Posted , 14 users are following.
Hi,
This post is on behalf of my sister, she developed shingles in march and is still suffering from it. She said the only way she can describe the feeling she has is like ants running around inside her body, it is like an internal itch. Anyone one else have strange feelings from shingles and will it get better soon.
2 likes, 27 replies
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marci83831 jen86183
Posted
jen86183 marci83831
Posted
Have you had this for a long time, every time my sister thinks she is recovering, it only seems to last a day or two and the feeling comes back. It is really getting her down, it has been three months since the outbreak.
sheila24138 jen86183
Posted
I had shingles last July/17 and I still have PHN as mentioned above . I had it around my back, groin and my thigh. My leg and groin often feel like it is frozen with a tingling itch. Feels like if you had a tooth frozen at the dentist and the freezing is coming out .... it comes and goes. Good for a couple of days and then back again. Sometime little shooting pain feels like an electric shock. This is all due to nerve damage caused by the shingles virus. I was told if you were still having problems after two months then it is PHN. Some have it for a short time and others longer, as for me it’s coming up to a year.. I was given pregabalin that has helped but I weaned myself off to once a day at bedtime. If you can live with it then fine but if it gets unbearable then you could speak to your medical practitioner and they can recommend something to help. Wish you all the best for a speedy recovery from this nasty virus
jen86183 sheila24138
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lorray64454 jen86183
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Jen Hi I am sorry for your sister’s suffering as it is no fun at all. I have Shingles nerve pain but without the rash. I have similar pain and feeling as your sister. This started first part of May for me and it isn’t letting up. I pray it goes away soon as it is so painful. My Dr has me on Lyrica but it really isn’t helping too much. I put ice patches on often along with other patches but I don’t get too much relief. I wish I had the answer for all of you suffering with this. It came on so sudden. I just hope it goes away one day. I pray all of you heal too. Take care, Lorray 💕
jen86183 lorray64454
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telma57 jen86183
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I had the shingles in march too on my neck and scalp, until today I had the same feeling, getting better every day but out the blue the sensation hits me back. Some people said that this can stay for much longer, I hope not.
Hope your sister feels better soon too.
Regards,
Telma
jen86183 telma57
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lorray64454 jen86183
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Yes I agree as my mom and sister just went and got the shot and many other people I talked to were going to get it. I told them too it’s just so painful to go through they have to get the shot. My other siblings were going to as well. I hope you all feel better real soon. Take care, Lorray 💕🙏
Hector78249 jen86183
Posted
I’ve had shingles PHN since July 2013; supposedly the worst type, ophthalmic shingles. It went from pain to itching to a mild case today of little or no pain and mild itching, thanks to GOD Almighty and the wonderful advice of my primary doctor and ophthalmologist. The mild itching I have late at or early morning. I usually get a cold wet towel and gently rub myself. I also take amitriptline 25 mg pill at night. Early this month I took the 1st dose of the new drug Shingrix, with a second dose in about 3 months. This new drug supposedly has a 90+% of preventing return of shingles. As to the PHN, some have it for weeks, or months, or years or life. I have come a long way since July 2013 in having just a mild case of PHN. Discuss your own case the proper medical providers and follow their advice. Wish you the best🙂.
jen86183 Hector78249
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It sounds like the amitriptyline did not work then. I read that is a go to drug for doctors to use and it seemed the safest as it has a long history. I do not think I will tell her how long the after effects of shingles can last, best not to upset her.
joseph34465 jen86183
Posted
Hi jen86183, yes I have had the post pain for going on 2 years. I had Singles in my scalp, above my eye, and along my left forehead. I've been to so many doctors that I lost count. I'm going to a neurologist now, but he didn't help eather. Tell your sister if she gets depressed get something for that, but tell her I'm a small amount of people that get the post neuralgic pain. It will slowly get better, or at least she will find ways to deal with it. Good luck
jen86183 joseph34465
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Shoe_Lady jen86183
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Hi Jen,
I came down with shingles about 4 years ago, Dec 2014. I have had PHN and reoccurring breakouts, pain, headaches, nausea, itching, tingly skin, hot and cold flashes, major fatigue! Last year I started a diet and supplement protocol. I’ll send you the post I have sent others:
. Shingles is a virus circulating through your body. It takes time and your immune system has to be able to fight it to demand it back to its dormant state. You must rest, find peace in everything, as any type of unease, physical or emotional, feeds this demon. Your diet needs to be full of fresh fruits and veggies mostly. As much raw as you can stomach. Smoothies are a great way to accomplish this. Supplements like b12, zinc, lysine, cats claw, alpha lipoic acid, magnesium, methylsufonmethane MSM, EPA&DHA (plant based), ester-c are helpful along with the diet. Teas are great too: nettle leaf, raspberry leaf, lemon balm, and rose hips are all great starters. Everything organic is better. Be mentally ready to fight this for a while. There are so many random, strange symptoms that you can feel throughout the healing process. This virus is not messing around! I am sorry for your suffering?
I hope this helps!!
jen86183 Shoe_Lady
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I think a big problem with my sister is she also has frequent outbreaks of cellulitis for which she keeps having antibiotics. I keep telling her the antibiotics are destroying her gut bacteria therefore she is more likely to pick up every virus going.
Shoe_Lady jen86183
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joseph34465 Shoe_Lady
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Shoe Lady, thanks for all the information. I've had it for almost 2 years and the pain come and goes, but one thing for sure stress is a big factor. Some things are hard to handle as you get older, but you need to stay on top of this. Most doctors really only know what there patients tell them.