I am currently on day 22 of a fentalyl detox ... after the forst 3 days of punching my self in the face and wanting to end life a drup called lofexidine took away a percentage of the pain. It takes 16 weeks to get righ again if your renal system has not been damaged by the dependence. I had a year of chemo, radio and surgery in 2011 causing this to be prescribed and this withdrawal experience has bee worse than that entire year. Fentanyl should only be used in palative care or to end of life use, If you can stand the paranoia , innumeracy, and alarming spending habits it creates. Actually I never found it to be a great painkiller but its hard to admit during the intial euphoria it creates. which you quickly get used to. DONT TAKE FENTANYL it is so pure and strong it will destroy your natural happy systems forever. The NHS knoe how to prescribe it but no idea how to get you off it, Forget the fliue like withdrawal systems its brutal and dangerous and flue very pleasant by comparison. I hope taking the time to do this stops just one person taking.
I agree with you. They just say cut it down by xx microgram per month, but offer no support or advice. I statred to cut down and went into a complete slump and was taking other analgesics, co-codamol and fentanyl like smarties. After a while I just stopped it and stayed where I was (75 microg patch.) I am looking at Cannaniboids. (CBD) It is available but expensive unfortunately. NHS does have Sativex a 50:50 mixture of CBD and THC, but will not prescribe it. They only will for MS patients. It is cruel as the judge said. See this story: http://www.mirror.co.uk/news/uk-news/judge-refuses-jail-cancer-victim-4125347
I must say when I first started using fentanyl I was very happy with it and it changed my life, but now some years down the line I am in trouble as I must have analgesics for an autoimmune sensory neuropathy. If I cut down I get withdrawal symptoms!!!
It is strange that they will not even do a trial. The company that makes Sativex, that it grows the hemp in this country and then exports its products, both THC and CBD to other countries if you do the research. CBD is harmless and in a number of patients it will help for pain. I am just not prepared to buy weed of unknown quality illegally. There is a form now that contains almost 0% THC, the psychoactive part you do not want. The authorities know this but it suits them to make it into some awful, horrific drug. They did the same in the USA first with alcohol with the prohibition and more recently with cannabis. 22 States in the USA now have Medical Cannabis programmes.
Yep I'm not happy with Fentanyl either, although I was only on it for about 6 months (75mcg patches.) and decided to give them up. I'd had enough of the daily sweating and fact that they never really did anything at all for my pain. I have degenerative disc disease and a herniated disc, along with a bone tumour in my pelvis for which I've had major surgery but It can't be fully removed.
Anyhow I count myself lucky with regards to the Fentanyl withdrawls as I didn't get any at all. Mainly as I went stright back over to my max dose dihydracodine which stopped any withdrawls from the Fentanyl. HOWEVER I know for a fact that if I try to stop the dihydracodine I'm in for a rough ride, because when I stopped that initially to go over to Fentanyl, the 3 days of withdrawls were absolutely terrible.
I wish I'd read more on fentanyl before I started using it. My GP said nothing about problems with side effects and the potential of horrendous side effects. I'd only been on 25mcg a week when I startd with violent muscle spasms and couldn't control my arms and legs. I stopped using the patch, thinking since I'd only been on it a week it would be easy. I went through 24hrs of writhing, sweating, crawling skin sensations, flu like symptoms and crying and feeling suicidal before I called the GP, who adviced I go back to 12mcg. My symptoms improved but I still have less violent muscle spasms despite having increased my dose of oxcarbazepine to it's maximum and feel so depressed and cry at the slightest thing. And of course my pain is back.
I so wish I had never started on the fentanyl.
I plan to give myself 3 clear days when I don't have any responsibilities to try coming off it again and I just hope and pray I've got the strength to do it this time.
Wish me luck
Harvey, you are correct! Fentanyl did seem to help my pain in the very beginning but perhaps my mind was fooling me and it was just the feeling of you for phoria distracting me from my actual pain. Having been on this medication for seven and half years, I agree it is not something that should be prescribed for pain unless it's for palliative purposes.
and how are you feeling now Harvey? I still find myself wanting to 'punch' a different part of my body just to distract me from the horrific withdrawal symptoms.
you mentioned you were on day 22, what day are you on now? How are you managing now, any better yet?
Good morning Harvey, I was wondering if you suffer(ed) from severe insomnia after stopping fentanyl? I am on day 13 and am sleeping 1 1/2 hrs a night and twice I have slept 3 hrs. I feel I am losing my mind: memory problems, no pain control is very difficult, no bowel movements, extreme loss of appetite, weak and lethargic, laboured breathing, painful severe sneeze attacks...and a plethora of other withdrawal symptoms.
How are you coping? Have (do) you suffer from any similar withdrawal symptoms such as the ones I listed?
Will I ever sleep again? So exhausted; headaches eyes dry, itchy, hurting.
My doctor started me on .1mg clonidine to calm my thrashing legs, body restlessness and anxiety. It has helped significantly with those symptoms but it has caused my BP to drop to 105/67 which may be contributing to why I am weak, dizzy, lethargic and possibly also to my laboured breathing (mind you, I was experiencing all of these symptoms to a lesser degree before I started this medication).
Thanks for your support Harvey!
Janet in Canada
Hi I am on day 3 coming off Fenthyl 100 patch now on 75 I feel so bad flu feeling headache body pain . Is this going to get worse? My doctor gave me 4 75 patches then I will drop to 25 and so on . I went in last week and told them I want off I don't feel like it was taking away my pain . But I still have the Dilaudid.
Hi there. I have beenon Fentany 100 mcg every 48 hrs for almost a year now for extreme nerve pain in my residual limbs following a double below knee amputation. I am detoxing for different reasons. My doctors here in Toronto WON'T perscribe it anymore because they are afraid of what the College of Physcians & Surgeons may think. So they give me this stupid drug and only offer me Suboxone, which I don't even know will work! I am on day 3 of detox and feel like DEATH!! And the worst is coming on day 5 when I have to go COLD TURKEY for 12 hrs in order to start the Suboxone. I don't know if I will make it through, and I think this is the dumbest way to medically detox because I am in so much pain, and the Docs are the ones that started me on this and now after a year with NO improvement in my extreme pain that stops my life and confines me to a wheelchair because I cant wear my prosthetic legs due to the pain! I don't understand why the doctors saved my life from an invasive Strep A bacterial infection, cut my legs off, if I am left to a life like this? Or kill me with this drug and leave me with all this pain? I guess all I can do is try. I'm a 42 yr old law professional, married, mother of 2 young beautiful girls, now a double amputee (who can run on the treadmill, when I'm feeling pretty good, on those prosthetic legs, I'll have you know) now hurting really, really bad...
HELP!! Day 8 of fentanyl 50mcg withdrawal and I'm still climbing the walls!
Was on tramadol (100mg), pregabalin (600mg) and the fentanyl for 5.5 years. Pain doctor decided I was suffering hyperalgesia and so wanted me off all the medication.
In replacement of these she gave me 40mg zormorph morning/night and oramorph for breakthrough pain and withdrawal.
The last couple of days I've had a couple of hours where I've felt 'normal' but my arms and legs are so restless, twitchy and electric shock type pains going on!
Had no oramorph for the last 2 days as I'm frightened of becoming addicted to that too, tonight, I have had a daily allowance within 2 hours because I can't cope!
Do I go back to my consultant or push through this with the hope it'll get easier?!
Any advice highly appreciated,
keep trying to kick it, i was on 2 of the 100 microgram patches and 240 mg of ms contin for 12 years and got off it by getting the dry patches, not the liquid type, and trimming a little off the edge each time till i got off it, i was puking sick 24 calender months diong this but it was worth it and i would not do it again
Hi everyone, hope your all doing ok?
So here's where I'm at...
I am free of fentanyl 😊😊😊 however, I went 9 days without oramorph, I had no nasty leg and arm cramps, the sweats stopped although I was still very fatigued. Suffered dizzy spells everytime I stood up? Not sure what caused that!
So I plodded along, then last night I started with a pounding headache, sweats, shivers, legs and feet with the most unbearable cramps and nerve pain!! I ignored it and had a nap on the sofa, woke up hours later to my partner begging me to have a little oramorph to take away the pain! He said I was fighting, shouting out in my sleep in pain, he said I was squeezing my legs and feet! I honestly felt like I'd gone back to day one! So I had some oramorph and took myself to bed.
I've woken up today feeling fantastic 😊 Then about the same time as last night, the pain has started again?!
Am I still going through withdrawal? I've been and brought some calms and I'm considering taking one in the evening to see if it chills me out a little.
Thank you so much for everyone sharing their journeys, it's nice to know we're not alone! 😊
as you all know I have been coming off the Fent patch from down to 25 . I have been so sick on the 25 so last night I took it off . I am done with it yes I have the fen flu . It's was faster then I really should have done it . Not sleeping sick sick sick . Good new down 10 pounds . I just can't wait to feel better again this drug is the worst .
I was on 75mcg patch for 3 months and I had enough, I told my doctor I wanted off this crap. I bumped down to the 50mcg patch the next day and down to 25mcg 6 days later, I was going to bump down slow because of all the horror stories I read online about the withdrawals but said screw it. Yesterday I cut my 12.5mcg patch in half and I'm putting the other half on tomorrow then I'm done. I've had some withdrawals but nothing drastic enough to make me slow down my pace of getting off. I don't take any other drugs for pain or withdrawals except ibuprofen, I just do other things to occupy my mind and tell myself nothing is stronger than me and I control my life.
Ty Harvey! Youve said EXACTLY what I needed to hear. Im on the fence with my 1st apmt coming up, switching from my GP and Neuro, to a pain mngmt Dr. I wanted to TRY the patch to get the pain relief continuously, just for one month, as Iv not been able to lie in bed and sleep at night. (Neck). So I think youve scared me into not even trying it. I currently take 3 hydro 10's, a day so thats what Id be going up from. Can you tell me if the withdrawals from the patch are bad, even after one month?????
Kim again here. Im new and not sure how to post a question on this thread besides just replying to a comment.
Question.......isnt there other medications for pain, in the form of a patch, that doesnt ruin your life like Fent??? When i broached the subject of a patch to my GP, he said, what do you want, Fentynal? Im thinking, I dont know?
Kim in Arkansas (US)
I'm so glad I found this website. I am a disabled vet and thought getting off 75mcg for a two month duration is hell. I've been off for a month, taking 1/2-1 10-350 norco a day. I feel like the flu. In addition I have ptsd from military and on a gamut of VA brain candy. I've been through worse but this is hell.
It has been about 3wks since my last patch of fentanyl. I started coming down from 100mcg/hr. in May, by 12mcg/hr every 15 days, a slow weaning.
But wow, the withdrawals just keep coming. Headache, blurred vision, cramping stomach, total lack of energy/motivation, feeling too cold or too hot, insomnia, severe depression, fevering, and just feeling rotten 24/7.
I have Benedryl for the allergy symptoms like sneezing, gravol for nausea and help with insomnia, Tylenol for the burning pain that slowly creeped back in my injured neck & headache, ibprophen for aching, and gabapentin, Clonidine, Welbutrin & Celexa which are and were prescribed prior to opiates 8 yrs ago.
I have two questions. 1. Any thoughts on an opioid free prescribed pain reliever that can keep pain at a minimal without popping pills all day? And 2. Is it normal to have umpteen normal bowel movements/day&night after fentanyl? I'm scared to go anywhere. I can't get thru a meal without being interrupted. It's so weird. I must have dropped 5lbs already, and gassy, cramps, really empty hungry feeling all the time. Is this normal!? If so,
When will it END!!!!
Thankyou for your kind and inspiring words. I Quit smoking, barely drink anymore, dumped all friends who drank to oblivion and used cocaine and street drugs to socialize, quit oxy's just before starting fentanyl, and now I've quit that too. Did this alone. My spouse cheated on me in 2006, we split after 10yrs, I continue to raise our son who is a millineum baby. He's 16 now. I am so proud of him. He has witnessed awful painful predicaments, and could have taken essily got into smoking, drinking, meth, pot, cocaine pills too of course. But he didnt do any of those things. He must take after a distant relative,lol. School is not his cup of tea, so we argue in the mornings.Things are slowly becoming so clear - and somedays I feel I am brand new, looking at the big wide world for the first time. I need to learn to take the reins and thrive with life and enjoy it with no paralizing guilt or shame or evil feelings of worthlessness and failure. Taking the reigns is so thrilling it scares me and warns me to stop. My body & brain will inform me when I'm ready to start a new life.... its been 2-3 wks being slowly weaned off the Fentanyl Patch after 4 years of it. Thank you for advice on treating and what to expect during withdrawal, info is so important to me & I don't feel completely alone with this harshness. I hope all is well with you, take care, ttyl.