fibro for last 5 years and lost all my friends

Posted , 7 users are following.

I have been suffering with debilitating symptoms for the last five years and along the way I have lost every single friend I had. I really want to make new friends but it's hard to get out as I'm in a wheelchair ( not self propelled as i have hand and arm problems) and to be honest I wouldn't know how to make friends anyway. I am so isolated and, sounds really daft considering I have a lovely husband and family but I feel so lonely. Does anyone else have experience of this ? Any tips on how to make friends ?

Chrissy

2 likes, 12 replies

12 Replies

  • Posted

    You have made the first step by joining this forum, I'm awaiting a rheumatology appointment having many fibro symptoms and I can't praise the people I've met on here highly enough, they have all made me feel, well, normal. We all seem to be here for each other. Much love xxxxxx
  • Posted

    Thank you Deborah xxxx I was made to feel like a hypercondriact for many years by my useless doctor and because of that lots of my friends and some family didn't believe I was I'll either.The whole episode has left my confidence non-existant, I only go out to appointments as I put on 9 stone due to my immobility and don't want to be seen like this. I know I have t break this cycle but I don't know how. Thank you for taking time to reply to me it means a lot xx
  • Posted

    This is a huge learning curve for me but I've really found strength in this forum.just knowing I'm not alone helps so much. If you want a chat one to one please feel free to pm x
    • Posted

      That's so lovely of you thank you. I am just sussing this website out so will pm you when I realise how to, lol brain fog xx
  • Posted

    Hi Chrissyboo

    You are not alone on this forum.  You have many friends and ones who will understand your pains and support you.

    Welcome to our Forum wink x

  • Posted

    Hi Chrissy..We are all friends together on here. I too have no friends, I am home alone all the time. I am here daily, as you get chatting with the same people and they beome your friends. Have a good day, and visit often.biggrin
  • Posted

    I feel for you as I too have lost friends.  They don't understand that I am not being a "stick in the mud" when I decline invitations for evenings out. We have to pace ourselves. I can't sit in the cinema for instance as I would totally seize up being still for so long. I don't have the energy,  today they all went to a theme park, the noise and the crowds apart from all the walking would finish me off. The comments "well we all get tired" are well meant but show a total lack of understanding.   On good days I take the dog and a ball launcher to the park so I don't have to walk far and can talk to all the other dog walkers.  Probably not feasible for you. I have found a local book club which I hope to join when I pluck up the courage, they apparently meet up in various members' homes. I like to use talking books as I tend to get very tired eyes if I read for too long but this club may lead to friendships or at least an outing every so often.  it is so difficult as everything either is out of reach physically or financially. 
  • Posted

    Hi there Chrissy, I was diagnosed with fibromyalgia recently, and don't have a lot of the symptoms others have. I came to this forum on my daughter's suggestion, and read your posting and thought... Yes, that is just how I feel. I live with my sister-in-law and two beautiful daughters, yet I feel so alone and unable to talk, but none of it is their doing. So anyway, just wanted to say I understand how you feel, but have no tips for making friends sad
    • Posted

      Sorry for such a late reply, not been on the net much lately. Amyway if you would like to talk feel free to inbox me x
  • Posted

    Sorry, I have no tips, I too have lost friends, some good job too I say.  If you are like me you will be more upset because other way round you would be there for them.  My husband left nearly four years ago, I had been ill on and off for many years but over the last 2 years things have been bad with the fibro.  Im not sure I can take on friends to be honest, but your post has made me realise I have got very used to being alone, a bit of a hermit I suppose.  Anyway, as long as we don't turn into creepy cat ladies that kids fear, I am sure we will be fine.  You have a lovely husband and family and  is worth its weight in gold.  
  • Posted

    Hi Chrissy

    I know how you feel, I received a message the other day from a friend, who said we all miss you, hope you get better soon, they don't understand. Sometimes after a flare up, we just can't go anywhere. A book club is a good thing to join and even if you miss a session you can still read a book and send in your comments by email and still feel part of it. If you have a local library they may run one. Good luck.

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