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My story is somewhat long but I need to put it all out there to try to get some insight. I have been having the following symptoms for several years. These symptoms have drastically worsened since my knee surgery last year (MPFL Reconstruction - August 2017);
Joint Pain, Swelling, Stiffness & Weakness
Frequent Nasal Sores
Bouts of Fainting
Bilateral Hip Bursitis
Anxiety & Depression
Psoriasis (Scalp & Ears)
Back & Neck Pain
I saw a Rheumatologist about 4 years ago who tested me for RA. I have a strong family history but it was negative. I was even negative for the gene. He told me that I had “chronic inflammatory disease” and “hip bursitis”. He said the bursitis was caused from me being overweight, (I was about 180 at that time). He started giving me injections every 6 months for the bursitis and prescribed Meloxicam. The Meloxicam did not help me so I do not currently take it. As far as the bursitis goes, I started doing the Keto diet and dropped down to 155 (my current weight). It has made me feel somewhat better physically but not a huge change so I not believe that weight is the factor in that.
Moving on, after I healed from my knee surgery last year, my health started to drastically decline. I told my PCP about everything that had been going on and he gave me a referral to a different Rheumatologist. My PCP suspected I may have Lupus but wasn’t sure because my labs were normal. In the mean time my PCP prescribed me Tramadol for the pain, Metoprolol for the tachycardia, Sertraline for the anxiety and Ambien for sleep. He said we would wait for me to see the Rheumatologist before he sends me to a Neurologist for the migraines and insomnia.
I waited 8 long months to see the Rheumatologist and she spent no longer than 10 minutes with me before she said I have “Fibromyalgia” and EDS/Hypermobility Syndrome. She said theres not much she can do for me.. to try yoga, meditation or cognitive behavioral therapy. She said she would do some labs, x-rays that and get back with me. The nurse called me last week and said I have Hyperthyroidism (which makes sense for the sweating issue and even fatigue) but other than that, my labs and x-rays are normal. She told me to follow up with my PCP regarding medication for the thyroid issue and possible medications I can take for the Fibromyalgia. She’s also referring me to a Dermatologist for an official diagnosis of Psoriasis. She said it COULD be possible that I could be developing Psoriatic Arthritis but she’s really not sure. I see the Dermatologist on the 21st of this month and my PCP on Monday.
I hate feeling like I’m crazy! Doctors just look at you like you’re a Hypochondriac. I’m not downing Fibromyalgia but I feel like it’s is an easy diagnosis doctors throw around here and there to not have to do further testing or really look for the underlying problem. I know my body better than anyone and something more is going on. I’m 31 y/o and feel like I’m 70 most of the time. This has drastically changed my life over the past year and I just want some valid answers with some valid treatment options. I’m in debilitating pain every day. It’s hard to get out of bed because of pain, fatigue or migraines. I feel a lot of shame and guilt because of all of this. I rarely make it to work lately and my boyfriend has to pick up the slack. Coming from someone so independent, this is really hard for me.
Any suggestions, advice or opinions would be appreciated. Thanks!
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