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Feeling spaced out !

Posted , 5 users are following.

keith31290
keith31290

Hi Guys

Went out to the shops today and didn't go to well! I had to walk back and forward in the shop a few times and the lightheaded symtoms came back.

Anyone else feel like they are walking on the moon?I thought I had got rid of the labryithitis but this won't leave. I have had the labrythitis now for 9 weeks I did have this feeling at the start of the lab

Any help appreciated I really need it !

0 likes, 22 replies

22 Replies

  • mark451451
    mark451451 keith31290

    Posted

    Hi Keith.  Yes ive had the same.  It does come and go......but you gradually get it less and less.  I dont get it any more and probably in a couple of months yours will have gone too.  Meantt o say to you,  are you going back  to work on a phased return, if not you should insist on that, and even get your dr to only let you go back on that basis.

  • christine42810
    christine42810 keith31290

    Posted

    Hi Keith, my specialist and physio told me that recovery comes incrementally with some good days&/weeks and so,e where you think the whole thing is back for good, Haven't had weeks yet, days yes!  If you are doing the VRT you just have to keep doing it on the good days as well.  Just off to the gym now and will do some there this morning.

    I think people do get anxious with it because it is anxiety provoking!  But anxiety is definitely not the cause.  I am and have never been an anxious person and as a psychotherapist and counsellor I deal with people with anxiety issues all the time.  This is not anxiety.  I think part of the anxietyit provokes on us is that with this condition iswe don't know how we are going to feel one day to the next. Life is not what we call "normal" and so we don't know what is going on.  We think we are better, then we are not!  I think you just have to take one day at a time. Try not to get too fatigued and recognise the symptoms of when you are and if you can stop what you are doing and take a rest.  No alcohol or caffeine.  I believe salt has an effect too but can't verify this. Definitely school though.  I am staying off the morning coffee for a while. I only drink one a day but will let that go and see if it helps.

    also keep exercising as much as you can. I was told to do by least a 30 min walk a day.  I do more than, I go to the gym a swim too, but the walking is good because you do have to focus on your balance. Try not to look down at the ground. Try focusing on something ahead.  

    Something i I read once might help:  look to the horizon and eventually you will get there.  I tell myself this everyday as I walk up the hill to the gym.  It helps.

    take care.

    • alison17886
      alison17886 christine42810

      Posted

      Hi christine i think being dizzy all the time brings on anxiety i have been to see a healer hes taken a lot of the anxiety away feel a little better ive learned to cope a little with it now .
  • linda00569
    linda00569 keith31290

    Posted

    Hi Keith know how you feel been there and at moment not good but my consultant like Christine said No Salt not even in cooking ,ginger is also good for balance try some you can get it in different forms also sea bands you get those in a chemist hope this helps
  • jimmy97411
    jimmy97411 keith31290

    Posted

    I would take a mobile phone with me and call ambulance if I am going to faint on the street.
  • shutdown
    shutdown keith31290

    Posted

    Hey Keith, I have been told I have BPPV but this sounds a lot like what I have and I so get your 'walking on the moon' description!
    • keith31290
      keith31290 shutdown

      Posted

      It's comforting to hear I am not the only one with this !

      Do you have any issues with you vision ? I have been for 2 eye tests that have came back fine but i still have an issue hard to explain but I seem to find it difficult to focus/keep up with moving things also find shopping centres difficult !

      How long have u had this now ?

    • alison17886
      alison17886 keith31290

      Posted

      Hi keith yes having blurred vision awful and feel as if im mr soft walking on sponge this site is really helpful to think your not on your own .
    • keith31290
      keith31290 alison17886

      Posted

      Hi Alison

      What stage are you at with this ? Are you getting better ?

    • alison17886
      alison17886 keith31290

      Posted

      11mths of being constantly dizzy feel my lifes over my 12year old have had to take over had scans thats come back clear no1 have even diagnosed me they dont know at the start the doc sai it was a ear infection but it werent seen a neuro she said it was my ears so now waiting to see an audiologist been on ever so many tablets none have worked so far ive even seen a healer and homeopath no good news yet i lost my job cos i cant drive like this.hope you get better soon x
    • keith31290
      keith31290 alison17886

      Posted

      Omg that's terrible!I have never heard of an ear infection going on so long I hope u get some answers soon !
    • alison17886
      alison17886 keith31290

      Posted

      I feel im hitting a brick wall everytime ive been admitted to hospital 6 times and no answers they just give me an extra tablet im on nortriptilene stemetil thyroxine prozac ive never taken a tablet for anything but this last 11mths you could rattle me and none of them are working i feel pretty desperate .
    • keith31290
      keith31290 alison17886

      Posted

      Oh that sounds terrible ,My systoms have got a bit better and I can now go back to work on a phased return,I would hate not to feel any improvement at all.

      Do u definitely know it's bppv ? If so have the docs went over the excercises with you ect..

    • keith31290
      keith31290 alison17886

      Posted

      That's crazy Alison ! Why hasn't the Neuorligist done any of the tests with u ? You need to be diagnosed before you can treat this ? There is loads of self help for bppv and lab on YouTube even basic epley would help and also eye focus excercises where do you stay have you thought about going private
    • alison17886
      alison17886 keith31290

      Posted

      I seen a neuro private paid £250 he put me on nortriptilene no1 seems to take any notice of me 11mths of sheer hell im just hoping and praying this audiologist im waiting to see will have some answers .
    • alison17886
      alison17886

      Posted

      What is epley ? What do i do just type in epley on you tube ?
    • keith31290
      keith31290 alison17886

      Posted

      I have copied some info from a couple different web sites here to try to make it simpler for you to get a feel for what you have and what's going on and the fix. If I give the web site the webmaster will not let this post, so don't think I'm a doctor or even smart, I just went there and read about this so many times I thought I would try to give you a condensed version of a lot of information.

      Benign Paroxysmal Positional Vertigo (BPPV) is the most common disorder of the inner ear’s vestibular system, which is a vital part of maintaining balance. BPPV is benign, meaning that it is not life-threatening nor generally progressive. BPPV produces a sensation of spinning called vertigo that is both paroxysmal and positional, meaning it occurs suddenly and with a change in head position

      BPPV occurs as a result of otoconia, tiny crystals of calcium carbonate that are a normal part of the inner ear’s anatomy, detaching from the otolithic membrane in the utricle and collecting in one of the semicircular canals. When the head is still, gravity causes the otoconia to clump and settle ( When the head moves, the otoconia shift. This stimulates the cupula to send false signals to the brain, producing vertigo and triggering nystagmus (involuntary eye movements).

      Subtypes of BPPV are distinguished by the particular semicircular canal involved and whether the detached otoconia are free floating within the affected canal (canalithiasis) or attached to the cupula, in the middle of the center bulge,at the base of the semicircular canal, where the nerve attaches, sort of like where roots are attached to plant. When this happens it is called cupulothiasis. BPPV is typically unilateral, meaning it occurs either in the right or left ear, although in some cases it is bilateral, meaning both ears are affected. The most common form, accounting for 81% to 90% of all cases, is canalithiasis in the posterior semicircular canal.

      The fix recommended for most forms of BPPV employs particle repositioning head maneuvers that move the displaced otoconia out of the affected semicircular canal. These maneuvers involve a specific series of patterned head and trunk movements that can be performed in a health care provider’s office in about 15 minutes. There are several types of maneuvers to be used depending upon where the crystals that are out of place are located. Try googling "BPPV repositioning maneuvers".

      I hope this helps you out and that you keep faith. If you have been diagnosed accurately and indeed have BPPV it is a lot better than having Vestibular Neuritis (VN). VN is a real bummer, it takes a very long time to get over.Yes it's on YouTube I also got this good info on this site hope it helps u also

    • keith31290
      keith31290

      Posted

      I got the above sent to me on this site I hope it helps u also
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