Fibro

Hi Bonnie

Don't be too hard on yourself :cry: It does take time to adjust to being told you have fibro. Don't let the fibro get the better of you! :cry: Fit your life and things you do around it. :lol: Your husband is right you do need to rest. It is difficult to do all of a sudden when you have been use to doing lots and going out.

I was only told I had it in June this year! I think mine has been going on for years though and just have muddled through. Certainly explained how I was feeling and was good to get a name for it at last :lol:

Everyone one finds different ways of dealing with it! I sometimes will overdo it for a few days and then have to pay the price lol :cry: Depends what you want to do! I think the best thing to do is to take one day at a time :lol:

We are all friendly on here and talk to each other. There is Ses who is a moderator for the site and a fellow sufferer as well. Linda, Di & Helen to name a few. I am sure if you have any worries and come on one of us will be on the site at some point. Even if you want a good old rant about fibro or anything else we will listen.

Don't me on your own! I have found this site a very good one for support from other sufferers!

I hope you get your pains sorted out soon! :cry: My legs have been quite bad recently due to change in the weather but luckily I can walk around. Although sometimes i do get stiff when sitting for too long lol!

Well take care

Love Tess x x

Hi Bonnie,

I just had to let you know you are not alone. I have had fibro from childhood and it was only diagnosed last year, can I just say some people are more able to ajust than others. That does not mean that you are not the same as everyone else, just that there are many factors to consider such as our personal experience, how much it impacts on our lives and our personalities.

I thought I would never get used to this or eccept my new life and be able to let go of the old one, the truth is when I stopped worrying about it a little bit things started happening. I am finally seeing there is a role for me in life. I am not being to hard on myself any more and taking everything very slowly and it is working I feel more positive today that say two months ago. I don't have all the answers and I guess I will hit more low points but every time I do I think off my progress and that no matter how small, it can get me through just as much as it can frustrate me. I hope this helps :D .

Hi Lisa & Bonnie

Lisa is right we are all different and we adjust to things in different ways and it does take time! Just hang in there and take one day at a time :lol:

Hope you are doing ok Lisa and in not too much pain.

Take care both!

Tess x x

Hi Tess,

I am doing ok, Can't say I not in to much pain but getting through it better than before, I think.

I hope you are ok, thanks for asking, Lisa xx.

Hi Lisa and Tess

Thank you both very much for your support and i will take on board what you are saying, i think what has made me a little extra bit low was because 2 wks ago i thought i had manage to crack this ability of mine being unable to rest. I dug out a rug making kit that i started years ago, got the foot stool, to put my feet on, and all the other stuff i needed, then i got comfy pulled the canvas of this rug across my legs and proceeded to 'rug make'. i was doing this during the day,and able to cook my partner a meal in the evening. He even commented on how more bubbly i had become. But this week i have been in awful pain with my finger...of all things!!! I had a fall about 2 months ago and hurt my hand...mainly brusied i think, but now i have a swollen finger and cant do my rug making.anymore at the moment. Its just the frustration comming out. :evil:

It would be nice to get to know you all being as i am no longer working.

I have also been looking for a site that helps with claiming benefits? i have just been accepted for incapcity again and i keep being told to apply for DVLA but i know thats a tough one to get, would you have any advice?

take care

Bonnie

Hi Bonnie,

I found the bad thing about DLA is how many times you have to repeat the same answers over and over. It takes time and can be frustrating, I found this time round the best way to deal with it was to take a few pages at a time. There are support groups out there and maybe you would prefer asking them to help you fill in the form. Either way it is worth a try, I hope this helps, Lisa xx

P.S When you answer the questions base it on the worst days.

Hi Lisa

Feeling a tad better today i have just made my other half his favorite Bread and Butter pudding i had lots a bread left over my from a party this wk/end just gone.

The weather is awful here today lots of rain and wind howling down the chimney.

Refering to the benefit forms i think i will make photo copies of any forms i fill in for benefits and keep them safe. :wink: I was told that getting the dla was one that you have to keep applying for and like you say its best to have the same answeres for all the forms that they send. I will be seeing my doctor on Monday i shall ask her view point as to whether i should apply for this and if so, whether she will support my claim. I think she would, but not 100% certain.

Take care

Bonnie

Hi everyone

I have just come back from my hospital appointment. My mri results show that there is nothing wrong with my discs but my surgeon can not give me a reason for all the pain that I am in. My back ispainfull as well as all the pain in my shoulders and knees. My arms feel really crampy and my neck is sore as well. He says that it is mechanical !!! apparently meaning all to do with my muscles etc. He says that I am okay to return to work but I have an appointment with my gp tomorrow to talk to her about it. He does want to refer me to a back specialist though I can not see how this is going to help. I have found it increasing difficult lately to do things like wash my hair and use the hairdryer. I feel like I am back at the beginng again as still no answers.

hopefully my gp can help but not at a loss if she can not help.

Helen A

Hi Girls,

Widget, I got DLA the first time I applied. Their own doctor came out to see me at home. She asked me to show her how I managed to get from the living room to the toilet. I pulled myself off of the chair onto my crutches, by this time my face was bright red with the pain. I dragged myself over to the wall at the door and fell against it. She knew I was so embarrassed and frustrated as well as in chronic pain she said not to continue and sit back down. I told her straight I did not want DLA I wanted my life back I had only applied because everyone else was on my case to.

I got a letter in a few weeks later saying I qualified, now I am glad I have got it because the Lisa who thought she would just push herself back to uni and work and would get back to playing football with my boys never quite came back lol. The point I am trying to make is they do recognise fibro, maybe not all of their doctors but some do I was lucky I suppose but just keep appealing if they do refuse you. You are entitled to it and it is just the governments way of saving money and keeping their figures down they rely on the fact that their is people out there that will only try once.

Keep copies of every thing and be honest when you are filling in the form they say to think of your worse days, the truth is if you are like me the truth is bad enough.

Helen A, Can I just say I have a doctors appointment tomorrow for the exact same pain as you have just described and like you I thought it was my discs. Please don't tell me this is going to be yet an other symptom to add to the never ending list I already have I don't think I can put up with this, I am not sleeping well at the moment and I have notice lack of sleep makes all the difference to my pain as I am sure most of you know from your own experiences. Thanks everyone I feel a great relief just telling it like it is rather than saying to family I am ok when I am clearly not but I don't want to worry them or boar them lol.

Lisa xx

Hello Bonnie & All,

I have just read some comment's....very patchily as I am struggling to concentrate and seems to have gotten worse recent months. I have just this week been diagnosed with Fibromyalgia, previously consultant thought Reactive Arthritis but the Fatigue and pain have persisted. I took very ill January and still struggling to get my head round things - I was hoping once I had been diagnosed I could move on and make changes. I was told previously not to be overdoing things with Tendonitis and now it would appear with this diagnosis I have been doing all the wrong things. This week I attended 1 Pilates class and have been swimming...how do you know if you are overdoing things, especially when you get so tired anyway? How have things progressed for you after a year? Haven't returned back to work yet...it all seems like a bad dream.

Hi Bonnie I hope I'm not to late with my reply. My heart goes out to you hun reading YOUR post was like I had written it myself. I have only last week been diagnosed with fibro as one of the reasons I had been feeling like I do. I also have read many posts on here and feel like they are decribing me. see my main post, ( self diagnoses) Before this people would tell me I had ocd I would be cleaning all day. Even doing the washing late evening.I get up some mornings now and in my mind think I can clean the house from top to bottom, do the washing the ironing cook the dinne just like I did before this all started in reality I have to accept I cant do this anymore I will be lucky to get one room done even this could take me all day to do.. Sometimes like you I have tried to push myself to do more I tuck a hotwater bottle down my top and carry on until I feel so ill in so much pain I have to stop The last time I done this my partner and daughter came home to me lieing on the sofa crying clutching ahotwater bottle. So hot it blistered my skin. My partner felt so hopeless he went and had a few tears himself in private, but what could he do he knows there is no point calling the doctor they just say they have given all the painkillers they can to help at the moment. These dont help at all when I have overdone things like I did then.I was very ill for three daysafter so now I not to make things worse for them and pace myself everyday. Somedays all I am able to do is load the dishwashe but at least its something. Although I was mortified last month when my eldest daughter said she was going to clean my leather sofas as they were filthy. My youngest daughter of 16 has been a diamond she now does the majority of the housework ,who cares if its not perfect she tries. My partner has had to take over the main cooking unless Im having a good day and feel up to it. So we are both lucky to have families that want to help its just hard to accept we need it. The illness changes your whole life I dont ever lie in as I know I will feel a lot worse if I do. Its hard to accept there isn't a cure available so I try not to think too far ahead and just get through each day and night. It does help to talk to people on here that understand what you are going through. Take Care xx