Feeling so low

O, Chrissyboo, so sorry to hear that you're so low. If its any consolation, I do understand. I have been in that dark place in the past: not wanting to die but not knowing how to keep on living. The cloud will pass. But if things don't get better you must go and see your doctor. Xxx

Think l and many would be the same, we all need someone to talk to when were going through a bad low time, and most get them,and we dont all have supportive partners or family to talk to when we need to, , still the idea of picking up the phone to talk to a stranger about how were feeling is difficult, although l,m sure after initial words it would help, they are there to support people. lve not been diagnosed with cfs, but do have chronic health probs, and get pain and bouts of nausea fatigue

though so grateful its been fairly settled last few weeks, meaning l can get out a bit, big help to lift spirit,.  So l cant speak of how it feels to have cfs, maybe someone who has it will respond and no more about it. So sorry your having a down time, been there, even my little dog helps, poor dog, but he can make me laugh, which is good. Keep going and battling on, Best wishes.  

So sorry you're feeling down. It's totally understandable. I've been there. I'm sure most of us on this forum have felt down at one time or another. It's good that you posted here. Are you alone? Is there anyone you can talk to, like family or friends? Reaching out can really help. Are you able to get outside? Sometimes just getting out of the house can help, even if it's just to sit or lie on a recliner. Are you able to do any activity to distract yourself? Like reading, listening to music, or watching a movie on your computer? Take care, Krissy.

Oh bless you yes i know how you feel i have had it 7 years now and it does take its toll i recently rang someone who has ME as well and it was so nice to speak to someone that new exactly how you felt without judging you. Are you able to text rather than talk on the phone ?

Hi krissy,

Not surprised you're feeling so low. You just got your diagnosis and although yes, a part of you will have relief, its a diagnosis not a cure so other parts of you have to adjust to that. I think what you say In your other post on here about your partner having to do things, you not feeling a'mum' is huge for me too. I've cried so many times over that. I agree with what others have said about allowing ourselves to grieve and i know thats tough because that can almost feel like giving up. On bad days, whether that be feeling so low, being exhausted, having mind fog,pain etc-whatever the day is bringin-Try to remember that you have got through these before and often it will have been worse. Don't beat yourself up krissy, you still are mum, you still are "you" just with this condition at present.

Hope this is helpful

Best wishes

Bev

Oh my gosh, I know how you feel. I have been getting sicker and sicker over the last few months. Sometimes I'm in so much pain and I'm so exhausted that I can't imagine going on. When I get like this, I either talk to my husband or talk to the people on this forum. The people on this forum no more about what we are going through than anybody else in the world, including doctors. If you can text, pour out your anger, frustration, sadness, and whatever else is going through your head to the rest of us,. We have all been there. We have all been scared, frustrated, anxious, etcetera. These people can help you get through it, as they have helped me many, many times. Take care of yourself. Hugs. 🙅

I know exactly how you feel. I have rung the samaritans (you can e-mail them as well and they get back to you maybe after 24 hours, so it is not immediate). I only rang them last week not that i was suicidle but because i really needed someone to talk to outside the family. It really helped to talk it calmed me down as well as having M.E. I had been to the M.E. clinic 3 times and each time the O.T. just made me feel worse and she had written letters to my doctor with loads of mistake in and 2 things I did not want disclosing to him (she had not mentioned in our session that she would be writing to him), also my best friend was rushed into hospital she has cancer and a freind and my brother messed me about no end about arrangements. All these thing compounded and made me feel so stressed and my M.E. worse. I have had it for 32 years now and am rahter sick of it. but if things are going okay I can manage it with rest and pacing. Which works for me.

All the best to you and if you can pick up the phone the samaritans they are really good at listening.