Fentanyl withdrawal is inhumane
Posted , 53 users are following.
I am currently on day 22 of a fentalyl detox ... after the forst 3 days of punching my self in the face and wanting to end life a drup called lofexidine took away a percentage of the pain. It takes 16 weeks to get righ again if your renal system has not been damaged by the dependence. I had a year of chemo, radio and surgery in 2011 causing this to be prescribed and this withdrawal experience has bee worse than that entire year. Fentanyl should only be used in palative care or to end of life use, If you can stand the paranoia , innumeracy, and alarming spending habits it creates. Actually I never found it to be a great painkiller but its hard to admit during the intial euphoria it creates. which you quickly get used to. DONT TAKE FENTANYL it is so pure and strong it will destroy your natural happy systems forever. The NHS knoe how to prescribe it but no idea how to get you off it, Forget the fliue like withdrawal systems its brutal and dangerous and flue very pleasant by comparison. I hope taking the time to do this stops just one person taking.
7 likes, 253 replies
deb73201 harvey81891
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deb73201 harvey81891
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Thanks for for any advice
orb deb73201
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You'll find that you'll get all sorts of weird aches and pains when coming off somthing you've been on for along time, I wouldn't worry too much at the mo but obvioulsy do get checked out if it carries on. I've had various different pains too that I don't remember having previosly whilst taking various new medications and coming off them.
I was lucky really as I was only on 75mcg's of Fentanyl for a couple of weeks or so, and I opted to come of it as it was doing nothing for me. I can honestly say though that in my case the withdrawl symtoms coming off Dihydrocodeine where worse than coming off the Fentanyl. However now I'm on max dose Tramadol and Morphine amongst other things for pain.. So I'm not worried about the withdrawls as i'll likely be on this sort of thing forever.
I hope the rest of the weaning process gets easier for you deb.
deb73201 orb
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i am off the Fent patch but it was a hell of a ride. I was so ill wanted to just die now I am in more pain but I will deal with it . Now if I could just feel like my old self and get some sleep . I wish anyone hat is coming off the Fent patch to please take it slow I think I went to fast . Good luck to you all I am happy to be off but now I need to find w pain med to help me better .
Thanks to to you all for helping me
patti2576 deb73201
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How fast did you go? I was on 50mcg for years and when I started weaning myself off I extended the time first, then had Dr. drop me down to 25mcg and did same process with that, from there down to 12mcg and today I finally removed that. I am still taking Percocet 3x/day for the severe pain. I did experience flu like symptoms and when I first started I had migraines and diarrhea but now just generalized aches and pains, which I was told to expect. My Dr. will be inserting a spinal cord stimulator to handle the pain.
billytom patti2576
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please let me know if the stimulator works .
god bless
justine21487 harvey81891
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acidjazzok justine21487
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I cant compare with what you have been through, but survived a 12 year run being on 2 of those 100 microgram fentanyl patches and 4 of the 60 mg ms contin morphine tablets all the time. i was so sick I would puke 4 or 5 times every morning and sweat 4 or 5 Tee shirts wringing wet and have to pace the floor a couple hours between being sick and decided finally I had enough and wanted to try to change my life, I got the dry fentanyl patches and began to trim them each time a little more as I went for 2 calendar years and had to literally puke my way through that 2 years and then got off the ms contin, and have never been more glad I did this and would never get back on thtat stuff again, I ended up in the oklahoma heart hospital 3 times during my withdrawal and thought I would die after discovering I have congestive heart failure and atrial fibrillation now.
leigh65923 justine21487
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Leigh
melissa7471 leigh65923
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I forgot to ask you, are you on Requip or anything like that for restless leg/leg cramps? Also I've read on other threads about a med called Clonadine ( aka Catapres). Neither of these meds are opioids or addicting and help with withdrawal. I'm already on Requip because occasionally I get restless leg so I only take it if I need it. BUT - I'm COUNTING on it to help me when I start detoxing in Oct. Catapres is a blood pressure med but people are saying it helps with opioid withdrawal. Just wondering if you've tried either or if you are familiar with them. Thanks!
Melissa
leigh65923 melissa7471
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melissa7471 leigh65923
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Melissa
justine21487 leigh65923
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justine21487
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justine21487
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justine21487
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leigh65923 justine21487
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leigh65923 justine21487
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melissa7471 justine21487
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justine21487 leigh65923
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justine21487 melissa7471
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justine21487 leigh65923
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(here is the conclusion of the VERY LONG post that I wasn’t able to post before. I hope this makes sense…) I told him, under no circumstances would I ever put myself through another detox, or even consider stopping the Fentanyl unless I am put into a medically induced coma in a hospital under the care of doctors that specialize in this kind of thing…and he completely agreed with me. He gave me a prescription for a month’s worth of Fentanyl 100 mcgs, and said he would need to do some consulting with other colleagues of his, being that my case is so very unique and complicated. Also, my doctor suspected that I became so sick so quickly, because of what may have been ”Serotonin Syndrome” (too much serotonin production in the body at one time), combined with a Sickle Cell episode (I have the sickle cell “trait” that had manifested when I was so sick prior to my amputation. I do not have Sickle Cell Anemia). So ultimately, I am back at square one. No real plan. No real solution. Just a lot of brand new battle scars, on top of the ones I already have, and traumatization for me and my husband (can you imagine what it must have been like for him to watch me go through all that and be unable to do anything to help or stop it??!!). So I don’t know what the next steps are, but I can only hope for the best. I will keep you posted if you want. And Leigh, feel free to email me if you want (I know how slow this site is…I typed this all out in MS Word and copied and pasted it here instead!) If you managed to get through all this, thanks for listening…
Justine
Emis Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.
leigh65923 justine21487
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Hey Justine
Now why on earth didn’t I think of copying and pasting from Word? Oh duh, I could get so many swear words back if I had thought of that. But doing it now, silly ol’ me. I can only guess at the trauma you went through, and it certainly would make one a little “gun shy”. I have shared your story with many other folks (just talking to them, no details, I respect everyone's anonymity) Your story is the nightmare I am so very afraid of, being treated like some damn drug seeker/junkie, with no respect and no help whatsoever. I have had some convulsions trying to stop fentanyl, and it scares me to death, I live alone, for one thing. And, to tell you the truth, going in to the hospital and being put into a coma sounds a trifle dangerous to me. The only folks that will do it where I live are drug rehab clinics and I am not going to let those ‘bottom of the food chain as far as medical treatment’ people get ahold of me with a coma in mind. I now have a new referral to a new new pain management clinic, and I am hoping that they will take over for me, and help me step down from the fentanyl. I have been told going down 12.5 mcg every two months is fairly do-able, so I would like to try that. Even that sounds like a big hurdle, but I am determined to somehow get off the fentanyl rollercoaster. Day 1 is great, Day 2 is OK, and Day 3 I am so tired I can hardly keep my eyes open, my nose is running and I am yawning, looking for all the world like a heroin junkie. I don’t even know now if the fentanyl ever really helped with the pain. I don’t put a patch on for pain, I put it on to keep the withdrawals away, and that is one sad situation, but I know most people on this site will agree 100% with that statement. The pain clinic I was going to for 3 years “fired” me as a patient because I had the highest “morphine-equivalent” dose of their patient load because of the patch. I had been so very careful to be so compliant with every little thing with them, because once you get a bad name, you are sunk, and they gave me a bad name to protect their own damn asses. Grrr…
Justine, you keep in touch and let us all know how you are doing. You fought a terrible battle with the monsters of medical care, and I am not surprised you have a little PTSD from your experience. NO ONE should have to go through that because they are taking a drug that has been prescribed to them. It is unspeakable.
melissa7471 leigh65923
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Leigh, I haven't started my withdrawal journey yet, (start in Oct), but I want you to know how much of an encouragement you are to me and I'm sure, many others. I look for your posts every time I log on. I really, really hope to have you in my corner when I start detox. I have a feeling I'm going to need every support system I can find. But I just wanted to thank you for being such a champion of all the folks trying to beat this terrible drug.
Peace,
Melissa
kitlynn83289 acidjazzok
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For what kind of pain you had that your Dr prescribe you 200mcg of Fentanyl & 4 of 60mg ms contin? and now what you use to control the pain? Or how you control the pain?
My boyfriend have 200mcg Fentenyl as you had before for 10 yrs (opiod for 27 yrs) for his spinal cord injure. He want to go to Arizona to detox, I afraid that he may die in an instant since the pain too great will stop his heart!
Kris69 justine21487
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Hello Justine:
Your story touched my heart. I hope this note finds you in a better state than 3 months ago.
Your GP in Toronto, and whoever else who think they're covering their asses at the price of your well being, should be reported to the college of physicians & surgeons. Their ethics are in big question here.
As Canadians we're entitled to living in pain free existence, how dare any doctor put you through this.
amber32533 justine21487
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What you experienced after taking the suboxone is called post acute withdrawal. Ive been there myself amd know you are not exaggerating. This happens when you take suboxone or vivitrol while you still have high levels of opiods in your body. Im shocked that your dr didnt know this would happen! Suboxone and the like essentially rip all opiates from the receptors in your brain and puts itself on the receptors. So the withdrawal you feel is much more extreme than goimg cold turkey and your body gradually lowering its levels of the drug. If you want to use suboxone and not go through PAWS, you have to go cold turkey for at least a couple days and get it out of your system. God help us all. This is a terrible drug.
billytom leigh65923
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i am on for 19 years it has distroyed me i took my self off cold yurkey at first almosy died then i went of 50mg then to non i am now at my end i was put on after i broke my neck and at the same time fighting cancer
i feel worthless good for nothing i am 57 years old and not sure how much longer i can go on all i want is to not wake up i have to clean cook take care of two cats who are sick take care of a sick husband
how can i do all this and feel as sick as i am
please can someone help me ?? my brother started to do the same and hung himeselg last year
i am so sick and sad my right side is pins and neddles i have yet to see anyone have numbness or pins and beddles my lips go numb pins and neddles in my tonge always clod and always in pain
i use to love life all i wanted to so was live now all i want is to die
please can anyone help how do i stope this feeling it is so so bad
i am sorry to all who are going though this may god help us all
i will pray for everyone and if i make it i will fight hard so no one will ever go though this with out help
god bless you all
please forgive my tyoeing i am so out of it
Pointer99 billytom
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Hello billytom,
First of all, I may sound like I'm repeating myself as I say this often in cases like you, but....19 years is a heck of long run of use to come off the patches. Can you give some background?
Why are you coming off? Is it through choice, or are you forced to, or other reason?
What was the time-span involved? I mean, from your usual dosage, you cut down by a half. Then for how many days/weeks did you go, before cutting down again by half, etc?? This is really important, because, (especially without the help of some short-term substitute, like another weaker opiate or a benzo just for a while) that is a very steep reduction. After 19 years, many people cut down at much more gradual pace.
The short answer to your main question is, YES, virtually everyone gets out alive ( there are a few reported cases of tragic deaths, but I don't know the proportion. I'm pretty sure it is very, very low.) I, like many others I'm sure will agree, OFTEN wanted to die while coming off, or even just if I run out, or ran low, for some reason. But it is so important to hang in there and see it through. It DOES get better. If you relent, and put a patch back on, you may have come a long way for nothing! You may even be near the end of the withdrawal, and put yourself back to step one! That's why it's important to know how long you've been doing this.
As a minimum, follow the basics that get repeated over and over here : stay hydrated!! Many people find cola and other fizzy drinks are best as the sugar helps. Try some excercise, no matter how light. Try and distract yourself with funny books, movies etc. And perhaps most important, have someone with you, through this. If not someone physically there, then keep posting these forums. Post updates, questions, anything. Many people here will reply to try and help. And if things are intolerable, or you think you are really, very unwell then always consider the emergency room.
I hope this helps even a little! Please post again, to update, and say how you're doing!