Fibro

Posted , 4 users are following.

I Was diagnosed with Fibromyalgia about a month ago.

Went to a rheumatologist. I had blood work done and all came out negative. Except

Vitamin D. Which is fairly strange because I tend to spend a lot of time outside.

I was put on trepeline and tramado and Vit D . I was told. Y the rheumatologist that some diseases appear as

Fibro but later another disease is found.How can I be certain I have fibro?

Could I be misdiagnosed? I have widespread pain still. Some days in my ankle

Always my knees.my knees make a glass crushing sound when bent.

My fingers cramp at times.I have a particularly stiff neck this morning. I do understand

All my tests came back negative for RA and I have accepted that. I do not have RA.

Could I have something else though?

Do I just accept the terms of Fibromyalgia and carry on as usual?

What is the cause of a vitamin D deficiency if I am fond of the sun?

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  • Posted

    Hello,

    So I'm on my lunch break and saw this so wanted to hopefully shed some light.  Fibro is very different from one person to the next.  My understanding is fibro has been linked to anyone with chronic pain, this could be joints, back, neck shoulder or a whole combination of everything, with differing degrees of pain in each area.  I was diagnosed about 6 mnths ago, and to me it was a diagnosis based on "we don't know what else to do or say.  I have struggled immensly and have been on lots of different meds until I found one that suits my body intake, although this does not give me a lot of relief.  I too have a vit D defficiency and depending on where you are whilst you may spend a lot of time outdoors this does not always mean you will not get it, if bone density not quite right the chances are if you have vit D you also have a calcium defficiency and possibly iron, I am not in the medical profession, but I have these and have found it to being quite common in the UK.  Unfortunately because there is no definitive answer to fibromyalgia I have accepted my condition albeit took me a while.  I have found that when I reduce my stress levels my pains are lower.  I've looked at my diet, getting back to exercise, and just trying to talk about it does help.  I hope this helps a little, I know how frustrated it is, I cry quite a lot as I find it hard to explain it to people, and to be honest it's the frustration that nothing can be done.  I started accupuncture and this has helped a lot, but this is a great site to use as a platform to talk to others, if you don't think it's fibro then challenge your doctors, and if it is chronic pain talk, exercise, look at your diet, try different things that are safe until you find the best coping strategy.  Sending you well wishes. 

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    • Posted

      Wow I had just replied to Karen beneath your post >>>

      Saying I had actually forgotten that I had Posted this ... This mornign I was obviously looking for anwsers again but as I had Told her the time I had actually posted the post I was serverly confused

      I have a more set , range of symptoms now .Which makes life just a tad easier...You have mentioned in your post that fibro may ot be constant and more a generic term for overall chronic pain...

      This is the first time I am able to discuss this with an actual Fibro patient , which is sort of a relief in a sense.

      As I was tell karen below ,,,, My symptoms are quite evidently inflammation . Still this only happens at night and is not picked up in my blood work. Also which seem to be symmetrical. Both feet . both knees . pain in both wrists. Now not so much overall body pain.

      I will ask this to you to just to understand more .

      Do you have evidence of your Fibro? What are the symptoms like for you?

      Do you too have knee crepitus ? Your joints crack?

      I beleive you when you say you cry ... What a horse load of confusion and no clear answers .

      You spoke of excerise ... all I can possibly ask is HOW you do it ....

      this specialist I went to see told me to do low impact excerizes . I got in the pool like 3 times and I couldnt do it anylonger .I swell up in a few joints(knees esp)

      I am 29 and I used to gym all my life ...Im serious when I say I used to look like the female version of the hulk ... ok ok not that big or green

      but what ever this is seems to be disabilitating and I can only look up to you for going out there and excersizing.

      Hope all is well .

      regards from Angela

      Best wishes from South Africa!

       

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  • Posted

    Hello there!

    It's hard to know which symptoms are related to FM and which aren't at times.

    In my case it was rule loads of possibilities out before ruling FM in so to speak!

    Have you got any follow up appointments so you can find out more?

    Hope you get the definitive answers you need.

    Keep on keeping on😊!!

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    • Posted

      Hi Karen wow I had actually forgotten that I had joined this forum!

      I have been back to the same specialist and he finally decided to listen to me when i said i Have also got inflammation which is obviously not associated with Fibro.

      I was very very confused when I posted on this site last .

      I do not actually believe I have Fibro ..Or I'd rather say i think may be some sort of overlap . As I said before I went back to the same specialist did all the same tests again but still negative. BUT still swell up every night . This has now moved to my feet as well.

      Do you have Fibro? I assume that you have no actual symptoms of swelling inflammation and redness??

      I have never actually spoken to anyone with Fibro. But i think my questions have changed since my last post.  I have shared with you a visual of how my knees look ...AT NIGHT ??

      Do you have any visible symptoms with fibro? I have seen many posts saying its an invisible alement ?

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