Feeling sorry for myself

Posted , 8 users are following.

i feel so down at the moment. The constant pain in my back and hands is driving me crazy. I've no energy, I can't do anything I used to. I'm just so exhausted with feeling this way. 

Li haven't formally been diagnosed with fibro, waiting on scans I had of my hands, then if no inflammation present the rheumatologist is going to put all my symptoms  ( there are many) to  Fibro. I've been like this for 20 months now and everything is getting worse. I honestly get up in the morning and feel I've been hit by a bus! I'm so stiff and achy. My back is awful at night.  My wrists and hands are constant. The heat sensations in my thigh is now everyday. Muscle twitching everyday now too. I wasn't depressed but I can honestly say with no let up of the symptoms I soon will be.. 

The doctor has suggested if it is fibro I start on low dose of Amitriptyline. Does anyone have any experience with this and does it help? I'm very against taking prescription drugs if I can help it but I'm desperate now. 

Sorry for moaning, I don't like to but no one understands or is interested how I feel. I keep it to myself now but it's bringing me down.

thanks for reading. 

3 likes, 11 replies

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11 Replies

  • Posted

    Bless you Its hard trying to cope with a cronic illness, it does drag you down. makes you feel low and can lead to depression. its hard when we have always been so active and able to do things. to suddenly find that we can no longer do the things we use to. the hardest thing and it takes time but is adjusting to the new us. you go through different stages. when you finally get your diagnoses that it is fibro in my case it took 10 years many many many tests seeing every specialist imaginable.blood tests galore my poorarms looked and felt like a pin cushion. 1st is denial that you have fibro 2nd is grieving for the person you use to be 3rd is anger 4th is acceptance. your gp will try you on different meds its finding what suits you and what doesnt. everything is trial error with fibro as what works for one wount for another. fibro is different for all of on how it affects us all. some have fibro that is at the extreme level others may have it thats its mild.its finding what works for you what doesnt get as much help support as you can see if your area has a local fibro support group. your dr can offer cbt therapy some areas offer free acupuncture and hydrotherapy. getting a definite diagnoses from rheumatologist is the 1st step.I dont take anything for pain as Im allergic to opoids. so comment on meds.I use wheat bags and hot water bottles to help with pain relief. get as many aids as you can to help you. stress worry only makes our condition worse. easier said than done not to stress worry and try to keep positive helps but not always easy to do. just take each day as it comes get through it as best you can dont focus on fibro or the painyou are in as it doesnt help. distract hpow your feeling by watching tele dvd listening to music reading.anything that helps you. also I find treating ourselves being kind to ourselves and pampering ourselves all helps.I have found personally speaking since having fibro that I have been left to get on with it and no one friends family drs health proffessionals are really bothered or care. so I manage my condition my self and get through it as best as I can. this forum will help you with support guidance should you need it. take care gentle hugs xxsmile   
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    • Posted

      Thank you for replying. It's nice to think there are people out there who understand. You describe the emotional stages very well. I have been in denial, then angry and defeated! Thank you for your advice I will try and follow it. 

      Sorry you've struggled for 10 years. That's a long time to feel like this. 

      i wish you well and hope your fibro is kind to you. 

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  • Posted

    This is the only post ive seen that ive read that i fully can relate to! Everything u say and more is happening to me in in the middle of diagnosis..well working out what it is. Doc thinks fibro so thats something least he believes me.im going to docs tomorrow because the pain is geting worse and like u its in my hands. Even typing is hard work. Holding my phone or doing my hair hurts. Like someones put weights on my arms. I know what ur going thru and im goinf to ask my doc for that medication you mentioned. Also i have sleep apnea so on the waiting list for sleep clinic so as u can imagine i dnt sleep lol and im even more exhausted it just awful i feel like im about 90 years old xx

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    • Posted

      Hi

      yes that's exactly the same. Some days I just can't tyoe or use my hands much. Other days it's my knees! My back is pretty much constant now and my right shoulder. Is the sleep apnea connected to fibro? Luckily I do sleep well. It's just when I wake up and feel battered! Like you, I feel 40 going on 90! 

      I hope you get some relief soon. 

      Take care xx

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    • Posted

      Yea the hand things isnt nice is it.my scalp hurts. I love people washing touching it relaxes me but putting my hair up or anything its like evry strand i feel. I dont straighten it often becausr it hurts. I just feel so sensitive lol atm im sitting at my desk and my thighs and elbows are hurting its so weird. Im only 27 just turned. No kids yet but we r trying. Someone said hey to me the other day n poked my arm n for about 20 mins after it was stinging. Its just weird. I had sleep apnea for a while now it went away when i lost weight but ive been putting weight on again now its back n yea it can be one of hundreds of things it relates to. Xxx
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    • Posted

      I get tender spots on my scalp too and never really connected it to Fibro. although i havent been formally diagnoised after 8 years of going to the same surgery complaining of fatigue and pain i think they are finially ready to say yes maybe it is but this has put another symptom to my list too
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  • Posted

    Hi

    i was diagnosed with Fibromyalgia in April and prescribed Amitriptyline to take at bedtime as I was having terrible pains in my legs - knees, shins, thighs all felt as though they were burning. I started on just 5mg, moving up to 10mg, and I have found that it helps me get a reasonable amount of sleep, not every night, but it has helped me. I had a few strange dreams at first but they stopped after a couple of weeks. Hope this helps. Hugs.

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  • Posted

    Poor you han, really feeling for you..its just too hard for us sometims..good you have a Rhumotologist their the ones that diagnise fibro..i had it a good 10 years before i was diagnised..sooo many different symptons..i was treated for each one individually until my dr, just didnt know anymore what to do for me, of course he didnt..mmm- 10 years..,then he referred me to a Rhumo..I was diagnised almost immediately...then i was able to get proper treatment, but it is that chronic tiredness that got me, anyway han, there is light at the end of your dark tunnel..ive had it 30 years..and apart from the tiredness i just get bad flare ups a few times a year now..they are bad but its better than 24/7...be blessed and encouraged..,thanks for the update..have a lovely day..😍😍
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  • Posted

    Both wrists in braces at the moment - most likely a tear in triangular fibrocartilage tfcc at ulnar connection and not fibro - and it's uber frustrating. One hand's better than other so I'm typing with it. But it's really limiting me even more so than usual sad My pm dx this not the rheumy mine isn't that interested in fibro and my blood work is all over the map so I'm a bit of anomaly with signs of lupus and sjogrens and hypermobile joints but not enough for a "certain" dx hence the symptoms they couldn't figure out became fibro. I'm super sensitive to touch, always have been, it's pretty painful to get a hug unless the person is gentle and only touches my shoulders not my back. Sleep is elusive. Too many meds to add another. One helpful thing I read somewhere online is no matter what experiences others have the only real way to know if it works for us is try it. Every body is different (though researchers seem to think we're the same) especially with fibro I think bc it manifests in different ways and with more/less impacts depending... I hope science advances understanding soon bc I suspect there's variations of fibro and maybe better treatments for all could result. Sorry you're hurting. Hope answers and Relief!!!! come soon. 
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  • Posted

    Hi han, it is a shock and a disappointment to be diagnosed with this....as the other lady said....you are relieved to have a diagnosis. ...then reality takes over....on a really bad day...I look to the future with utter and complete dread.....I take quite a lot of medications. ...

    I take..SERTRALINE. ....PREGABALINE. ..TRAMADOL....CO CODOMOL. .....HRT,....SIMVASTATIN....TWO INHALERS. .ONE AND STEROID. ..I HAVE JUST COME OFF...RAMIPRIL AND CLOPIDOGRIL. I am extremely fortunate, I have never every had any problems on them...or if I stop them dead...I did with AMYTRIPTALINE. .

    It must be hard if you have effects from them

    Try to keep your chin up and be positive han I know how hard it can easily at first...but you adapt...I did find there are any jobs in cannot manage I just ignore them...I send you huge, warm hugs....get plenty of rest and try to rid you life of unnecessary stress and worry....take care lovely. ...hugs again dee xxx xxx xxx

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