feeling rough...

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Hi i would be most grateful for any advice...I had a thyroid lobe ectomy in august last year since then my level has changed ..My dr put me on levothyroxine which made me swell up so i came of that had my blood checked month later and now take liothyronine 5mcg daily...Im feeling rough tired... lethargic...And have odd feeling of shivering up my legs and soles of my feet...I no i should wait and give it a try been on them for 3 days now...I take it in the morning as it doesnt say on packet night...does it get better has anyone had similar side effects to me...

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  • Posted

    I also had a thyroid lobectomy last may but docs havent put me on medication yet as they say my levels are still in normal range xx
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    • Posted

      I ve had 2 blood tests and its changed both times..Im 62 years old maybe its age...I just want some normality and try get back to normal...Its good that youve stayed the same..If i carry on like this i will come of it but people say give it time question is how longs that...thanks for your reply much appreciated....
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  • Posted

    Hi Lesley

    They put me on Liothyronine after I had my completion thyroidectomy in 2014. I was on it for 2 weeks & must say I felt wonderful on it.

    I had never taken thyroxine before then. I had Graves but developed cancer so had to have the thyroidectomy.

    I was put on thyroxine after 1st visit to see oncologist as I cannot have radio iodine due to Thyroid Eye Disease.

    I hated thyroxine! Felt awful, tired, put on weight, just felt like c**p all the time! There is no other alternative for me. I cannot go back onto Liothyronine as my TSH must be completely suppressed. I was put on it in error as they hadnt taken my medical history into account! It took 2 years (of tinkering) for me to settle on thyroxine. I am now on 125mcg which seems ok.

    You will have your blood tested every 6 months (or whatever your Endocrinologist decides) & the dosage will be altered if need be. I usually see the Endo every 3 months & the Oncologist also every 3 months with 2 or 3 months between the 2 specialists.

    You will adjust to thyroxine eventually. Some people adjust quicker than others. Once you are balanced you'll find you will feel more like 'normal' again.

    Good luck 😉



    Ps: when they tell you, you lose weight when hyper thyroid, it's not always true! I never lost weight despit being thyrotoxic for a long long time. In fact I gained weight!!

    M x

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  • Posted

    I should also say I did some research online after being given thyroxine. It seems quite a lot of people do not get on with Liothyronine. I was an exception, typical me!!

    I don't know if you will adjust to Liothyronine, but maybe do some research on the net as I think I remember that some times they use a 'combination therapy' which is I believe using smaller dosages of both. Don't quote me on that it's been nearly 3 years since I looked into it.

    Due to the cancer I had the left lobe removed for biopsy then the right lobe of the thyroid in the May of '14.

    I hope you get sorted Lesley.

    Marilyn xx

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