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I have been diagnosed with cfs/me for 5 months now and started to see an occupational therapist who is advising me on how to deal with it. I realise now that I can't just push through it and to go easy on myself. A big factor that drives me is guilt at not been able to do the things I'd like to with my family which has driven my depression for months. I am taking 60mg of fluoxetine to help with the obsessive thought pattern I seem to have developed over the last few months. With regards to seeing a light at the end of the tunnel. I am focusing on today which seems to be helping. I have applied for personal independent payment as I realise now I can't work anytime soon. I've had my assessment with atos , should hopefully hear back this week. Has anyone else applied for pip in the U.K.? Was it successful?

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  • Posted

    Hi, to answer your question, yes, I know PIP is paid to people with CFS/me. 

    Whether they assess you as being eligible is, I'm afraid, rather in the hands of the gods.

    If they do not, please take the time and trouble to follow the process, go to appeal. It is stressful to have to document everything that's happening to you and how it affects your daily life but you need to prove everything you say, so get GP, specialists, occupational therapists etc to say how they assess your capabilities. 

    Good luck with your health. I do hope you are one of the lucky ones who manage to get bettter from this illness. 

    Recovery is possible although it can take time. As you say...take one day at a time and that helps. Try not to stress, easier said than done, I know. 

    I have CFS/me, Fibromyalgia and severe sleep apnoea (plus a few more things) for ten years now. It's hard and the condition definitely varies over time, sometimes things seem better but relapses happen when you least expect them. Be kind to yourself and try to put away the guilt. It's not your fault. 

     

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  • Posted

    HI 

    yes my husband has CFS and is in receipt of P.I.P and ESA .. 

    be prepared to have to go through a long process to get it 

    the atos assessment resulted in zero points 

    so we asked for it to be re considered by DWP 

    result zero points 

    then we asked to go to tribunal 

    this is not done by DWP it is a fair tribunal allowing you to explain how your illness affects you in detail..

    then he was awarded P.I.P and a back payment to when u first applied so it's worth going through the process..

    hope this helps 

     

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    • Posted

      The DWP is often a nightmare for CFS. The PACE trial was the first medical trial the DWP ever funded... a CFS trial that is now an international scandal. Great stuff.
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  • Posted

    I went through the guilt phase for many years. I am well again and it's wonderful, but I only started that journey when I learnt to say NO. It's very,very hard, but saying No, pacing my activities I feel normal again.

    best of luck

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