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Ferritin numbers down, up, down.

Posted , 4 users are following.

Chris8968
Chris8968

When I was originally diagnosed my ferritin level was 1887. After weekly phlebotomies for 8 weeks they tested and it had gone down to 778. They decided to test weekly after that, the next test a week later had me at 1032. A week later, yesterday, I was down to 452.

They told me that the increase was normal but were a bit confused about my numbers dropping from 1032 to 452 in a week. They are going to research it and get back to me next week.

Has anyone else experienced ferritin level fluctuations this extreme?

1 like, 2 replies

2 Replies

  • bruce97898
    bruce97898 Chris8968

    Posted

    I had a drop of 800 points once, and my biggest drops seemed to follow a rise.  Another drop was 500 points. It was also within the first couple of months, and I chalked it up to my body being a little unsure what to do with the sudden reduction in iron.
  • peggy96967
    peggy96967 Chris8968

    Posted

    After my 1st 12 phlebotomies, my ferritin went from 1,000 to about 1300. with the saturation going from around 70 to close to 90.  After 2 more years of bi-monthly and then monthly phlebotomies, the ferritin is now down to 30 with the saturation % being 12.  There were lots of ups and downs, but not drastic except for the 1st 12 phlebotomies

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