Posted , 7 users are following.
After approx 5 years of wierd pains, headaches, dizzy spells and frightening 'flare-ups', my Rheumy is almost certain that it is Fibro! Looking for advice from fellow sufferers on how to cope with this and to continue working.
1 like, 5 replies
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Vitav emma85677
Posted
Hi Emma! Welcome! I'm pretty new also. I was just diagnosed this year. Yes! WEIRD pains is exactly the way I would explain it! I also suffer from chronic dizziness. Wow!!! I wonder if anyone else suffers from dizziness! I really don't understand this Fibro crap! I still feel like there has to be a cause behind it! It's like they diagnose you with it because they don't know what it is! I hope someone here can help you understand more! WELCOME!!
victoria93835 emma85677
Posted
Hi Emma, my own doctor diagnosed me with fibro I'm waiting to see a specialist just to confirm it. I am suffering for nearly two years. I was in extrem pain and the fatigue was terrible I spent most of the time in bed. Two years on and different meds my doctor found one that works for me. I have been taking them for nearly 3 months and they are a life saver. I don't need my naps during the day which is great relief because I just moved house and needed all my energy. I am still in pain but I can deal with that once I'm not falling off my feet with tiredness. I suffer really bad with fibro fog. I have to set reminders on my phone for the simplest tasks such as making the child lunch in the morning because I have sent him to school without lunch several times. My memory is very bad. My eye sight is also effected I find it difficult to read. Also I forget words.
I am still trying to come to terms with it but I am dealing with it better now because I have more energy to. I know I will go back to the way I was but for now I'm enjoying life while I can. The way I see it it's not a illness that will kill us it's a illness that sometimes makes us feel we are better off dead. So once you keep your head and thoughts healthy and positive we can deal with it better xx
naomi402 victoria93835
Posted
victoria93835 naomi402
Posted
I am on amitriptyline 20mg a night, lyrica 50mg in the morning and 75mg at night. The lyrica worked solely for a few weeks then stopped working altogether. I went in to the doctors and cried in despair I was at my wits end. I was so tired and painful. He then put me on amitriptyline and I haven't looked back x
denise_13913 emma85677
Posted
Hi Emma had fibro for yrs.And it has gotten worse in the past 3yrs. I finally had to come off my job and apply for disability. My lawyer said across the board it it tuff to get it approved because disabilty don't have a lot of parameters for it. So he's using depression and anxiety with fibro. And.I am 47. it's pain like no other. I have dizzy spells but biggest issue is.the constant flare ups and.insomnia. But at least now I can move at my own pace. Makes.a.very big difference for me. i try to.stay positive. I believe also that something has happened and because Dr's can't explain it they call it fibro. different lab markers.are always abnormal like my sedrate,amylase and lispase,cpk.and bad anemia, And don't tell me.it's stress this pain is real!!! My Dr at Emory University said the fibro came from something but until it fully manifest I have to deal with these horrible symptoms.