Fibro and sensitivities to the senses
Posted , 4 users are following.
Just looking for comments/ suggestions/ advice on some things I find that bother me the most with Fibro
Touch sensitivity
I'm not even going to go here
Sound sensitivity
How do you make friends and build relationships with people when you don't always have an answer to "what kind of music do you like?!" In my opinion, sometimes quiet is just the best. Certain sounds or types of music, certain notes actually HURT to hear. A lot of the time, they bring on a migraine for me. I don't like loud, crowded places where you have to scream to hear each other talk. I get very distracted when I'm trying to work and two people on either side of me try to have a completely unrelated discussion around me... How do I make people understand without coming out and telling everyone my medical history 😦
Temperature sensitivity
I live in Phoenix, AZ... It's gross! The heat and sun really take a lot out of me. I love the cooler weather and used to love going to the snow, etc. but I've started to realize that I cannot tolerate extreme temps as much as I used to be able to as a teen. Is this something you've noticed has increased for you? I love the rain (if i'm prepared for it) and honestly think I'd love living somewhere like Oregon someday. Hoping that could make me less of a homebody.
Light Sensitivity
The sun, once again, will be the death of me. Also, i've noticed that people's headlights while driving at night really, really get to me. Half the time, I swear they have their brights on and they're blinding. I do work a lot on the computer and at an eye checkup, the doc arranged for me to get computer glasses to help protect my eyes from the harmful lights the computers put off. She says that this could be the reason that I have photophobia. I haven't noticed much of a difference from wearing them yet...
Smell Sensitivity
Honestly, sometimes I seriously think there's something else wrong with me because I'll get a whiff of certain smells and people around me are like "huh?"... Nope- not pregnant.
0 likes, 3 replies
nancy27623 melissa58311
Posted
I TRY TO. REMEMBER FMS does not kill or cripple but inability to manage all the pain and intolerances certainly cripple and can take away ones motivation to participate in life. The sensitivities you mention are all part of living with FMS and its unexplained pain. In my case and the case of many many FMS patients, I have real diagnosed diseases but its difficult explaining how FMS causes the pain to be much worse than others or when for example you have a sinus infection which is miserable on its own but with FMS sensitivities such as noise and smell or temperature cause us FMS patients to suffer in ways others with sinus issues cant understand. BUT remember if someone cares enough to want you in their life they will learn about FMS through forums like this or searching the internet. If they dont care at least that much then (in my humble opinion) you're better off without them. Hang in there and always carry a wrap, small soft ear plugs or any other device that might lessen the effects of these sensitivities on your comfort. Oh do I feel you!
melanie82395 melissa58311
Posted
I had a bath last night and when I got out all my legs felt weak and tingly I couldn't even walk hate days like that when I'm super sensitive
Rainlover melissa58311
Posted
Sometimes I read peoples posts and I simply wonder how are you able to work.
I am so limited that I often have to phone a friend to pick up some milk for me. Either that or go without.
Every day I take "Endone " an opioid. Most days I take three but some days I take as many as 5 or 6. Then at night I take "OxyContin". Both of these are "Oxycodone hydrochloride " it is the speed or delivery that makes the difference. If you take this drug be aware that it is highly adictive.