Fibro diagnoise advice needed!!

I cannot find an official site which says swelling is part of fibro. My most recent consultant well professor has said its my ligaments which are causing it but reading up on that ligament swelling is only due to injury. It has been in the past hot and red but not all the time but the swelling has been present since it came and never vanished. 

I just don't understand how a rheumatologist can get such a diagnoise wrong going from arthritis to now Fibromyalgia. I have also been told that could be AS ankylosing  Spondylitisis I have tired methotrexate passed out and leflunimde which also didn't tolerate. I was then Granted anti tnf treatment enbrel but sufferedinfection after infection. I then referred to another hospital when I thought they were going to try and help with getting the right meds and dosage but after one consultation and bloods X-rays and ultrascan of hands decided it's fibro and very quickly discharged me as "there is nothing he can do to help. 

Is it just fibro you deal with? Do you have swellings ? 

I am am sick to death with whatever this is. My lif has been on hold for 3 years I am 25 a single mother and just totally lost my trust in doctos GPs and feel very alone to who I can actually trust in the healthcare division and getting the right information. 

I I feel that fibromyalgia is diagnoised when they have no answer to what is actually wrong! The professor I saw who diagnoised this and said it wasn't arthritis was very black and white and because blood tests didn't reveal anything he had made his mind up even before I had my ultrascan. 

My gp even stated that fibro was a very last resort and he even gave me doubts in my mind as he couldn't work out how Iv gone from one diagnoses to another. Which scan results being very different! Who do I trust I don't know! Just worried because he is classed as a professor if I get another opinion another doctor may be weary suggesting anything else due to his superior Position. Even though I don't feel he made very much effort in investigating my case and brushed me off after only one consultation. And was very quick to discharge me. 

From reading online Yes steroids can affect and lower your crp levels as can dmards so if you have been on these during tests then I would assume the tests might not give the full picture however at the same time assuming the dr had a brain he would take this into account at the time of testing. I would not accept fibro as your one and only answer, you very well may have it in conjunction with something else but they need to investigate it further. Can you not request to see the 1st dr or ask for a second opinion, I would speak to your GP again (I find women are the best) and ask her to refer you elsewhere as your not happy with the diagnosis, make sure you educate yourself on what is not supposed to be fibro symptoms and point out the differences you find such as swelling.

Did the scans show damage, I don't understand how after scans they tell you inflammatory arthritis and then change diagnosis, I would imagine the scans showed some form of damage or evidence of arthritis hence why you got the first diagnosis. You can ask to see all your medical records so you can look through your tests results and scan results etc, sometimes there is a small charge but I've got mine this way before.

If it is fibro alone then there are medications they can give you, usually low dose antidepressant or anticonvulsants, some get on well with them some don't but you can be referred to the pain clinic, you can be refered for physio, there's lots of things they can do for you if you know what your entitled to. Just be firm with them. Have you had thyroid tests, lymes test etc.

Try not to stress yourself out even though I know that's nearly impossible when your in pain and life is at a standstill but stress really makes things worse and I really reccomend only eating nutritious food. Even if I fall of the food wagon for a few days my pain rares up so bad again im not good for anything. I really didn't think food made a huge difference until I stuck to eating well for a couple of months, after that I realised the difference it made and now I really notice when I gorge on junk. I don't eat anything radical either just more fruit, veg, eggs etc. Some people really find relief with no grains or no dairy etc but I wanted to focus on nutrient dense as I've had low vitamin and mineral blood tests before.

Have you had the usual iron, vit d, b12, folate tests with the GP? If not that's something you can ask for.

on that basis I don't have inflammorty arthritis. I know Iv been tested for all auto immune and allergies thyroid also ok. Again whether prednisolne affects it I'm unsure. I am firrm but just getting to  the point I feel embarrassed going to the doctor now as think hypercondriacte. I think my symptoms all in all fit more with lupus but been told it would show In bloods.

i have been doing lots of research to go in armed once I have my letter confirming fibro diagnoises so will be questioning all of this. 

I must admit  I'm not the healthiest. I have gained stones from the steriods and try to diet and try eat well. What food do you cut out which helps? From day to day I don't know what causes it I do find when I have had a bad night sleep I'm in more pain. But when I get flu like symptoms almost as if "I'm getting ill" then couple days later I'm ok. Reading about the swelling it seems people's comes and go mine has been permanent for 2 years.

Bilateral damage at 25yrs of age is less likely to do with previous injury and inflamatory arthritis might cause more damage but it doesnt mean you dont have a another immune disease which causes less damage to the joints. Have they scanned your lungs? 

Dont worry about feeling like a hypercondriact, ive spent years feeling like im going to see the head teacher when i see drs, i get all nervous and feel judged but i year or so ago i decided i wasnt going to take their rubbish anymore and let drs be on a pedestal, i complained to PALS about a dr who i felt was completely rude and they reffered me to someone else and i got treated like i was a human after that, now when i see my dr i try and make sure they know ive done my reading and have a grasp of what were talking about and they dont need to treat me like an idiot. You have to remember they are human, the pee and poop like the rest of us and they are not special nor do they seemingly have the ability to get things right alot of the time. 

Gaining weight on steroids is not your fault and i know they make you incredibly hungry but I would try not to focus on weight but focus on if what your eating is nutritious. Also some people with inflammatory conditions dont do well with nightshade food such as potatoes, tomatoes, peppers etc. I dont eat a specific diet i just try not to eat to much white bread, white pasta, sweets, chocolate, crisps, fries, i have also cut out caffeine. I do have egg on brown seeded toast most days at lunch and snack on almonds or fruit inbetween. Look up the anti inflammatory diet online, theres lots of free resources.

THIS BIT DEFO SOUNDS LIKE FIBRO

From day to day I don't know what causes it I do find when I have had a bad night sleep I'm in more pain. But when I get flu like symptoms almost as if "I'm getting ill" then couple days later I'm ok. Reading about the swelling it seems people's comes and go mine has been permanent for 2 years.

it started with having asthma attacks in 2013 before this is was a healthy active person with no medical history. Iv been under a chest consultant who again has no clue to why I was having these I could not drop below 30mg without having an attack. He stated that my spiroremty is stable. I had a CT back in June 14 on my lungs and sinuses but was clear. They are from that reasonably happy with my lungs. I finally had a nictirc oxide test a year ago which finally revealed eosinophilic inflammation going on as it was high and this was while I was on steriods. So been told unlikely to ever get off prednisolne I'm currently on 5mg several inhalers and tablets. And reasonably controlled but not completely. 

I do do think this two conditions are linked some how. My chest consultant has put it down to possibly allergies but due to steriods affecting blood tests this is can not be confirmed. 

So so the erosion in my little finger they picked up on my latest scan wouldn't be from a break? ( I did state I do not recall ever breaking it as well) do you know any conditions which are not Less damaging then inflammatory arthritis? I can't really go back to my previous consultant I left there because I also find the specialties nurses very rude and not approachable and the consultant was rude to me as I was having lots of infections I spoke to health care at home who deliver my injections who is a nurse and told me to go to a specialist bigger hospital as there are different dosages as I couldn't go on having infections ( had to have antibiotics after antibiotics for about 10 weeks after one dose of enbrel. 

I will defiantly look into that diet. The problem is I can not prepare a meal due to my hands so obviously the easy option is ready meal to put in microwave. Which I know isn't great.  I totally agree it's you in regards to fibro symptoms with them. these started about a year ago when I feel like I'm getting ill may be cold feel dizzy/faint. Headaches sinuse problems feeling exhausted. But even when I feel well I still have the horrendous swelling and pain. 

Thank you you for all your advise it has really helped. 

Well eosinophilic inflammation can be caused by autoimmune disease or allergies according the mayo clinic site. I would think the 2 are related but im not a Dr however timing and common sense would suggest they are.

The food thing i understand, i often used to just cook the quickest packaged meal, someties still do. eggs i think are a good easy quick food but i would check they dont make you symptoms worse as i know some allergy suffererers dont get on with dairy. My best tip is get a cheap slow cooker and a jml nicer dicer which cuts for you or similar and throw cubed veg and a bit of meat in with some stock and herbs and by dinner time it will be ready. The nicer dicer still takes some hard pushing to push the veg throuh but you can do it with your forearm and it doent take the dexterity involved with using a knife.