Posted , 5 users are following.
hi,
i am a 46 year old woman who has just had a bulbar urethoplasty surgery in London. I'm posting as this is a very rare condition and I couldn't find anything much about the condition and surgery online. if you have any questions on anything at all please ask. I had been self catherterising for over three years because of a stricture that stopped my peeing independently.
0 likes, 14 replies
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glenn77 sarafurn
Posted
Hi Sarafurn,
I'm an older man who was left with strictures following two procedures for TURP. My strictures are very complicated...long and adjacent to the external sphincter, and perhaps at the bladder neck. In any event, mine caused high level incontinence that has persisted for over 16 months now. Blockage may be down the road, as two procedures to attempt to resolve the strictures have been unsuccessful.
I hope your surgery will be successful for you. I know from my research that strictures are not as common for women as they are for men. I recently traveled to the Center for Reconstructive Urology headed by Dr. Joel Gelman who is entirely dedicated to reconstruction for men. I know now that my condition is so complicated that there may not be a path to resolving the strictures and regaining continence.
I will share one piece of information that might be of interest to you. When bladder neck strictures are treated with urothotomy, injection of mitomycin C has be shown to be effective in keeping the strictures from coming back, at least for a much longer time.
sarafurn glenn77
Posted
Hi Glenn,
thankyou so so much for sharing. I will ask my consultant about that. I had the buccal mucosa urethoplasty on Monday at West Moreland St in London with surgeon Tamsin Greenwell, I'm home now. Hope your get some resolution
warm wishes
Sarah
magicv sarafurn
Posted
Hi Sara, I too am in late 40's & had my 10th unsuccessful dilation recently. I have been suffering this disease my life long. It is gradually getting worse tho. My doctor is looking to do a buccal mucosa urethroplasty & im petrified! How was your surgery & was your recovery long?
sarafurn magicv
Posted
Hi
Well I'm three weeks post op. I was home after two nights in hospital. My surgery was done by Tamsin greenwell at Moreland street in London. The surgery lasted around two to two and a half hours. The vaginal area pain that night was ok after being given dihydrocodiene and just became a soreness. The mouth/cheek can be painful mainly when I tried to eat solids I would recommend sticking to smoothies and meal related Emmy shakes which I got on prrscriptionsssny food just caused problems for the first five days, sleeping as much as possible speeded up healing loads. I'm due back in the next week or do for my second follow up as they were not able to take the catheter out yet as not fully healed, what are you most scared of? Please ask me anything else
Warm wishes
Sarah
magicv sarafurn
Posted
Thanks Sara for yourspeedy reply. I am most fearfull that the Op isn't a success & I will be left with a permanent catheter. I have a large family (had 4 Csections)& very busy life, 3 weeks recovery is long. The pain I endure every day to pass water is tough but I don't know if I can risk having this Op. I am in Ireland & my doc says he will be getting a specialist from the UK to do it, even so, I have never been so afraid of surgery. Please update me on how your progress is when they take the catheter out.
Every good wish for your speedy recovery.
sarafurn
Posted
Hi,
i will ill keep you updated, I'm told the success rates are really good long term, Tamsin greenwell is the only surgeon to do it in the UK for women.
take care keep in touch
warm regards
magicv sarafurn
Posted
nettie85928 magicv
Posted
Hello magicv, I am also in Ireland and contemplating this surgery. Have you had the surgery? How are you now and who did it if you've had it.
nettie85928 sarafurn
Posted
Hello Sarah, I see it is 9 months since your surgery. I am wondering how you are getting on now. Can you share the pros and cons pleas? Dr Tamsin Greenwell has just been recommended to me. I live in Ireland. It's a very big decision whether to have the surgery or not.
sarafurn nettie85928
Posted
I can pee now I couldn’t for years because of my stricture, Tamsin Greenwell is an amazing surgeon, may be useful if you asked me specific questions s I don’t mind discussing anything however awkward etc ..,
Best wishes
Sarah
sarafurn
Posted
Warm wishes. Sarah
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glenn77 sarafurn
Posted
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Glenn
nettie85928 glenn77
Posted
jennifer4ley sarafurn
Posted
Hi there Sarafurn , I am 24 and from ireland and was diagnosed with a urethral stricture 2 years ago and have had 3 dilatations the most recent one in june , after i stopped being able to urinate and had a catheter in for 6 weeks pre op and 3 weeks post op, and i am symptomatic already in august . My consultant has said that he doesn't reccomend the surgery as he would be afraid it would lead to further problems but i would love if you could please let me know if the surgery has been a sucess, and if you have had any complications since.
Your information would be greatly appreciated, thank you
jennifer