FIBRO
Posted , 3 users are following.
HAD A HORRIBLE DAY YESTERDAY,GOT UP OK FROM BED, ABIT STIFF BUT THATS NORMAL FOR FIBRO SUFFERERS,AFTER ABOUT AN HOUR I COULD FEEL A HEADACHE COMING ON, I HAD A PAIN AND PRESSURE IN MY NECK SO I KNEW I HAD A MIGRAINE COMING ON . I SPENT ALL DAY ON THE SOFA,WITH A HOT W ATER BOTTLE,FEELING ROUGH, I WAS IN AND OUT OF SLEEP ALL DAY, I KNEW I WOULD FEEL A LITTLE BETTER IF I COULD BE SICK, I CANNOT MAKE MYSELF SICK LIKE MY HUSBAND CAN, SO I JUST HAD TO WAIT, IHAD A DRINK OF WATER A BIT LATER IN THE EVENING AND THIS DID THE TRICK AS NOT LONG AFTER I WAS SICK, I DECIDED TO SLEEP DOWNSTAIRS LAST NIGHT (SATURDAY) AS I DIDNT WANT TO DISTURB MY HUSBAND. LIVING WITH FIBRO MYALGIA IS REALLY HARD AS WHEN YOU SEE PEOPLE THEY MUST THINK THAT THERE IS NOTHING WRONG WITH YOU AS ON THE OUTSIDE WERE FINE BUT INSIDE ITS A LIVIVG HELL I CANNOT BELIEVE HOW MUCH MY LIFE HAS CHANGED OVER THIS LAST YEAR AND HOW ILL THIS FIBRO MAKES ME FEEL AS YOU ALL KNOW, IF SOMEBODY GRANTED ME A WISH FOR A WEEK MY WISH WOULD BE TO BE PAIN FREE AND WELL. 
[size=18:8a124cefe9][/size:8a124cefe9] BYE FOR NOW... HELEN
0 likes, 4 replies
paddy
Posted
Sorry you had such a rough day yesterday, Iget migraines too, they always seem to come when the pain and stiffness is particularly bad so don`t know if there`s some connection. I`m always worse too when I`m stressed or have a lot of things or people needing my attention. I`ve been told and so have some of the others on this site that I must learn to pace myself and then the fatigue at least won`t be so bad. I find that very hard to do and whatever I`ve tried must be the wrong way to go about it as it`s not made any difference so far. I`ve also been told that regular exercise is good for the pain and the fatigue, even just gentle exercise so long as its regular, but how I`m supposed to manage that I don`t know! I`ve given up work as it was impossible to run a home and go to work, but that hasn`t helped, I just don`t know how I`m supposed to manage anything else when simple household chores are too much to cope with!
well take care Helen, come on and have a chat when you feel down. Some of the others will be back from holiday soon and you`ll meet them too.
Love Linda
Squires
Posted
I am Tess and was diagnosed with Fibro last June but it had been going on for a lot of years before I got a dr to finally take an interest.
Sorry to hear you are having a rough time of it. Linda was saying about the gentle exercise helping with pain and fatigue. I wouldn't have believed it myself until I started doing some simple excercises from the physio. It does help but I find I need to do them first thing in the morning or I don't feel like doing them later in the day. The best idea is to build them up gradually so your body gets use to them.
I have been away for ten days and haven't done them. My pain and tiredness was so much worse. Now just trying to get back into a rountine with them. Managed them today.
Hope you feel a lot better soon. You are right as people can't see anything like a broken arm, they don't believe that we are in pain.
Linda if you private message me your address will send copies of exercises to you.
If you want to do that as well Helen can let you have a copy.
Love Tess x x
Guest
Posted
I am diane i have been diagnosed since sept last year... i have many days like u discribe.... although the others are aware i had a near death experience about 6 weeks ago when i took a large embolism(blood clot) in the main artery in my lungs, its still there but im on warfrin to thin the blood..this has also flared my fibro up so john my husband called social services and explained how my fibro is affecting him and my family.. so folks up to now i get a carer coming in 11.12 everyday to shower me and do anything i require.. at the moment we will have to pay for that.. and though we struggle at it is.. they are trying to help me get care allowance on dwp.. so fingers crossed.. but what a lovely bunch of helpers they are... so.. what im saying is.... if ur struggling contact ur local social services..and honestly they have been so helpful.. i have got a lot more aids to help me.. example... a chair that goes over the bath to shower.. and imwaiting on a lift chair to help me into a lovely bath.. and u dont pay for any of that......
anyway im 46 and i feel 86 most days.. but coming on here really helps. hope ses, lindy, linda and tess are all well..
luv and gentle hugs.. di xx
paddy
Posted
I echo all you say about social services, Di, we were put in touch with them through the eye clinic when Ray lost his vision in one eye and the things we have been given and yes I mean given, haven`t had to pay for any of it, they have helped us so much
sometimes is just been a very small thing but the difference it`s made to either or both of us is amazing. We are hoping to get our lift and wet room done in about two months, also safety flooring in kitchen and downstairs toilet as we both slip especially in the kitchen. I fell twice on kitchen floor last week. Left me very stiff. None of it is costing us a penny. I don`t know how it works if you own your own home, our`s is council, or if you have much savings, but certainly they have been great to us.
Di, hope you`re feeling better now and not getting too much chest pain. It`s good you can have help to shower etc, even if you have to pay for it at the moment. DLA wise read Steve`s post `Fibromyalgia and DLA` he gives some tips in there on how to succeed.
Tess glad you had a good holiday, and also that Stewarts arm is improving. Will send you my address, just been very busy getting ready for our adaptions and also with Mum, long story :!: Ann has Wi fit and she has set me up to use that, been building up to 10 mins walking a day on there and that seems to have helped.
Hope Lindy and Ses you are ok too. Will get back on when I can but will be at Mum`s a lot this week while they put in a new central heating boiler :!:
Take care all
Love Linda