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,well, I've suffered from crowns symptoms for over 25 years now, I had a colonoscopy in 1997 which was clean. After this I've not been able to get a gp to listen to me.
fast forward to May, I've lost over 2.5 stone in the last year and my symptoms got worse. Been in a and e twice in 2 months, had a failed colonoscopy as they couldn't get round. This week I had a ct and X-rays in e.d. Showing terminals ilium disease 20cms and stricture. I was offered another colonoscopy but declined, I'm not going through that when they can't get round.
i self discharged after being faffed about in a and e for 36 hours. I found out what was wrong when I asked to leave.
its taken 4 days to be given steroids and antibiotics, which I've not taken because they scare me and I feel a lot better than I did.
my issue is , I can't accept what's wrong with me, and I want to hide.
my husband isn't really a talker and I feel isolated ? Does anyone else feel/felt this way?
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