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fibro making me feel like im literally dying!!!

Posted , 4 users are following.

melissa30395
melissa30395

I never thought that my pain could get any worse as I am always in pain and can't cope but lately it's the worst pain I have ever felt I was hit by a car a long time ago and I fell like I have been hit by another one that is the best way I  can describe it and I really dont know how to cope with thissad my pain relief isn't touching it at allsad

1 like, 8 replies

8 Replies

  • kaz_40
    kaz_40 melissa30395

    Posted

    Hi melissa30395 Im sorry to hear your in sooo much pain. Pain is so draining it makes you so weary.with it.I would go back to your gp tell them your pain relief isnt helping. see if they can offer you anything else.  I cant take tablets as Im allergic to opids, I just use water bottles and wheat bags. try a hot shower or bath see if that helps at all. stress worry doesnt help our condition it makes the pain and our condition even worse. Im sure the other ladies will offer you advice also. so sorry to hear of the car accident you had. it does feel with fibro like its a slow painful death. all we can do is take each day as it comes get through it the best we can. take care gentle hugs  
    • melissa30395
      melissa30395 kaz_40

      Posted

      Hi Kaz,

      Wow that must be awful not being able to take meds how do you cope hun? I never took any meds other that paracetomal up until about year n half ago and everything just hit me and I was in agony all the timesadI do love a hot bath and I would have 1 everyday if i was upto getting in and out of it its hard work I dont have a shower couldnt stand up in 1 anyways I did have 1 and i struggled with it.Ido use hot water bottles they do help a bit I hate being cold I go through tons of gas with heating as well. I am always stressed which is the problem as I have high anxiety.It was a long time a go with the car but I think its a massive part of it. I hope that you are ok and having an ok day I wont say good day as we dont  have them. What are wheat bags btw?

    • kaz_40
      kaz_40 melissa30395

      Posted

      Hi Melissa wheat bags are what you can put in the microwave for a short time. it heats the wheat up then you can put the bag on you like your neck legs etc. stress wount help with the pain the more we stress worry the worse the pain. I struggle with showers but I now use a bath board that goes across the bath and i sit on it. I cant stand to shower my balnce is very poor.Im not able to have a bath as I struggle to get in and out. I would love to have a wet room just need the money to alter the bathroom so I can have1. Pain wise just try breath through it and grit my teeth.water bottles do help with the pain not all the time some of the time. If you can occupy your mind so your not thinking of the pain. read a book watch tele anything to take your mind off it. easier said than done bit try not too stress worry it wil make the pain alot more worse.My pain is centred at the min in my back legs, last night I had chest pain and again today. All we can do is take each day as it comes get through it as best we can. hope your able to get into the drs tomorrow. they can help you. get as much help support as you can. and aids to help you. see if your area has alocal fibro support group. your gp can refer you to a pain clinic cbt therapy some areas offer 12 weeks free acupuncture, and some areas offer free hydrotherapy for so many weeks at your local hospital. your gp can also refer you for ocupational health to come out assess you for any aids you may need. If any friends family offer help I would take it. we need all the help support we can. Take care gentle hugx 
  • sadie1980
    sadie1980 melissa30395

    Posted

    This is how I was feeling until they changed my meds I'm still in pain but not as bad ! What medication are you on x
  • melissa30395
    melissa30395

    Posted

    Hi Sadie,

    I was on tramadol but it made me like a zombie It was horrific. I was taking morphine sulphate tabs but they made my ibs worse. I was at 1 point stealing my mums diazapam now they were the only meds that seem to help me but my doctor wont prescribe them to me as she doesnt want me getting addicted to them and I dont live with my mum anymore so I dont have access to themsad

    I have been prescribed and I take..Solpodal, naprozen,sertaline and amitriptyline and I often feel zonked out and can sleep at any time of the day or night I can also be awake at anytime day or night im all over the place.What symptoms do you have? Where is your pain? How do you deal with it?

    • sadie1980
      sadie1980 melissa30395

      Posted

      symptoms

      Stiffness

      Tired all time even after sleep

      Pain if get poked

      Hate loud noise

      Puff eyes

      A stone put on

      Confused can't get words out/ can't count

      Headache

      Numb legs

      Rub pain

      Bk pain shoulder neck

      Spine stiff and hurts

      Hands worst

      Cramp

      Wrist and ankles

      Jaw

      Clicking and grinding joints

      Hands shaking

      Twitching in body / right eye twitch for days

      Bone pain everywhere

      Loose voice when I've done to much and run down and can't move

      Shooting pain threw bum into bk of leg

      Ibs hard then very loose

      That's my symptoms most on a daily thing I don't deal with the pain and had a break down in docs last week so I was changed from zapain to tramadol but they don't seem to do sod all and they upped my dose of ametriptoline but got another appointment this week with doc and waiting to see a rumetoligist x

  • Suzi59
    Suzi59 melissa30395

    Posted

    Hi Melissa, I wish I had a magic pill with no side effects so that we could all be cured of this horrible, debilitating illness.....but I don't and so far, nobody does.  Scary to be in our shoes with symtoms evolving by the hour sometimes and never being able to get any kind of grip on it - Even the medical professionals scratch their heads. Pain is exhausting, but the pain never exhausts.  Hang in there. Hopefully, you have a good support system around you, that always helps a bit. I don't know....maybe try meditating..I'm going to try it before bed to see if that helps my body relax which in turn might quiet my muscle zaps...I would try just about anything at this point.  Easier said than done, but try not to stress too much due to the havoc that induces on us.  Hang in there, hopefully, this too shall pass and you will catch enough of a break in your pain to recharge a bit....gentle hugs
  • christine26761
    christine26761 melissa30395

    Posted

    O poor you Melissa, I have had Fibro for 3O yrs now now I'm in and out if remission. But I still take the ned daily..but,,my first 10 years I used to describe how I felt..was being run over by a semi trailer..I hurt everywhere..it was back in the day when the d's were first looking at the best pain relief for me..it took a few yrs for it to be sorted,,there is light at the end of the tunnel Melissa .. I only take one med for it.. Amitriptyline..it took a while to get the dosage   right , I've been on the sane dose now for 16 years or more..it numbs the pain at the end of each nerve.,stopping it  travelling throughout the body, it knocks me out too so I get a great nights sleep-which sooo vital for dealing with the next day... It was originally prescribed as a low dose antidepressant..then they found out how good it was for chronic pain.,the antidepressant is our little bonus I guess!!.I suppose we all get some sort of a depression with this Fibro....I take 25 mg every night about 6-7pm...I do hope  you get sorted soon..pain is just soooo tiring too..and we already have that exhaustion without extra help..there is a forum on this site about Amithriptilyne..or you can google it...you may already be on it??? Be blessed Melissa..have a lovely day..gentle hugs..:-) xxx 

     

     

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