Fibro hell

Posted , 4 users are following.

Hi everyone,

Can you all tell me does anyone else feel as though they are fighting a constant battle?

I used to say I I loved a challenge I have since changed my mind. I would love to get up one day and not have to fight my way through the pain and stiffness. Once you re-adjust to the fact the pain killers don't work as well as you would like you spent the rest of the day pushing yourself to your limits to do the simplest of tasks. Task that no one else without fibro even consider a problem, they brush their hair get a shower without a second thought. Some days I just wish I could be them even just for the day.

I hope you are all OK, sleeping well and keeping your heads above the water. smile

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6 Replies

  • Posted

    Hi Lisa B

    Yeah I am afraid to say it is only us \"fibroites\" that understand, as I feel that not even the doctors know what we go through, unless they want to listen in the ten minute appointment :oops: even Rhumatologists treat us like malingerer's or something, due to my experience and a fellow sufferer I know........... I have set up Support group for fellow sufferers we meet one hour for every month and it is good to listen to people that understand, we have ten in our group now smile

    I am having a bad day today and the pain is harsh, probably due to the damp weather :oops: I do hope everyone else is having a better day than me :roll:

    Gentle hugs xx

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  • Posted

    Hi Ses,

    My pain has been much worse today too. I`m sure the weather makes a differance! I have trouble now deciding which is pain from the OA and which is from the fibro!! Even my clothes hurt my muscles this morning and I was tender all over. It improved a bit as the day went on. Am hoping to go out tomorrow hope it`s too bad. GP suggested a walking stick and that does seem to help, except if I lean too heavily on it it makes my arms and wrists hurt more. Oh well what else did I expect with this crazy condition we are forced to live with. Lol

    take care everyone

    Love Linda

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  • Posted

    Yeah Linda,

    When you use the stick it does hurt your shoulders too as it does mine...... I was asked by the dla appeal why I do not use both crutches and the fact is it hurts very much in my elbows and shoulders etc so it is a catch 22 situation!!!!! and the pain with the Osteo in my hip is so severe, but yet the fibro pain has mellowed a bit due to the meds I think??? can't win though as the pain in my hip is severe...... I can't move a certain way without the horrible pain ........ just got to put up with it eh????

    I have changed my Gp today as my present one was useless and so hopefully my new surgery may be better? as the present one Practice owner is not thorough one bit, put it this way when I went to see him he said he wanted to stop my pain, I told him about the knee pain and hip ....... told me to get on the doctors bed and he moved my legs and knees, and that night I could not walk....... I was in agony for days :oops: so after that I thought wooh I am not going to see him again and besides he gives you co-codamol before you have told him how you feel....... totally useless..... loads of stories I have heard I do not understand how he is still a doctor????

    Anyway I do hope you have a good night sleep to everyone and gentle hugs to our group of Fibro sufferers xxxx

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  • Posted

    Hi everyone, I do hope you are all a well as you can be.

    Why are doctors mainly GPs so silly when it comes to understanding pain? I think if they could get put on a pain machine for some time they would have a little more understanding.

    My GP asks me every time I go to see her (on a monthly basis) what is wrong with me and why do I need my sticks, which drives me mad. I know they can't remember everyone, but surly they can take a quick look at my notes and pretend to be interested.

    I understand totally what you are saying Ses I find it much harder to use two crutches due to the additional pain it causes in my left shoulder, wrist and hand it is unbearable. I use one then I don't trip over it as I do with two.

    Well I better go for now but I hope you all have a good sleep, and as they say, tomorrow is another day lol, Lisa xx.

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  • Posted

    hi ses, linda and all my good friends

    im just back from a few days away with my sister in a travel lodge up in dundee .. we did nothing for 2 days apart from lying about reading talking and watching tv so it was so so lovely.. now im home i feel as if i aint been away... im at the rhymatoligy on fri so getting very nervous about that.. if they make out there is nothing wrong with me i think i will crack up...

    im not as sore today because of the rest i have had over the last few days but still finding it hard listening to u all about how u are feeling.. i walk with one crutch to because it hurts more on my left arm and hand.. so i do understand where u are all coming from..

    will let u know how i get on, on friday so for now take care... di x

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  • Posted

    HI there my dear friends xxxx

    I have been in so much pain in my hip and my thighs went kinda numb and my legs felt like a lead weight nearly went to the hospital as it was kind of frightening the feeling...... but then I thought they cannot do anything so I will write it down to give it to my new doctors surgery and see what he/she will say? Anyway I do hope you all are having a better evening than me and I hope I have as well as everyone else a good night sleep as when I turn over the pain wakes me up!!!! doped up with meds too and they do not work, probably the osteo as the fibro everywhere else seems to be calmer????

    Pain in hip is is really bad as I cannot bend forward or anything as the pain takes another angle??? anyway I am waffling now so I will love you all and leave you for now xxxxx Glad to hear you spent sometime with your sister Di as I bet it was nice getting away for a few days...... I do need a break I think from the pain first and then somewhere nice and hot :lol: Lisa and Linda yeah walking with the crutches is hard work but I can't go without so one is better than none, for support and I am 36, it makes us feel old eh but what else can we do? my physio gave me mine as it does relief the hip very slightly (at the moment)........I hope Tess is ok?

    Take care everyone xxx

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