Ferritin and Trans saturation levels
Posted , 4 users are following.
What levels would be considered indicative of haemochromatosis for a 40 year old female?
1 like, 6 replies
Posted , 4 users are following.
What levels would be considered indicative of haemochromatosis for a 40 year old female?
1 like, 6 replies
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jmcg2014 l76057
Posted
l76057 jmcg2014
Posted
jmcg2014 l76057
Posted
sheryl37154 l76057
Posted
Otherwise high ferritin can be caused by inflammation, infection, fatty liver, alcohol but the TS% is generally in the normal range.
There have been women in their early 20's on this forum reporting positive to haemochromatosis (genetically as well as high ferritin), so there are no rules.
Post menopause, or during, when menstruation is not happening much, the indicative level is >200, and your ferritin level can sky rocket.
It is important to have your dr monitor your levels regularly (6-12 monthly), and if the dr refuses to order treatment, go donate to the Blood Banks and do it at least every 3 months if your levels are still close to normal range. Don't wait for it to increase to prove to your dr. If you have haemochromatosis, your high TS% is proof enough, as long as you tell your dr you are donating blood to keep your ferritin down. It could eventually get to the stage that donating every 3 months is not enough.
If your levels are > than the ranges indicated above, you are entitled to a genetic test, so keep badgering for one.
So you need to fully educate yourself on this disorder, contact and get info from your country's haemochromatosis assoc, take it to dr and be assertive. Drs are often ignorant, or in denial, of this disorder - so you have to look after yourself.
Let us know how you go.
l76057 sheryl37154
Posted
sheryl37154 l76057
Posted
I have also seen HH used for another totally different issue, but cannot remember off the top of my head.
A lot of drs call high ferritin haemochromatosis, although there is no genetic proof. It is just high ferritin (hyperferritinaemia) from other causes.