ferritin level too high
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diagnosed with haemochromatosis in april 2015 and diabetes mellitus and following further tests I had a 1.8cm tumour on my liver, caused by the haemo. I had a liver ablation operation to destroy the tumour. My worry is that the ferritin level started at 5265 (the doctor nearly fell off his chair) and started blood donation immediately and it seemed to be reducing, it reached 4500 and suddenly went up to 7001 but in the last month it has reduced again to 4265 and last week went up again to almost 4600. No one seems to understand why this is. Does anyone have any idea why the ferritin level should fluctuate so much?
1 like, 10 replies
linda14338 chorleyboy
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chorleyboy linda14338
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chorleyboy linda14338
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patrick00275 chorleyboy
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chorleyboy patrick00275
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patrick00275 chorleyboy
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Mrs._Z chorleyboy
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My Doc says diet is key but can't say that I can agree. I have mainly cut out red meat cereals and other high iron items but still have seen fluctuAtions in my iron levels. I'm still new at this so I may not be the best to advise. I'm trying to determine if skipping a week might help. How often do you have venesections?
chorleyboy Mrs._Z
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patrick00275 Mrs._Z
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chorleyboy patrick00275
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It would appear to be a silent disease but if caught early enough, then this would prevent other ailments such as diabetes mellitus, and of course tumours. I thought 7001 was high but 23000, well that is quite something and I only hope and pray that this iron overload reduces to an acceptable level but wonder, being as it is an hereditary disease, and the fact that I have been told there is no cure, I will just have to live with it.