Fibro

Hello Janice,

I agree with you Magpie2me, as I was recently diagnosed with Fibro about 1 month ago after seeing a Rheumatologist who stated that I have 16 out of the 18 markers so it's safe to say I've got it 😑. The problem is I travel a lot for my job and am in grad school so my schedule is pretty crazy at times. I try to get rest but it's not quality I toss and I turn from pain and eventually fall asleep from exhaustion. I've changed my diet like she said to eliminate inflammatory foods....I do honestly try very hard to abide but I'm only human and I'm not perfect. As for the water not made 90 oz yet smh 😣 what can I say it's a daily challenge. I struggle to find rest and stretch at night and mornings and feel more pain than not. I just want to feel normal again. One thing's for sure I'm glad I'm learning something about my health and can do something about it since knowledge is power... or so they say.

I'm in the process of trying to get the iron I need since my Hematologist discovered that I've got a rare blood condition that makes me anemic and contributes to my auto immune struggles. We're still testing to see if I've got Lupus since my sister was diagnosed recently and I'm showing signs of the trait. Thankfully, my Primary change my meds switching me from Lexapro/Wellbrutin XL to now Cymbalta. I'm on the highest dosage so hopefully I'll start to feel some relief skin.

I guess it's too early to tell after 6 days but I don't feel as much pain during the day right now. Still a lot of burning sensation all over kind of like my skin's on fire. Not much of am appetite but that's a good thing ?.

It's nice to see that you're not the only one going through these things which helps me keep focus.... stay positive bc it could always bed worse. Which is why I try to now live each day like my last 😎 the problem comes when after all the truss, lift and gusto the smoke has cleared and I'm dead to the world from being over tired. Yep over tired.

Any suggestions on learning how to pace yourself with life and fibro when our lives don't just stop 😁 I'm all ears

Edwinia

Well I feel for you girl! Thing is Mzunique, it is a process. Making yourself a priority. Chucking out the less important things and really analysing which are the top priorities. Depending what is going on in your life and what or who are pulling on your emotions and therefore draining you; that too needs to be addressed. Women lose themselves in their friends, their work, their husbands and children and even often in extended family issues. When you have a chronic condition, then others need to see YOU as a priority. You cannot be pulling yourself in every direction and expect to have something left over for you to run on. It's like being on an airplane in any emergency; you must put Your mask on first before you can help anyone else, right? It is the same in life. If we are trying to 'fix' everyone around us, what is left to fix us? Women often run themselves ragged and allow others to exploit their kindness and caring. We really have to start treating ourselves as we would our own best friend. That is also how you gain respect from others. We always think we have to balance all the balls in midair! Life does not work like that. Think of anyone you really respect. Usually they do not allow themselves to be walked on, because they respect themselves. That is a major aspect of the healing process. Unless they are helpless children, allow others to assume their own responsibilities. Perfectionism usually starts people on the road to chronic illness. It is a Disease in itself. Do some homework and research on how exactly to pace yourself and treat yourself with dignity and respect. Somewhere along the line, we seem to have learnt that we don't matter. That is just plain Rubbish! We matter as much as anyone else. And if you need to upgrade your self worth, then that is a very good place to start my dear. Building confidence can really boost our health issues. It may not be a cure, but we won't be allowing all these exterior 'tentacles' out there to sap us of our precious energy. Maggie x

Hi Maggie thank u so much for ur reply I went through the change at 48 I am nOw nearly 62  I am so upset at trying to explain anything anymore Am in just floods of tears and for a long time have felt so drained ed and still try to do things and maybe push my self to much I am hopeing they can try and help me I feel like I have been. Battered from head to foot babe 

Well sweetie, have a read at what I replied to Mzunique. You need to start taking better self care girl. I am 64 so I can relate. I have had Fibro for over 30 years. There are definite ups and downs but the better you take care of yourself, the more manageable this condition is. Don't give up and never despair. I have a strong faith as well and I believe He gives us wisdom when we ask for it. Something is off balance in your life girl. You can find what it is and set it right. We focus too much on those we care about and we forget ourselves in the process. And you don't have to explain anything to anyone Janice. You are the manager of your own life! You just do what you have to, to make yourself a priority and don't apologise for that. I am sure you have spent  a great deal of your life prioritising others. Now it is your turn. I wish that I had learnt these lessons early on. The more you give and forget about your needs; the more others will take advantage. It is sad, but it is true. Just this year, I have learnt so much about myself and what makes me happy and the things that I no longer wish to accept. So Boundaries are very very important for us. Do your research and get some self help books Janice. Time to invest in yourself. Maggie xx

Aw thank u so much I am the type of person that I put everyone before me but am getting now that I just drained of it all the pain the tiredness the anxiety and wish I could just talk to someone with out crying I have had other health problems to have suffered two heart attacks from the age of 39 but this last year my body is just completely drained Nd sore to touch babe I have been awake all nite again and just want it sorted now I don't drink or smoke I love my grand. Hilldren but fell everything is getting to much now all because I feel so drained and body so sore to touch and no sleep p

Thank u I a

 So grate full tgat u replied I am so tired sore I am 62 went through change at 48 had al hot sweats then but since a year ago I have felt drained hurt to touch lots of my. Body no sleep then trying to push myself in the day to keep going  really. bad nite sweats crying when trying to explain anything to anyone it's aufull so then. Because of the crying I just do t say Anything g to anyone 

Thank u sweetheart forvall ur advice really really kind of u and ur rite at everything u have said and I need to start putting my self and my health first and do what will help me try get better I going to try get sleep. 

Now been awake all nite again x x