1. Community
  2. Skin and nails
  3. Hidradenitis Suppurativa

feeling stressed and depressed and needing help

Posted , 7 users are following.

amandaclaire
amandaclaire

I was diganosed with Folliculitis and Hidradenitis Suppurativa a year ago  which they both are destroying my life and making  but i never know what makes it flare up as i am covered in spots and lumps i just wanted to know if there was anyone if they could help me or advised on what i could do i have taken every antibiotics that a doctor can prescribe tried yeast nothing has helped i have been advised that i should try hospital treatment

please could anyone help or advise me on what i can do to help my situation 

Thanks Amanda 

0 likes, 6 replies

6 Replies

  • emmauk66
    emmauk66 amandaclaire

    Posted

    hi amanda 

    im waiting to go n see a dermotologist to have the HS diagnosed but from what my doctor has said im pretty confident i already no i have it. ive sufferd from 2002 with abscess in my right  hand side of my groin . also have had 2 up my bum. had surgery for a fistual in ano in april just gone and now im suffering with a large abscess yet again in my groin ,im currently on antibiotics , my nurse did apply magnate sulphate paste on thats burst it but after 3 days its still draining on its own but the lump is still there its around 1'' long when i press round the area and i would think it's pretty deep to . when i was on here the other night i came across a lady's story who's also battled with this horrible illness and her story i relate to  . I think 's down to what we eat  so il sen u the link and i hope you find this helpful and i wish you all the luck in the world i just wish for all of us sufferes out there that there was a cure for this awful condition 

    Emis Moderator comment: I have removed the link as it was to a site unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

    http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts

    http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

  • mae07358
    mae07358 amandaclaire

    Posted

    Just in case my other post doesn't get posted.  The answer is simple. HS is caused by food-related reactions.  Try going Paleo or try Autoimmune protocol.  Do a search and you will see how the cure is in your hands. 
  • tanya450
    tanya450 amandaclaire

    Posted

    I am so sorry to hear that you are having so much trouble. I have HS too and I have tried everything. I am taking DoxiTab right now and I don't really think it is goign to help but I am trying. There are a lot of people who say that smoking and being overweight are things that make it worse, and there are a lot of people who say that maybe it is a form of food allergy or an immune problem. No one can say for sure because sometimes a treament works for one person, but it does absolutely nothing for another person.

    I think you should pay close attention to when it gets worse and what happened around that time. One thing is that you should NEVER shave anywhere that you have pumps or lumps and you should not scrub hard at these places. I used to think that I was not washing well and so I would scrub and scrub in the shower and it made it much worse, so don't do that. But wash gently with an acne baody wash or try a bady detergent like DEXIDIN or something like TRICLOSAN whihc are gentle antibacterial soaps. I found that these helped me a lto and I use them every few weeks (its not good to use them all the time).

    You should also try TURMERIC capsules which are an anti-inflammatory and some people say that they help. But you should ask your doctor if you are healthy enough to try them. You can't take them while you're on antibiotics because most of them have enzymes that make you unable to digest antibiotics so do talk to your doctor first.

    Unfortunately there is no single answer anyone can give you. Only suggestions and personal opinion on what the causes and solution is. But you are not alone. There are others suffering this with you and it is so hard. Just be strong and keep trying different things. Don't give up and rememebr that sometimes it takes 6 months or more for something to change. If you try a new diet, it might take several months, or even a year for you to see a difference. Or if you try turmeric it might take a whiel for you to see a change.

    You should also go see more than 1 doctor and get some differnet opinions on what you can do. Be strong and don't give up. One thing you can look forward to is that most people are one day clear of this, it is just a matter of when and how but it will come.

    • amandaclaire
      amandaclaire tanya450

      Posted

      thank you very much for your kind words and the advice i will keep a diary i have recently been back to doctors and have to be referred again to a dermatologist and start all over again i have seen a variety of doctors and i keep getting different responses and i have tried some many different things just gets me down but its so nice to be able to talk to other people with the same diease and discuss the same issues and be able to help each other once again thanks for your advice and help how yours gets better as well but i have now got use to i have to live with it as its not gonna go away!!
  • Guest
    Guest amandaclaire

    Posted

    hi

    yes it is a horrible disease and can ruin your life, when you speak to other people who don't have it they think it is just like a boil and don't know why you are making a fuss!! it's the chicken and egg, if you are stressed and depressed you are likely to get it, when you do get it they make you stressed and depressed. Insist on seeing a dermatologist not a surgeon and get long term antibiotics like for a year.

    good luck with it all

  • crystal_08850
    crystal_08850 amandaclaire

    Posted

    Nightshade vegetables aggravate mine. HS is an autoimmune condition and nightshades can make autoimmune conditions worse.   I have started avoiding nightshades and am now in remission! If I accidentally eat a nightshade, I will have a cyst flare up. Eating out is rare.  I have to watch every ingredient! I've had HS for years and was in stage 4. I've tried everything.  Finding a forum on here about nightshades was my miracle from God! 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.