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Fibro fatigue, depression, nobody close understands.

Posted , 2 users are following.

Guest
Guest

I was diagnosed with fibro about a month ago, I'm pretty sure I've had it for at least three years though. I grew up thinking that pain was just a part of life, I always thought the aches were just part of being human but things slowly got worse after I had my third kid. I have a high pain tolerance and the pains in my legs almost brought me to tears (I never cry from physical pain) so I went to the ER and the doctors gave me a shot of toridol and the doctor said all blood tests were fine and xrays so it must be something like "fibromyalgia", she actually did air quotes with her fingers and rolled her eyes, gave me some Tramadol to take home and said to see my regular doctor to follow up, the pain had started in my legs but I ended up hurting everywhere, just being touched by someone would send a wave of pain through my body almost like their touch burned me but internally and it spread.. So I saw my doctors partner doctor at our clinic because I needed help asap and my doc is booked out three months. Her partner wanted to put me on amitryptaline but I said no because it's also used for depression and I can't take any mood altering drugs because of borderline personality disorder, she said I had to talk to my therapist to get the go ahead for gabapentin, therapist said yes to gab and agreed with what I had said about amitryptaline... Anyway, been on 300mg gabapentin 3x/day and it does seem to help the pain.

This fatigue though! And the random bouts of depression. They make me want to just lay in bed all day, three kids, I can't do that so I push on anyway... What can I do about this fatigue? What works for you? I'm also taking acelytl l carnitine (spelling??) for brain support, a womens vitamin, and hydroxycut (not just to lose weight but the caffeine/coffee extract gives me some boost during the day.) I play with my kids on my good days but they notice the bad days and it makes me sad because all I can do is sit with them while they play....

I want to play too!!

Anyone, please, any remedy for the fatigue, I'm always tired.. I'm starting to feel useless..

Also, I live with my mom, my kids too, I'm a single parent, I do the cooking, shopping, cleaning, etc. The only thing I don't do is the dishes because mom does them. I do everything because my mom has cancer and her back hurts if she stands for too long, I get it.... But I wish people around me understood my pain and the many struggles fibro brings, and BPD on top of it.

Sorry this was so long.. Needed this out. 

0 likes, 2 replies

2 Replies

  • peeky
    peeky Guest

    Posted

    i am so so sorry its bad enough when you have grown up kids but when they small and you are responsible for them its not funny the fatigue is not good but i have a shortage of cortisyl which makes me very tierd waiting to go to endocrine clinic in october i always new somrthing wasnt right with me i had polio as a child so i was used to a bit of pain but this is all over my body and it does drag you down i am on mst continus a morphine based slow release tablet which keeps it at bay but doesnt take all the pain away i also use CAPSICIAN CREAM which is great but you cant rub it all over your body so that is used for localized pain and as it is made from chillies it is vital you wash your hands or i have an applicator so dont have to touch it i do know what you are going through AND IT IS NO JOKE and i dont think enough research sorry i couldnt have been more of a help to you a couple of paracetemol now and again helps to take the edge of but cant use them all the time keep your chin up luv i have suffered for most of my life with it it is now part of me god bless you and your kids you will have good days now and then regards
    • Guest
      Guest peeky

      Posted

      Thanks for your reply peeky. I'm thinking about trying Savella (I think that's what it's called), it's a nerve pain medication but also an anti depressent.. I don't want to take an anti depressent because of my bpd but I guess it doesn't hurt to try it. My gabapentin on some days barely even works, at first it was great but I'm thinking I need something else. 

      I was wondering if you know of any medications specifically for the exhaustion that we feel??

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