feeling nervous,apprehensive

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Large 4cm cyst burst in my pancreas [cystadenoma]about 3 weeks ago,caused general hepatitis as infected my lover,had episode cp as well.

Just had CT scan and got to seeGP for results tomorrow.Feeling really apprehensive.

Will surgery be needed?

Will there be scarring to liver or pancreas?

Will I get much better,or is this my lot?

I fight hard to manage cp,the burst cyst and hepatitis has been hard to deal with as well,just need to see what anyone thinks about surgery,management etc.

Also my GP doesn't like Creon,I'd like to go on it.how do folks find using Creon?

Many thanks for your support. Cathy

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8 Replies

  • Posted

    That should say infected my Liver not lover Lol,sorry what an horrid mistake.
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  • Posted

    Cathy,

    You are the one person that has me thinking. I'm terrified because the same thing happened to me, and I did nothing about it I however know I should have gone to the (Doctors). I have chronic Pancreatist, kidney stone and at the time of my tests, I had 5 cysts, one had ruptured when they done a biopsy. Then another one burst Four months ago and at the time I thought it was a good thing ( one less to worry about).But I realise it could have been what my latest flare up was about, as the pain I could hardly stand. I am on Creon, Tramadol and Morphine. Please keep in touch you have made me see how not to take everything as part of the Pancreatist. I'm going to make an appointment as soon as I can. Take care I will keep in touch ( Thanks.)

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    • Posted

      hi,

      Still not got scan results. will tell you when i do. Go see Gp, but remember we are all different. Keep in touch and keep going,fighting.

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  • Posted

    Hi Cathy,from my experience cysts indicate scarring of the pancreas,tell your gp you want to see a specialist as gps have no idea about pancreatitis,I had a pseudocyst removed and was told there was scarring of the pancreas which if you take care you can live with,creon are a must ,your gp is a clown,they produce enzymes to digest your food meaning your pancreas doesn't have to work too hard,stay strong Cathy hope this helps
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    • Posted

      hi David, managed to have a chat with the very supportive practice nurse at Gp surgery. she is going to have a chat with Gp and when i see Gp later in week i hope to get onto CREON. Can you tell me, when taking creon can i then manage some fat ie cheese,chocolate and iccream,boy that would be nice.evan if only occasionally.never liked alcohol so not missed but miss cheese and occasional chocolate and icecream.thanks for your reply. 
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    • Posted

      Hi Cathy,glad you are getting support,the creon 40000 need to be taken with every meal,take three with every meal,eat small and often,these tablets saved my life,they will not cure this disease but will make life more bearable ,you still have to follow a low fat diet but with these tablets I am able to have a few treats like cheese and chocolate a week in small portions,good luck and hope you get on these tablets keep me updated how you get on stay strong
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  • Posted

    hi cathy

    sorry to hear about your troubles. Must be the time of the year. I had acute attack completely outta the blue at weekend too.Spent all night friday in the bathroom and all day saturday asleep and back in the bathroom. I think its cp way of reminding us  just when you got it right it flares up to say you cant beat me no matté what you do.Also developed a pressure sore on my hip which became infected and burst!!!!! So because immunity system shot too had extra strong antibiotics for a week. I hate thw randomness and unpredictability of the gid forsaken life long crappy illness.Its the way it messes with your head too.Am now taking citalopram or laa laa pills!

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    • Posted

      its the constant ramondness of this illness that i hate. had two good days,afterv 3 bad ones. Hard to think further than today,which makes socilaiseing hard.Keep fighting carol,good days do happen,make sure you enjoy them,so that when the bad days are here you have good memories to help you through,its the only way i get through. that and faith.thanks for yur concern and reply .
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