immensely helpful psychologically because this disease just takes over your whole body.
Hope you feel better soon. Keep visiting this forum because it's a mine of information and support.
jennifer_84715 karen0810
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derek86752 jennifer_84715
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I know the feeling, I discoved that it helps to use sinuses spray as it was because of that I was getting miagraines something I worked out myself, I am not a doctor but have been overactive since 2008 possibly before. I find that because of sinuses which is because of the increase in mucus the goes on and around the heart incauses heart to pump faster.
It has been hard for me to tell my doctors this as they do not lisen. However I have manage to help keep tremers and miagraine away for a long time know.
Hope this help you.
jennifer_84715
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linda187 jennifer_84715
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linda187 jennifer_84715
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