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FIBRO

Posted , 4 users are following.

kaz_40
kaz_40

FIBROMYALGIA

REAL PAIN

REAL PEOPLE

REAL ILLNESS

WE DESERVE A SOLUTION

Today I signed a petition thats going to downing street and to the prime minister, to get fibro more recognised and for us to be treated more fairly. We deserve a solution to our condition.

5 likes, 11 replies

11 Replies

  • PiliPalaB4ch
    PiliPalaB4ch kaz_40

    Posted

    Hi Kaz

    I would like to sign that petition - where did you find it? Was it on line? 

    Hope you are having a reasonable day, gentle hugs x

  • loxie
    loxie kaz_40

    Posted

    way to go Kaz! Good for you.  People power is the only thing that's going to work.  The solutions for this miserable complaint are not expensive and readily available, IF and its a big IF, doctors would just treat us as intelligent and aware of what our own bodies are telling us and stop fobbing us off with ridiculous unnecessary and costly tests and delays.  I am thinking of starting a local group to get fellow sufferers together to get their stories and put the whole lot in a pack to send to the Minister for Health, copying in any and all interested media.  The squeaky hinge gets oiled.....ie if we shout loudly and make an embarrassing fuss, something just might happen.
    • kaz_40
      kaz_40 loxie

      Posted

      you go for it loxie  weve got to do something weve got make the relevent people listen fibro needs to be out their it should be more recogniseable like MS ME and other conditions. weve got to fight to get our condition recognised better treatment and more research done to get a cure for this condition. If we dont stand up fight ourselves no one else will do it for us xx
    • Bee70
      Bee70 loxie

      Posted

      Totally agree with you Loxie.  We need to be heard from a sufferers point of view and not from the docs. As they don't experience the pains we do. wink x
  • derek1979
    derek1979 kaz_40

    Posted

    im doing the same cause i have had enough of being told its all in my head when its not plus not getting help from my doctor or the rhuematologist there not very supoportive but there duty bound by law to give the best medical help and advice otherwise its malpractice so i will be writting to downing street about them to we all deserve better and should be treated better not cast aside
    • kaz_40
      kaz_40 derek1979

      Posted

      we need more voices more action make ourselves heard weve got to fight to get fibro out their and recognised get us more fairly treated and not accused of it being in our head?health proffessionals need to be better educated in fibro. we need a cure for us and other generations to come.take care
  • PiliPalaB4ch
    PiliPalaB4ch kaz_40

    Posted

    signed! It is important people understand what having Fibro means to people's lives! Gentle hugs everyone x
    • kaz_40
      kaz_40 PiliPalaB4ch

      Posted

      glad you found it ok and signed it hun fibro is affecting our lives and our loved 1s also. they find it hard seeeing us in so much pain. lets hope  this petition will help in getting fibro more out their and abetter understanding of it gentle hugs x
  • Bee70
    Bee70 kaz_40

    Posted

    Well Done Kaz.  We need all the support we can get. How do we go about signing this petition too?

    Gentle Hugs wink x

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