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Feeling really down

Posted , 10 users are following.

tina58520
tina58520

Hi everyone with CFS/ME,

 Just need some support at the moment from out there.  My siblings are getting new jobs and taking breaks away frequently, my 19 year old daughter is getting on with her life at Uni, my husband is working all week and I feel my life has stopped since my major relapse in 2013.  I am on a roller coaster which I am sure most of you are but after working for 34 years without ever being unemployed is seriously getting to me now.  My husband took me out recently to dinner with some friends.  I was out for about 3 hours and by the time we got home I could hardly walk and in chronic pain.  I feel I can not lead a normal life like my family and friends and am becoming a burden.  I can't sleep properly I have thoughts of what was and what is, ( I know I am not alone), but I feel myself getting lower and lower.  I sit some days home alone and cry.  My husband tells me to stop there are plenty of others worse of which I know is true but unfortunately that does not heal my physical and mental pain.  This evening on T.V there was a programme about painkiller addiction and he told me to watch it as I was addicted.  He doesn't even acknowledge that somedays I don't even take the recommended dose, and other days I take more as instructed by the G.P as the pain can be unbearable in my muscle/joints.  I also take tablets to combat nausea when it is severe and it has to be severe.  I feel it is M.E and me and that is how it has been since 2013.  Prior to that I was working part time (diagnosed 2007), I am grieving for my career, my colleagues all but one who have long disappeared.  Sorry to be so down my I feel so very alone at the moment, backed into a corner with nowhere to go.cry

0 likes, 18 replies

18 Replies

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  • abot24558
    abot24558 tina58520

    Posted

    I hope so, too, but being 75 already, my time is getting limited. The exhaustion seems to get worse with age, although my sleeping is so much improved with a vpap and Xyrem, (sodium oxybate). 

    I try to get out of the house daily, I have classes and a litttle dog to walk. Some days just getting out of bed and dressed is too much, and I put a kaftan over my nightgown and go. Don't tell anyone! Hope things will look up for us who have lost so much from fibro.

    • bronwyn97278
      bronwyn97278 abot24558

      Posted

      Hi Abot;yes I can understand your "feeling down"....and agree that with our age increasing, our energy decreases/condition/s increase.....(was that a mind-boggler?).......sorry.....but yes, even I compare myself to others of 58 and feel at least 10 years older....and know many of my friends who are in your age bracket, and have more energy than I do.....so am fully empathetic to you......but am proud that you have classes and are walking your dog.....and "who cares if you have kaftan over nightie"......at least if you have a "break-down" and need a trip in an ambulance you have the right attire on (underneath).....sorry if that is too off the mark of hilarity....but as said, am proud of you for not giving up......what classes do you have/studying?   I was talking to another lady who is doing what sounds like our "Training and Assessment", and have been thinking of trying to do something similar (for if I could get through that, I may be able to get at least a couple of hours work a week).............thankyou for joining (I don't know if I have met you yet)...but you will have a Lot to offer us younger ones...............rolleyes​Bron
  • mike76241
    mike76241 tina58520

    Posted

    had cfs for many years, recently tried souvenaid which is a vitamin

    recommended supplement for those with Alzheimers,

    available online, ordered through local chemist, not cheap

    around £14 for four small bottles, you need to try for at least ten days,

    this IS NOT a cure, but helps me feel better, which if you push

    yourself will end up going back to square one,

    also try blackberries available from supermarkets again a

    vitamin which might help.

    NHS workers whilst recommending this for alzheimer sufferers

    do not say this will improve your situation, but those who come

    off medication /supplements are known to deteriate in their

    condition,

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