ferritin level too high

Hi, the medication I am on is metformin for diabetes, four a day, but this doesn't seem to be reducing my blood sugar level, as it is currently 14.5 and of ideal would be between 4 - 7    Blood donations fortnightly and I thought that having started them the ferritin level would slowly, but gradually, come down but it has been a case of up and down, as high as 7001 and currently 4600      Any advice on haemochromatosis would be most welcome

Only metformin for diabetes, four a day.     I watch my diet but still the ferritin level fluctuates.   I attended a meeting of the Haemochromatosis socieity a few weeks ago and had the opportunity to ask a question to a Consultant Doctor at the meeting about why the ferritin levels go up and down albeit I am careful what I eat, and he simply didn't know why.    Haemochromatosis is a disease that little seems to be known about it, other an the iron in your body is too high and the only treatment is blood donation.   I was shocked to speak to some sufferers who, after years of blood donations, are still having to give blood.    The Consultant Doctor said, there is no cure and it is more common that people think.     The other side affects are growing too, severe arthritis, memory loss, and so on.    My wife whilst not a sufferer herself, is suffering on the sidelines and this I found at the meeting to be the case in many patients.

never been a smoker but as a tradesmen I liked a few pints after work but retired 7 years ago and still enjoyed a pint or two.  But since diagnosis, I don't drink but do understand that probably some of the damage has been done prior to diagnosis.     My doctor asked me if I was a drinker.   Yes, but not a heavy drinker.    I have cut out red meat, shellfish, etc. but I am still having fluctuating levels of ferritin and my blood sugar level is too high.   Diabetes diagnosed april 2015 as a result of haemochromatosis.      What exactly are sats?     

Saturation test will tell you how much of your iron intake will be absorb by ur body.Some people are heavy loaders so load less.Im a heavy loader at 99% sats which give me a iron level of 23000, 

Hi  I moved house and registered with a new doctor here in Blackpool and he is thorough to say the least .    Countless blood tests and when the results came back he sent me for a liver biopsy and also told me I was diabetic and started me on metformin straight away.   He referred me to a consultant at Blackpool Victoria who was amazing, wasted no time in organising further tests and procedures to determine the root cause of my ailments and it was discovered that I have haemochromatosis and again started blood donations straight away.  Blood donation every fortnight.   He wanted me to have one the day of the appointment.   Results from more tests showed I had a 1.8cm tumour on the liver and he immediately referred me to Leeds University Hospital, where I have to say I had the best treatment ever. A liver ablation was carried out to destroy the tumour and now I am working on reducing the ferritin levels but this is going up and down all the time.   Blood sugar levels also too high.    I watch my diet and avoid iron, sugar, red meats, shellfish, you name it.    But, still can't bring the levels down.

Every week for last 3yrs

 

Hi, I will ask about sats test because it would be helpful to know how much intake of iron I have.     The Consultant did say that the haemocrhomatosis caused the tumour in my liver as the overload of iron in the body tends to find an organ to store itself and in my case it chose the liver but, having said that, it may well store itself in other organs too.

It would appear to be a silent disease but if caught early enough, then this would prevent other ailments such as diabetes mellitus, and of course tumours.    I thought 7001 was high but 23000, well that is quite something and I only hope and pray that this iron overload reduces to an acceptable level but wonder, being as it is an hereditary disease, and the fact that I have been told there is no cure, I will just have to live with it.