Fentanyl withdrawal is inhumane

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I am currently on day 22 of a fentalyl detox ... after the forst 3 days of punching my self in the face and wanting to end life a drup called lofexidine took away a percentage of the pain. It takes 16 weeks to get righ again if your renal system has not been damaged by the dependence. I had a year of chemo, radio and surgery in 2011 causing this to be prescribed  and this withdrawal experience has bee worse than that entire year. Fentanyl should only be used in palative care or to end of life use, If you can stand the paranoia , innumeracy, and alarming spending habits it creates. Actually I never found it to be a great painkiller but its hard to admit during the intial euphoria it creates. which you quickly get used to. DONT TAKE FENTANYL it is so pure and strong it will destroy your natural happy systems forever. The NHS knoe how to prescribe it but no idea how to get you off it, Forget the fliue like withdrawal systems its brutal and dangerous and flue very pleasant by comparison.  I hope taking the time to do this stops just one person taking.

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  • Posted

    Hi I am on day 3 coming off Fenthyl 100 patch now on 75 I feel so bad flu feeling headache body pain .  Is this going to get worse? My doctor gave me 4 75 patches then I will drop to 25 and so on . I went in last week and told them I want off I don't feel like it was taking away my pain . But I still have the Dilaudid.

     

  • Posted

    I am coming off Fent patch . I am at 75 now 3 more to go then to 50 so on my worrie is now my right back kidney area hurts so bad not sure if that is anything that anyone else has has . Feeling a bit better then day one . 

    Thanks for for any advice 

     

    • Posted

      Sounds like your doing well coming off the Fentanyl, It's a terrible thing to come off especially if you try to do it too quickly. Youre doing it the right way. The flu type symptoms are a normal reaction to coming off such a drug and should be passing off slowly.

      You'll find that you'll get all sorts of weird aches and pains when coming off somthing you've been on for along time, I wouldn't worry too much at the mo but obvioulsy do get checked out if it carries on. I've had various different pains too that I don't remember having previosly whilst taking various new medications and coming off them.

      I was lucky really as I was only on 75mcg's of Fentanyl for a couple of weeks or so, and I opted to come of it as it was doing nothing for me. I can honestly say though that in my case the withdrawl symtoms coming off Dihydrocodeine where worse than coming off the Fentanyl. However now I'm on max dose Tramadol and Morphine amongst other things for pain.. So I'm not worried about the withdrawls as i'll likely be on this sort of thing forever.

      I hope the rest of the weaning process gets easier for you deb.

    • Posted

      Thank you Orb 

      i am off the Fent patch but it was a hell of a ride. I was so ill wanted to just die now I am in more pain but I will deal with it . Now if I could just feel like my old self and get some sleep . I wish anyone hat is coming off the Fent patch to please take it slow I think I went to fast . Good luck to you all I am happy to be off but now I need to find w pain med to help me better . 

      Thanks to to you all for helping me 

    • Posted

      Deb,

      How fast did you go?  I was on 50mcg for years and when I started weaning myself off I extended the time first, then had Dr. drop me down to 25mcg and did same process with that, from there down to 12mcg and today I finally removed that. I am still taking Percocet 3x/day for the severe pain.  I did experience flu like symptoms and when I first started I had migraines and diarrhea but now just generalized aches and pains, which I was told to expect.  My Dr. will be inserting a spinal cord stimulator to handle the pain.

    • Posted

      Hi

      please let me know if the stimulator works .

      god bless 

  • Posted

    Hi there. I have beenon Fentany 100 mcg every 48 hrs for almost a year now for extreme nerve pain in my residual limbs following a double below knee amputation. I am detoxing for different reasons. My doctors here in Toronto WON'T perscribe it anymore because they are afraid of what the College of Physcians & Surgeons may think. So they give me this stupid drug and only offer me Suboxone, which I don't even know will work! I am on day 3 of detox and feel like DEATH!! And the worst is coming on day 5 when I have to go COLD TURKEY for 12 hrs in order to start the Suboxone. I don't know if I will make it through, and I think this is the dumbest way to medically detox because I am in so much pain, and the Docs are the ones that started me on this and now after a year with NO improvement in my extreme pain that stops my life and confines me to a wheelchair because I cant wear my prosthetic legs due to the pain! I don't understand why the doctors saved my life from an invasive Strep A bacterial infection, cut my legs off, if I am left to a life like this? Or kill me with this drug and leave me with all this pain? I guess all I can do is try. I'm a 42 yr old law professional, married, mother of 2 young beautiful girls, now a double amputee (who can run on the treadmill, when I'm feeling pretty good, on those prosthetic legs, I'll have you know) now hurting really, really bad...
    • Posted

      I cant compare with what you have been through, but survived a 12 year run being on 2 of those 100 microgram fentanyl patches and 4 of the 60 mg ms contin morphine tablets all the time. i was so sick I would puke 4 or 5 times every morning and sweat 4 or 5 Tee shirts wringing wet and have to pace the floor a couple hours between being sick and decided finally I had enough and wanted to try to change my life, I got the dry fentanyl patches and began to trim them each time a little more as I went for 2 calendar years and had to literally puke my way through that 2 years and then got off the ms contin, and have never been more glad I did this and would never get back on thtat stuff again, I ended up in the oklahoma heart hospital 3 times during my withdrawal and thought I would die after discovering I have congestive heart failure and atrial fibrillation now.

    • Posted

      Oh Justine, you break my heart. What you are going thru is so unfair and unjust. You did not ask to be put on Fentanyl and they are making you suffer  I am going to ty.to write you a personal message as my browser is having a terrible time with this site and it has taken me 5 minutes to write this little bit.  The doctors are covering their own asses because fentanyl has become demonized, and it is well-known how hard it is to come off of it.  People have died trying.  It sounds as if you have some not-very-empathetic people workng with you, there is no reason you must be in so much pain and agony to come off of a drug they decided to prescribe you, you need to stand up for your rights, we all do. We are not bad people because we were prescribed this drug, and we deserve to be treated kindly and gently when we come off of it, even if it means becoming addicted to something else, because I believe the "something else" has got to be easier to get off than the fentanyl.  I still struggle some days with my 72 hour change patch instead of 48 hour, and I think it has been 6 months.  I just cannot stand the horrible cramps my legs start doing.  Please, please, please stay in touch and let us know how you are doing.  You are in a good place, with caring folks who will support you any way we can.  Guess I am not going to send that personal message because my browser finally let me type more than one letter a minute!  Keep in touch and fight the good fight, we are all hoping the very best for you!

      Leigh

    • Posted

      Leigh,

      I forgot to ask you, are you on Requip or anything like that for restless leg/leg cramps? Also I've read on other threads about a med called Clonadine ( aka Catapres). Neither of these meds are opioids or addicting and help with withdrawal. I'm already on Requip because occasionally I get restless leg so I only take it if I need it. BUT - I'm COUNTING on it to help me when I start detoxing in Oct. Catapres is a blood pressure med but people are saying it helps with opioid withdrawal. Just wondering if you've tried either or if you are familiar with them. Thanks!

      Melissa

    • Posted

      Melissa, Nope, I am not on either, but did see something about Requip and I will ask for it from my new pain management clinic.  Now that I can go to a new one, I am pondering whether I really want off the patch, I am so scared of the withdrawal.  I know I sound like a sissy, but if the docs will work with me I will try.  Just have to make the phone call to get an appointment.  I will probably put that off, I am a procrastinator.  How are you doing these days?  I hope all is well with you.
    • Posted

      I live in Orlando area and Im gay (my wife and I have been together 34 years).  Things have been pretty bad here. We didn't know anyone at the club but I did have dealings with one of the girls and I have loved ones that lost people.  Our church (Joy MCC) has been in the midst of the chaos.  We are only one mile from the scene and we are considered THE gay church of Orlando.  My wife is one of the leaders in the church and has worked tirelessly.  I was there all day Sunday and it took its toll.  I will be going back tomorrow if I physically can.  With Lupus, you never know, but its nothing compared to what others are going through.  Thanks for asking, I didn't mean to carry on.  Today Im hanging by a thread.

      Melissa

    • Posted

      Hi Leigh,Thanks so much for your kind words! You are absolutely right about fighting for our rights, but the doctors are bigger and better than the patients they treat, that is very much apparent! Here is my update: It has taken me awhile to come back here because I have been so traumatized through this thing, that I just couldn’t talk about it. Writing this now is even difficult, because I will have to relive what happened, that was so terribly wrong!! I made it to day 4 of the Fentanyl detox, but I was out of my mind at that point. I had not slept for 3 days straight…I couldn’t close my eyes, even if my life depended on it! It was like they were wired open! I was so exhausted. I had been in bed for 3 ½ days, unable to care for my kids, unable to care for myself! Using the bathroom was almost impossible because it meant I had to get out of bed and into my wheelchair! Even sliding over to my bedside commode hurt like hell! I had soaked my bed with sweat, twice; even the mattress was soaked! And the tremors I was having were getting so severe, I had to hide myself from my kids so that I wouldn’t scare them! My husband was mad at me, because he presumed I was being dramatic or that I had taken something I wasn’t supposed to and he walked out on me! So Friday night (day 3) going into Saturday (day 4 of detox) at 4am, I had decided I just couldn’t cope anymore. Even though I had been contemplating for hours what to do, I ended up putting a patch back on. I was so mad at myself that I just couldn’t fight through the terrible, horrific pain that took my breath away. I had failed at getting through the detox, but I couldn’t imagine what day 5 (Sunday) was going to look like!! I just couldn’t think straight and face going cold turkey for 12 hrs before starting the Suboxone (The stupid drug that has been pushed in my face for months now!!) So I felt immense guilt; I had let my kids down (two girls, age 5 and 12), I had let my husband down and my marriage was already falling apart, I had let myself down! I thought I was stronger than that, but I wasn’t, obviously. I was halfway through the detox, why wasn’t I stronger?! So I emailed my doctor who is more of an Addictions specialist, but did deal with chronic pain patients “sometimes”. That’s the only referral I was able to get, no other doctor wanted to deal with me! Two of the best chronic pain clinics in Toronto (one being the BEST in Canada!) had both turned down my referral, because they did not want to deal with a patient “addicted” to Fentanyl. Thanks a bunch guys! But my doctor, regardless of what his specialty is, is a kind man and seemed to understand me and he listened to me, for a change. He knew right away after to speaking with me and my husband that I have never abused my medication or was ever at risk of that. I have learned to bring my husband along to new doctor appointments, because he offers more legitimacy; like I’m not hiding anything. Its so dumb, yet necessary. So he called me early Saturday morning and had me meet him at his methadone clinic. He saw the condition I was in, and decided to go a different route, which meant that he was going to stop the detox and start the Suboxone with an additional med Naloxone that would deal with the horrendous withdrawal. I was to go back home, take the patch off, wait a couple of hours and then start the Suboxone. I was to take 2 tablets, wait an hour, take another dose, and see how I was feeling, and email /call the doctor and report how I was feeling. He also gave me a chart called a “COWS” (Clinical Opiate Withdrawal Scale) to document how I was feeling so the doctor could gage my level of withdrawal. Then I was to take up to 6 tablets in a 3-hour time period, dissolved under the tongue, but the doc didn’t think I would need the whole box and that I would start to feel better after 2-3 doses. I take off the patch, take the first dose, just as the withdrawal symptoms start again and waited an hour. No improvement. I took the 2nd dose and right away I was all foamy in the mouth. I thought it was just a reaction to the dissolving tablet. About 10 minutes after that, I had the most severe stomach cramping (worse than labour pains!) that I couldn’t get out of bed all the way and made it halfway to the commode before my bowels EXPLODED! No exaggeration here! I was so embarrassed and crying so hard because I didn’t want my husband to know. So I tried to clean myself up (thank goodness I am a small woman of 98 lbs!) and on the
    • Posted

      way to the bathroom in my wheelchair, I start to vomit so violently, I can’t do anything except throw up all over the floor while I holding a bucket filled with my own excrement in my lap, praying my husband doesn’t hear me! Thankfully, my prayers were not answered and my husband hears me and comes running to my side to help me to the toilet. I don’t know where the vomit came from because there was nothing in my stomach, since I hadn’t eaten for 3 days! When I say violent diarrhea and vomiting, it was nothing that I have never experienced in my life!! I wanted to die! I finally get back in bed after I start vomiting blood and there is a good amount of blood in my stool (I may have ripped a hole in my esophagus and damaged my bowels) I start to have tremors again but this time they were way worse! Then I began to have violent convulsions! I began to scream every time it happened about once every 3 minutes. I think I know what it feels like to be electrocuted, but from the inside out). I couldn’t control any part of my body. All I could do was scream. My brain had stopped working. I screamed for my husband to call an ambulance. The EMS came after a time because the dispatch had told them it was a possible drug overdose and/or DT (I came to know this later) so they were in no hurry to arrive. When they did, they acted like it was no big deal and ignored my convulsing and screams because they suspected that I was putting on a show to get drugs from the hospital. They ignored my husband who was trying to explain about the medical detox and show them the paperwork from the doctor and my other meds (Gabbapentin 1800 mgs per day, morphine prescribed during the first leg of the detox from the doc, tizanadine 4 mgs). They gave me a shot of Gravol, which felt like a lightening strike to my arm and caused me to scream even more. Once in the ambulance I am begging them to help, begging them to kill me, begging as to when the Gravol will start working because I had already filled one sick bag in the ambulance. They didn’t care! The EMS guy in the back with me kept asking me to spell Suboxone because he had no idea what it was and wanted to Google it. Omg. We finally get to the hospital and all the EMS guys kept saying is that I was taking Suboxone for Fentanyl addiction…no, no, no, that’s not it at all!! The stupid nurse kept asking “how do you spell it?” as she was typing on the computer, EMS guy kept saying “Sup-Lox-Own” and she was like “I can’t find it here”, indicating that it wasn’t really that urgent or important, since I was just a drug addict anyway, therefore, not deserving of medical attention. I was still on the stretcher, in the hallway of the ER, writhing in pain, drenched in sweat, convulsing, wishing for death, that all I could do that brought only an smidge of relief was to smash my head against the wall! I think I was really trying to knock myself unconscious, because everything I was feeling was the very epitome of any pain, even the horrendous pain that almost gave me a stroke post-op of my amputation. NOBODY in that ER (which was in the SAME hospital that I had my amputation in) gave a flying fig about what was happening to me, because all anyone kept saying was “oh that’s just a substance abuse patient in bay 7” whenever someone else inquired about the woman screaming in the ER. How did I get lumped in with that group??? When did I become a drug addict/substance abuser/ idiot/not worthy of care or treatment??? I didn’t understand what I was hearing. I was still vomiting violently. The only good thing was that the diarrhea had stopped, for some unknown reason. My husband arrives and he begins the pointless task of explaining about my amputations, the reasons for the detox, my struggle with that, the other medications I was on and why; and the ER doc basically holds up his hand to stop my husband from talking and says “there isn’t a lot we can do here…” and walks out! Two nurses show up, and without taking any blood, doing any other standard tests, or even asking me any questions (and maybe this is protocol for a drug detox patient?) give me an IV which felt like a knife slitting open my arm, and I immediately tried to rip it out of my arm. It was only then, when the one nurse, who was only slightly less harsh, stated that the IV was the only way to give me a dose of Valium that should help, did I allow them to reinsert the IV. I had to hold myself so still and my husband also held me down, in order for the IV to go in. The dose goes in and now the two nurses try to administer an
    • Posted

      EEG, but none of the sticky attachments would stick to my sweat slick skin and I am still having convulsions, so they could not get a reading of my blood pressure. They still think I am putting on a great show at this point. Who the hell would be able to keep that up (the convulsions, the vomiting, the screaming, the agony, etc.) for 3 hours straight???!!! When I tell you that in NO WAY am I exaggerating what happened to me. I have absolutely NO REASON to do so. My only motivation to share this publically is so that anyone else who may be going through this horrible experience with this drug, or has gone through a similar experience, can just know that they are not the only one who has gone through something like this. So the Valium does absolutely nothing for me. The ER doc comes back and gets in my face as I am still writhing and twisting all over the bed (and I kept trying to shimmy my body to the end of the bed…remember I am legless, so that I could perhaps fling myself to the floor, because I figured hitting the floor would feel so much better and that the floor would be cold, which would also feel so much better. But they kept stopping me from flying off the bed, likely because me falling out of bed would make them liable for any injury I might have sustained), so the doc says to me “What do you want to do? I can give you something to help like Morphine, but then you will be back at step one of this thing. Or you can just wait this out and finish detoxing…” I beg him, through clenched teeth, to please make this STOP! He’s like “ok, fine, whatever you want.” And leaves! A nurse comes by an hour or so later and hands me a morphine tablet to swallow (I guess they forgot about all the vomiting!) I tried to take it and finally was able to force it down, only to then learn (after another half hour passes and I question why nothing was helping) that the morphine tab was 5 mgs! For pete’s sake, I had 50 mgs of morphine at home! What the hell was 5 mgs going to do?? My body was so sore and so much pain had torn through me that I thought I might just pass out from sheer exhaustion. No such luck. I am still screaming and I have just about lost my voice by now, when the nurse that was p*ssed with me because she couldn’t get my BP or the EEG she so desperately needed to take, just so that too, could to be ignored, approached my husband and said “oh my, I just looked up your wife’s file on the system, and I can’t believe how much she has gone through!” Then she asks if I have any Fentanyl patches at home and I tell her yes, I have 15 patches. She tells my husband to go home and get one, bring it back and apply it. This is the only thing that will really help with the withdrawal (I can’t believe that what I went through is classified as “withdrawal” …it just sounds too benign of a description!). So My husband does just that. Once the patch is back on and about an hour has passed, the convulsions stop and are now just tremors again. I am no longer screaming, but the pain is there, but just not anywhere near what it was before. Can you be thankful for pain that would just blow your mind over pain that feels like you’ll die any second? Well I was thankful. I was thankful for anything that was an ounce less than the agony I was experiencing before. So the ER doc comes back and in a snotty, little tone, that clearly conveyed what a waste of time I was, asks “So what do you want to do? There isn’t anything else we can do for you, so you might as well go home.” I didn’t look at him. I said nothing to him. I turn to my husband and whisper “please take me home. They want the ER bed. I will be fine.” So that’s what we did. I went home. I was by then so cold, my skin was like ice and my stumps just ached from being cold, and that pain compounded the regular pain I already experience. But whatever. I crawled into my bed, wrapped myself in the duvet and fell asleep…finally! I slept about two hours until my 5-year-old crawled in bed with me to watch cartoons and cuddle. By then I was feeling slightly better and didn’t care about sleep…just having that warm, sweet smelling little girl curled up on my lap was the best thing ever at that moment. So to wrap up this very LONG story, my doctor had been emailing me all the previous day and up to 2am that night, trying to find out what had happened to me. When I spoke to him early on Sunday morning, he was appalled and also not surprised that I was treated like a “drug addict” and he was afraid of that. He said that Suboxone clearly was not the drug for me and that plan was out the window. I told him,
    • Posted

      Sorry Guys…the site won’t let me post my VERY long story. I have been trying to post all day, without any success. I am tired now, and even though I was trying to post in 3 reply blocks, twice it has been blocked for moderation. Perhaps I should start a new thread? Any thoughts? I would really like to just post the story in one post, so it makes sense and is not fragmented.
    • Posted

      Hi Justine, I have the same problems with the site.  About half of the replies I try to post actually get posted, it is a very frustrating site.  Not sure if it because it is from the UK or not.  Hey, you might try posting in small segments, we will understand you cool  (I think anyway)  Better to post than to be frustrated!  You might be trying to say something that someone really, really needs to hear.  I say go for it, although I can relate, for sure, sometimes I have to wait more than 60 seconds to see I mispelled a word,  and  the site jumps all around, changing from big font to tiny and back again.  Drives me batty!!!  Leigh
    • Posted

      Oh Justine, so sorry sorry ssssversssssorryee (there that is what this site does, lol) So sorry for my stoooopid earlier reply in the face of what I just read from you.  I really should read repliesER  from the top and not scan from the bottom, duh.  What an incredible nightmare you have had, that is unspeakable and exactly what I am afraid will happen to me.  You poor thing, the injustice makes my teeth curl.  Yep,  when you really need help, that is when the ER will let you down.  I am gonna try to send you a private message so that we can email, if you would like cuz this site is making me nuttty.  I hhope your experience can somehow help others.  Leigh
    • Posted

      Hi Leigh! Please do rivate message me! I tried to post my email address a the site blocked it (??) and I will try to post the end of the story...
    • Posted

      Hi Melissa! No I am not in the UK. I am in Canada...and I for sure will tag you!
    • Posted

      (here is the conclusion of the VERY LONG post that I wasn’t able to post before. I hope this makes sense…) I told him, under no circumstances would I ever put myself through another detox, or even consider stopping the Fentanyl unless I am put into a medically induced coma in a hospital under the care of doctors that specialize in this kind of thing…and he completely agreed with me. He gave me a prescription for a month’s worth of Fentanyl 100 mcgs, and said he would need to do some consulting with other colleagues of his, being that my case is so very unique and complicated. Also, my doctor suspected that I became so sick so quickly, because of what may have been ”Serotonin Syndrome” (too much serotonin production in the body at one time), combined with a Sickle Cell episode (I have the sickle cell “trait” that had manifested when I was so sick prior to my amputation. I do not have Sickle Cell Anemia). So ultimately, I am back at square one. No real plan. No real solution. Just a lot of brand new battle scars, on top of the ones I already have, and traumatization for me and my husband (can you imagine what it must have been like for him to watch me go through all that and be unable to do anything to help or stop it??!!). So I don’t know what the next steps are, but I can only hope for the best. I will keep you posted if you want. And Leigh, feel free to email me if you want (I know how slow this site is…I typed this all out in MS Word and copied and pasted it here instead!) If you managed to get through all this, thanks for listening…

      Justine

       

      Emis Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

    • Posted

      Hey Justine

      Now why on earth didn’t I think of copying and pasting from Word?  Oh duh, I could get so many swear words back if I had thought of that.  But doing it now, silly ol’ me.  I can only guess at the trauma you went through, and it certainly would make one a little “gun shy”.  I have shared your story with many other folks (just talking to them, no details, I respect everyone's anonymity)  Your story is the nightmare I am so very afraid of, being treated like some damn drug seeker/junkie, with no respect and no help whatsoever.  I have had some convulsions trying to stop fentanyl, and it scares me to death, I live alone, for one thing.  And, to tell you the truth, going in to the hospital and being put into a coma sounds a trifle dangerous to me.  The only folks that will do it where I live are drug rehab clinics and I am not going to let those ‘bottom of the food chain as far as medical treatment’ people get ahold of me with a coma in mind. I now have a new referral to a new new pain management clinic, and I am hoping that they will take over for me, and help me step down from the fentanyl.  I have been told going down 12.5 mcg every two months is fairly do-able, so I would like to try that.  Even that sounds like a big hurdle, but I am determined to somehow get off the fentanyl rollercoaster.  Day 1 is great, Day 2 is OK, and Day 3 I am so tired I can hardly keep my eyes open, my nose is running and I am yawning, looking for all the world like a heroin junkie.  I don’t even know now if the fentanyl ever really helped with the pain.  I don’t put a patch on for pain, I put it on to keep the withdrawals away, and that is one sad situation, but I know most people on this site will agree 100% with that statement.  The pain clinic I was going to for 3 years “fired” me as a patient because I had the highest “morphine-equivalent” dose of their patient load because of the patch.  I had been so very careful to be so compliant with every little thing with them, because once you get a bad name, you are sunk, and they gave me a bad name to protect their own damn asses.  Grrr…

      Justine, you keep in touch and let us all know how you are doing.  You fought a terrible battle with the monsters of medical care, and I am not surprised you have a little PTSD from your experience.  NO ONE should have to go through that because they are taking a drug that has been prescribed to them.  It is unspeakable.

    • Posted

      Leigh, I haven't started my withdrawal journey yet, (start in Oct), but I want you to know how much of an encouragement you are to me and I'm sure, many others. I look for your posts every time I log on. I really, really hope to have you in my corner when I start detox. I have a feeling I'm going to need every support system I can find. But I just wanted to thank you for being such a champion of all the folks trying to beat this terrible drug.

      Peace,

      Melissa

    • Posted

      For what kind of pain you had that your Dr prescribe you 200mcg of Fentanyl & 4 of 60mg ms contin? and now what you use to control the pain? Or how you control the pain?

      My boyfriend have 200mcg Fentenyl as you had before for 10 yrs (opiod for 27 yrs) for his spinal cord injure.  He want to go to Arizona to detox, I afraid that he may die in an instant since the pain too great will stop his heart!

    • Posted

      Hello Justine:

      Your story touched my heart. I hope this note finds you in a better state than 3 months ago.

      Your GP in Toronto, and whoever else who think they're covering their asses at the price of your well being, should be reported to the college of physicians & surgeons. Their ethics are in big question here.

      As Canadians we're entitled to living in pain free existence, how dare any doctor put you through this.

    • Posted

      Justine,

      What you experienced after taking the suboxone is called post acute withdrawal. Ive been there myself amd know you are not exaggerating. This happens when you take suboxone or vivitrol while you still have high levels of opiods in your body. Im shocked that your dr didnt know this would happen! Suboxone and the like essentially rip all opiates from the receptors in your brain and puts itself on the receptors. So the withdrawal you feel is much more extreme than goimg cold turkey and your body gradually lowering its levels of the drug. If you want to use suboxone and not go through PAWS, you have to go cold turkey for at least a couple days and get it out of your system. God help us all. This is a terrible drug.

    • Posted

      Hi

      i am on for 19 years  it has distroyed me i took my self off cold yurkey at first almosy died then i went of 50mg then to non i am now at my end i was put on after i broke my neck and at the same time fighting cancer 

      i feel worthless good for nothing i am 57 years old and not sure how much longer i can go on all i want is to not wake up i have to clean cook take care of two cats who are sick take care of a sick husband 

      how can i do all this and feel as sick as i am 

      please can someone help me ?? my brother started to do the same and hung himeselg last year 

      i am so sick and sad my right side is pins and neddles i have yet to see anyone have numbness or pins and beddles my lips go numb pins and neddles in my tonge always clod and always in pain 

      i use to love life all i wanted to so was live now all i want is to die 

      please can anyone help how do i stope this feeling it is so so bad 

      i am sorry to all who are going though this may god help us all 

      i will pray for everyone and if i make it i will fight hard so no one will ever go though this with out help 

      god bless you all 

      please forgive my tyoeing i am so out of it 

    • Posted

      Hello billytom,

      First of all, I may sound like I'm repeating myself as I say this often in cases like you, but....19 years is a heck of long run of use to come off the patches. Can you give some background?

      Why are you coming off? Is it through choice, or are you forced to, or other reason?

      What was the time-span involved? I mean, from your usual dosage, you cut down by a half. Then for how many days/weeks did you go, before cutting down again by half, etc?? This is really important, because, (especially without the help of some short-term substitute, like another weaker opiate or a benzo just for a while) that is a very steep reduction. After 19 years, many people cut down at much more gradual pace.

      The short answer to your main question is, YES, virtually everyone gets out alive ( there are a few reported cases of tragic deaths, but I don't know the proportion. I'm pretty sure it is very, very low.) I, like many others I'm sure will agree, OFTEN wanted to die while coming off, or even just if I run out, or ran low, for some reason. But it is so important to hang in there and see it through. It DOES get better. If you relent, and put a patch back on, you may have come a long way for nothing! You may even be near the end of the withdrawal, and put yourself back to step one! That's  why it's important to know how long you've been doing this.

      As a minimum, follow the basics that get repeated over and over here : stay hydrated!! Many people find cola and other fizzy drinks are best as the sugar helps. Try some excercise, no matter how light. Try and distract yourself with funny books, movies etc. And perhaps most important, have someone with you, through this. If not someone physically there, then keep posting these forums. Post updates, questions, anything. Many people here will reply to try and help. And if things are intolerable, or you think you are really, very unwell then always consider the emergency room.

      I hope this helps even a little! Please post again, to update, and say how you're doing!

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