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FIBRO AND PMR

Posted , 8 users are following.

wannie
wannie

Ihave had these two ball and chains for about 3 years now. I am on and off prednisone. The weakness in my legs seems to be getting worse, geesh I am only 63! Weaning off pred for 3 month for a break--Lyrica helps but when the inflammation gets going its awful.

If anyone has any tips to le3ssen the pain,strengthen the legs it would be helpful. They tried me on methotrexate but it damaged my lung so thats out.

Medical marijuana doesnt work for pain either.

Thank you for any info you can give me.

Cheers

Wanda

0 likes, 20 replies

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  • Michdonn
    Michdonn wannie

    Posted

    Hi wannie, I will not reduce if I have any PMR pain at all. I walk every day probably more than most people would think wise, but stop at any sign of PMR pain. Started at about 10 minute walk, rest till I felt up to the next 10 minute walk, now I just walk. I do think we have to readjust our endurance. Good luck getting over your fatigue. Try and keep a smile on your face. 🙂

    • wannie
      wannie Michdonn

      Posted

      Thank you. I have decided to go back up to 10 mg if that doesnt work

      to 15mg, because the pain is nauseating. I can hardly flippin walk it pains me so.

      I write poetry and prose and I am going to post it here about when a flare comes sneaking up on you..hugs to all 

      I will stay happy and not let fibro and pmr live in my mind rent free! lol

    • Michdonn
      Michdonn wannie

      Posted

      Good for you wannie, I have a love hate with Predinisone, I often think of the poor people who had PMR before Predinisone, then I am happy to suffer the side effects.

      We get through this and come happier and stronger out the other side, with a BIGGER smile on our faces! 🙂🙂

    • Rimmy
      Rimmy wannie

      Posted

      Hi again wannie

      I for one cannot see the point of suffering pains if a temporarily higher dose of pred will alleviate them. The major thing I have learnt from the experience and expertise of many great contributors to this forum - is that we need to listen to our bodies and if we need a higher dose again for a while to reduce inflammation then that's the way the cookie crumbles. Yes side effects can be a problem and for some people more difficult to manage than others - but many aspects of these can be managed to an adequate extent in the longer term. I hope you feel much better soon !! 

  • Diana112
    Diana112 wannie

    Posted

    Hiya, Have just read your poem and picked up on this post.  I cannot see that weaning off pred for 3+ months each year is helping you in the long term.  If you have been on pred for about 3 years (on and off) I would imagine your body is no longer producing its own corticosteroid so stopping pred quite quickly is likely to leave you in more pain than when you started.  As Eileen has said, weaning yourself down to a lower dose must be the better option.  Are you using the Dead Slow approach to reducing pred?
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