Female urethoplasty surgery for stricture

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hi,

i am a 46 year old woman who has just had a bulbar urethoplasty surgery in London. I'm posting as this is a very rare condition and I couldn't find anything much about the condition and surgery online. if you have any questions on anything at all please ask. I had been self catherterising for over three years because of a stricture that stopped my peeing independently. 

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  • Posted

    Hi Sarafurn,

    I'm an older man who was left with strictures following two procedures for TURP.  My strictures are very complicated...long and adjacent to the external sphincter, and perhaps at the bladder neck.  In any event, mine caused high level incontinence that has persisted for over 16 months now.  Blockage may be down the road, as two procedures to attempt to resolve the strictures have been unsuccessful.

    I hope your surgery will be successful for you.  I know from my research that strictures are not as common for women as they are for men.   I recently traveled to the Center for Reconstructive Urology headed by Dr. Joel Gelman who is entirely dedicated to reconstruction for men.   I know now that my condition is so complicated that there may not be a path to resolving the strictures and regaining continence.  

    I will share one piece of information that might be of interest to you.  When bladder neck strictures are treated with urothotomy, injection of mitomycin C has be shown to be effective in keeping the strictures from coming back, at least for a much longer time.

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    • Posted

      Hi Glenn,

      thankyou so so much for sharing. I will ask my consultant about that. I had the buccal mucosa urethoplasty on Monday at West Moreland St in London with surgeon Tamsin Greenwell, I'm home now. Hope your get some resolution 

      warm wishes

      Sarah 

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  • Posted

    Hi Sara, I too am in late 40's & had my 10th unsuccessful dilation recently.  I have been suffering this disease my life long. It is gradually getting worse tho. My doctor is looking to do a buccal mucosa urethroplasty & im petrified! How was your surgery & was your recovery long? 

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    • Posted

      Hi 

      Well I'm three weeks post op. I was home after two nights in hospital. My surgery was done by Tamsin greenwell at Moreland street in London.  The surgery lasted around two to two and a half hours. The vaginal area pain that night was ok after being given  dihydrocodiene and just became a soreness. The mouth/cheek can be painful mainly when I tried to eat solids I would recommend sticking to smoothies and meal related Emmy shakes which I got on prrscriptionsssny food just caused problems for the first five days, sleeping as much as possible speeded up healing loads. I'm due back in the next week or do for my second follow up as they were not able to take the catheter out yet as not fully healed, what are you most scared of? Please ask me anything else 

      Warm wishes

      Sarah 

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    • Posted

      Thanks Sara for yourspeedy reply. I am most fearfull that the Op isn't a success & I will be left with a permanent catheter. I have a large family (had 4 Csections)& very busy life, 3 weeks recovery is long. The pain I endure every day to pass water is tough but I don't know if I can risk having this Op. I am in Ireland & my doc says he will be getting a specialist from the UK to do it, even so, I have never been so afraid of surgery.  Please update me on how your progress is when they take the catheter out. 

      Every good wish for your speedy recovery. 

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  • Posted

    Hi,

    i will ill keep you updated, I'm told the success rates are really good long term, Tamsin greenwell is the only surgeon to do it in the UK for women.

    take care keep in touch

    warm regards 

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  • Posted

    Hello Sarah, I see it is 9 months since your surgery. I am wondering how you are getting on now. Can you share the pros and cons pleas? Dr Tamsin Greenwell has just been recommended to me. I live in Ireland. It's a very big decision whether to have the surgery or not.

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    • Posted

      Hi Nettie

      I can pee now I couldn’t for years because of my stricture, Tamsin Greenwell is an amazing surgeon, may be useful if you asked me specific questions s I don’t mind discussing anything however awkward etc ..,

      Best wishes

      Sarah 

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    • Posted

      HI Nettie didn’t get your text

      Warm wishes. Sarah 

      Moderator comment: I have removed the email address and phone numbers as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

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    • Posted

      If you haven't used the Private Message service, here's how it works.

      1.  You have to be logged in.

      2.   Next to the name of a poster (member) that you want to PM, you will see an envelope icon.  Click on that icon, and a PM window will open for sending a message to that member (and to only that member),  You can exchange information such as links to websites, email addresses or phone numbers without them being blocked by the moderator.

      Glenn

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