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Fever like symptoms?

Posted , 8 users are following.

UKMattG
UKMattG

Hi, I'm after others experience of fever like symptoms that I understand can come with Crohns. I've been diagnosed with mild Crohns just recently following 5 years of symptoms and the usual IBS diagnosis.

Recently I've been on Budisonide which changed my life! In my doctors bid to avoid staying on steroids long term I've been off them for around 6 weeks and on pentasa for around 2 weeks. I've heard these can take up to 6 weeks to do their thing.

As I've declined since coming off steroids I've had the usual fatigue, pain and nausea but also the feeling of general illness like a fever but not a fever.

It's hard to describe as its like nothing else...I have no temperature but my skin crawls feeling similar to a temperature, I feel light and sketchy headed and I feel cold. I spend most of my day dreaming about going home to bed following a hot shower! I also have a headache that ripples in the from of my head and has been with me constantly for around 3 or 4 weeks, more or less the same as the rest of the new symptoms.

What have others experienced around the so called Crohns fever like symptoms?

Thanks all

Matt

3 likes, 18 replies

18 Replies

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  • kayla1212
    kayla1212 UKMattG

    Posted

    Hi, I'm 19 and I have every symptom as well!! I get really flushed, feeling light headed and dizzy. Headaches daily that won't go away, and the over all crappy feeling. I'm on methotrexate as pentasa and another didn't help me at all. Not sure if it's from my medication or what but these symptoms aren't going away!

    • UKMattG
      UKMattG kayla1212

      Posted

      Hi Kayla, really sorry to hear you're also going through a rough time. It does get confused with side effects versus Crohns symptoms. Hopefully when you get your Crohns under control the rest will drop into place.

      Is your Doctor good and helping you through to the best management option for you?

      Pentasa has helped the worst of my fever like symptoms but my GP said it may have been withdrawal symptoms coming off the steroids (budisonide). If you've been changing your drugs that's also a possibility. When did you swap medication?

      Matt

    • kayla1212
      kayla1212 UKMattG

      Posted

      I changed medications maybe 3 1/2 months ago. Don't know if it's making it better or worse. My doctor is ok with helping me out but I need more answers

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