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I'm feeling really low at the moment. Diagnosed in January at the age of 28. It all responded well to steroid cream. I was told by dermatologist I had some obvious issues with clitoral hood that I wasn't even aware of but I death with that and felt ok. However it's all flared up.
Looking in the mirror tonight and I feel like I look totally deformed. My hood seems to protrude out of my labia when standing up everything feels really small and in the last few days it looks like my urethra is closing over. I'm devastated.
What do I do? I don't have my dermatologists number do I speak to my gp?
I absolutely hate hate the way I look, I don't feel attractive at all I feel like a freak. We would love a second child but I don't know how we can. My perfect little life feels like it's over. I can't see passed this crappy condition or how I'm supposed to live with it for the next 60 odd years.
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First of all i am sorry you feel like that..i felt like that too...but all gets better after treatment, you can reverse all and feel better soon.
After i got diagnosed i felt the same, i thought the treatment was not helping...but give it some time...it works.
Also i went to visit my accupunturist and helped me a lot.
BUT, the best you can work on is your diet, i started a diet with no grains, diary or sugar for a month, check the whole 30 diet...my LS is 90% gone...hope that can help you feel better. Good luck!!
I really hope it gets better. Have you heard of the Mona Lisa touch treatment, some ladies on here have had a good response from it. Xx
I've just come across this forum by chance.
My daughter is ten years old (that's right, ten) and was diagnoses with this aged seven after years of pain/inflammation/bleeding/discharge we finally saw a top pediatric dermatologist who diagnosed lichen sclerosis.
She finds this condition really difficult and embarrassing. She is suppose to take topical creams to school for after using the toilet yet is too embarrassed. So she often has flare ups. I try and explain how important it is to manage this condition and her consultant has said that if she learns to manage it from this young age along with her yearly check ups, it can be a good thing as most are adults before they find out (my Mum has recently found out and she's nearing 60!),by which point scar tissue has built up etc.
Does anyone have a child with it or was diagnosed young?
I don't mean to jump on this post. My daughters dermatologist is excellent so I would definitely recommend you make an appt to see yours and visit your GP also. My daughter has about five different lotions/potions to use for everything from washing, for daily use,,after the toilet, during a flare ups and just as a just in case! Feel better soon
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