Fibro diagnosis but still convinced it's something else !
Posted , 9 users are following.
Hello all,
for months now ive had varying symptoms and all the docs would do is send me for repeated blood tests, which only showed that i have raised "ESR" markers and vit d deficiency. I went to a consultant and he's diagnosed me with fibro and im due to start on Ametriptaline soon, but i'm still worried that its something worse e.g. brain tumor. I have anxiety and the main symptoms that are making me worry are headaches every day, someties only on the left side, muscle twitching, random and frequent hiccups and intense neck pain which ive read are all linked to brain tumor. I do hurt all over but my head and neck seem to be most affected and its frightening me. I feel silly saying this to the consultant as i preferably would like a head scan and someone to tell me why i have raised ESR as i read it can be linked to tumors. Can anyone relate or offer any advice ?
thanks, Holly
3 likes, 26 replies
Lucyseven Hollymayshipton
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Like you I too suffer with anxiety. I've had a whole bunch of different symptoms for the past 6/7 months, still no diagnosis. The only thing that has come up is low vit D. The only reassurance I can give to you would be to try and trust the doctors. I know it's hard when you have health anxiety. They know what they are looking for and they know when there's a red flag symptom, so just try to relax and not worry too much.
I also have muscle twitching and bad neck pains, along with many other symptoms. I have convinced myself that there's something seriously wrong with me and the doctors haven't picked up on it, but I try to think rationally. Can I just ask who diagnosed you with fibro? I have an appt next week with a orthopaedic physio practitioner, not really sure what to expect.
Best of luck and I hope you start to feel better soon. Try to stay positive. x
Hollymayshipton Lucyseven
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christine26761 Hollymayshipton
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Hollymayshipton christine26761
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mummajoey christine26761
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mummajoey Hollymayshipton
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Hollymayshipton mummajoey
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christine26761 mummajoey
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mummajoey Hollymayshipton
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Hollymayshipton mummajoey
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grahammolyneux Hollymayshipton
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I have been diagnosed with fibromyalgia and was concerned that I could have MS so I pushed for an MRI oof my brain which cleared me of any issues up there. Chase them at the Dr's and the hospital to look in this direction to clear your mind as the worry can cause as many problems as the actual issue.
I wish you all the best for the coming year
Hollymayshipton grahammolyneux
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tiswas24537 Hollymayshipton
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i know its reall but all you are doing is making your self worse
do you get dizzy spells , violent headaches blurred vision ,vomiting one of the strongest reasons to consider it being a brain tumour is having a hightened sense of smell . are u sensistive to light do you get nose bleeds these are also symptoms
of a brain tumor , and of fibro. i have some of the above unexplained vomiting that last for about 15 mins then goes , dizzy spells, blurred vision its all part of the joy of fibro
every time you get stressed you release adrainline in to your body afecting your nervous syptoms making all your symptoms worse , when you get a panic about a symptom new or old say out load
if you can NO NO NO breath in deep think of a faverite place breath out with a smile ,and distract yourself by doing something differant
every time you have a negative thought about your illness. your be surprized how much better you will feel ,if you have to do it 10 times a day do it you will see a differance . i do. and trust me i did and sometimes still feel silly but it does work.
one point if your with company say the NO NO NO LOUDLY IN YOUR HEAD it still works
christine26761 tiswas24537
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Hollymayshipton tiswas24537
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tiswas24537 Hollymayshipton
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Flowerlady Hollymayshipton
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Great advice on here for you, it's a brill site. I too suffer from anxiety, and numerous other aches and pains due to our friend Fibro.And I breath in through my nose and out through my mouth, It does make you feel more relaxed. Keep coming on here, lots of advice for us...Best Regards...Anne...
Hollymayshipton Flowerlady
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