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Felt like I'm on a boat constantly for 2 months

Posted , 14 users are following.

rachel00858
rachel00858

I'm a 28 year old female living in the UK. I had an emergency c-section almost 10 weeks ago and 5 days later noticed a feeling as though somebody was pushing me backwards whilst sat on the edge of the bed. Ever since I have constantly felt like I'm on a boat, rocking and bobbing. Nothing makes it better but I do sometimes feel the rocking is more intense. I suffer with blurry vision, brain fog, twitching and drowsiness/fatigue also. GP originally diagnosed vestibular neuritis then vestibular migraine and has referred me to ENT which I'm currently waiting for an appointment for. He also says there is a possibility it could be a CSF leak from my epidural and spinal although thankfully I don't suffer with headaches often and this is a common side effect. I do have back ache often and feel like there is a weight pushing down on me. Whilst driving i don't notice the bobbing feeling. I can't say I feel anxious or stressed. Interested to hear from anyone who has recovered from these symptoms and what you did. Thanks 😊

0 likes, 16 replies

16 Replies

  • eagle33050
    eagle33050 rachel00858

    Posted

    hey a lot of people on here experience similar symptoms. i don't get it when driving either. i find that being more active helps.

    maybe you should write it down what triggers it. you should try some eye movements that helps me. the extreme tiredness i get is awful but i do some kind of exercise and I'm fine. have you ever suffered from vertigo?

    • rachel00858
      rachel00858 eagle33050

      Posted

      That's the thing there is no real trigger its constant 24/7. Do you have the same symptoms as me? I haven't ever suffered with vertigo and not really sure what triggered this episode as my experience doesn't seem to match any triggers that I've read can cause these problems. It's an awful debilitating problem and come at a horrible time as I'm trying to enjoy my newborn son

    • eagle33050
      eagle33050 rachel00858

      Posted

      but your okay when driving? im really not sure tbh i have pppd caused by an episode of vertigo.

      have you tried vestibular exercises?

    • rachel00858
      rachel00858 eagle33050

      Posted

      yeah when driving I'm not dizzy although I can still feel I'm not 100% like my back hurts and I have a general heavy feeling. Fingers crossed ENT can help me.

    • kristina18218
      kristina18218 rachel00858

      Posted

      hi rachel. i literally have every sympton you have and have seen all the specialists and theyre all scratching their heads. please please give me some guidance and tell me you found out what this is. i hope you see this 😦

  • john37749
    john37749 rachel00858

    Edited

    Hi Rachel,

    I suffered similar symptoms (although I am a man, so no C section for me!). turned out I had low vitamin D. I've been taking vitamin D 9000iu a day with K2 and magnesium for 2.5 months now and the rocky boat feeling has got better. I feel sharper mentally as well. The symptoms haven't fully gone away, but they are better. I also used to twitch as well - my eyelids, finger and other random places. this has stopped completely since starting the vitamins (the twitching may have been down to magnesium deficiency which is quite common apparently)

    it's worth getting Vit D tested, along with vitamin b12 and folate as they has similar symptoms if deficient. also keep in mind that the NHS has a very low acceptable range for these vitamins, so you want to get a copy of your actual results, don't just let them tell you 'it's fine'. I got a private test through thriva which was good.

    • rachel00858
      rachel00858 john37749

      Posted

      Thank you, I started taking magnesium 6 weeks ago and don't get as drowsy anymore.

    • sam14922
      sam14922 john37749

      Posted

      sorry to tag on an old thread. i started having the dizziness after covid. ive been dizzy for 2 years. went away for 2 weeks.

      do you think the vitamins worked?

    • john37749
      john37749 sam14922

      Posted

      Hey. no problem.

      i think the vitamins helped me. I don't often feel dizzy these days. would be best to get your vitamin levels checked before you start taking vitamins at random though. then at least you know what you are deficient in. if the doctor won't do checks for you, you can order them privately. I would recommend an iron panel, b12, folate and vit D. they are common suspects for dizziness.

      Another possibility: did your doctor check for BPPV. fairly common cause of vertigo that is fixed with specific head movements (you can Google them).

  • bao05301
    bao05301 rachel00858

    Posted

    Did you managed to diagnosed this issue? I also experience the same thing for 4 months now.

  • stacey44405
    stacey44405 rachel00858

    Posted

    hi! ive just come across your post regarding you feeing like your on a boat constantly ! i'm

    having the same issue and currently have tonsillitis but the feeling of being on a boat started week before!

    did you find out what was wrong or what you did to help your symptoms?

    i've drained the internet and doctors shrug it off 😦

    thanks you!

    Stacey

    • rakin53523
      rakin53523 stacey44405

      Posted

      hello stacey !

      I am also experiencing the same thing like you. Ive heard of some people recovering from this illness by trying out different anti depressants such as valium , effexor XR and many more . I was prescribed with an anti depressant and it worked with my symptoms , it is starting to decrease over time

  • arib37
    arib37 rachel00858

    Posted

    Hi Rachel,

    I appreciate your original post was some time ago but keen to learn if your symptoms have improved/resolved? I too am experiencing similar at the moment.

  • Swayaway
    Swayaway rachel00858

    Edited

    I have similar symptoms, but not as bad. I sleep fine, and am fine when I wake up, but once I start moving around upright for a while, I start getting that boat/floaty feeling in my head. I do not lose my balance; it is just an uncomfortable feeling that has gone on for over 2 weeks now. When i am sitting in my comfy chair in the evening on my laptop, I feel much better. And, whenever I am driving, I feel great. So, for me, I think that being upright is when the main symptoms occur. I sometimes feel fatigue from it. The fact that driving makes my symptoms go away makes me think that I don't have vertigo. I also have a sound in my ears, which I know would appear to mean that I have tinnitus. It is not ringing, it doesn't hurt, and I don't notice it when I am focused. I think I would describe the sound as fairly quiet crickets. I haven't found an exact match for my symptoms on the Internet. I think the driving angle is pretty important in figuring out what the issue is. I am scheduled to see a neurologist next week. Was considering an ENT as well, but decided I'd try neurologist first since I'm a bit worried about the ole brain.

    • sam14922
      sam14922 Swayaway

      Edited

      what did you take to reduce the dizziness?

      when I'm lying in bed, its feels better, after 5 mins of moving around its there again.

      mine came after i had covid 2 years ago.

      gp doesnt know what it is.

      i keep reading about vitamins but dont know where to start

    • paul45922
      paul45922 Swayaway

      Posted

      hi your symptoms are exactly the same as mine. Did you get any further with a diagnosis. i am waiting on a ENT appointment . just wondered if i could get ahead with this first before seeing them. regards Paul

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