Fibro Poem

Posted , 8 users are following.

Evening everyone, hope you're all having a pleasant evening. (I am feeling much better today, - thanks for all your support yesterday)

I wrote the following poem just after my diagnosis when I was angry with the doctors who (in my opinion) fobbed me off for months. (I can't imagine how going years without a diagnosis must be - I feel for you all). I also notice a lot of people are frustrated with their GPs so I thought I would share the poem with you all 

MY FIBRO HELL

Got another appointment with the doctor tomorrow

I’m sure he thinks it’s all in my head

I just wish he understood the pain that I feel

As I struggle to get out of my bed

From ankles so stiff to twinges in head

And pain everywhere in between

I try to explain how it affects me each day

But he just never seems very keen

I wish he could walk a day in my shoes

To experience how Fibro attacks

From the cramps in my legs to the pain in both arms

And shoulders, neck, hips and back

I wish he could try to manage his day

With the overwhelming tiredness I feel

And if he could experience forgetting his words

He would soon see that fibro is real

I wish he could see the look on his face

As he says ‘results are normal, you’re looking well’

I wish I had the courage to scream

‘CAN’T YOU SEE I’M LIVING IN HELL?’

I would never wish this upon another

But I just want to make him see

Fibromyalgia is very real

And has taken everything from me

Gentle hugs all xx

4 likes, 20 replies

20 Replies

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  • Posted

    Hi Erykah

    Such true words. Well written.

    Glad to hear you are feeling better today.

    Gentle hugs wink xx

  • Posted

    Wow this is spot on wish I could copy and paste for a billboard for the world to see.
    • Posted

      Thanks Nicola, maybe slip a copy in medical workbooks for every GP in training lol x
  • Posted

    A beautiful and sad poem, so very true, everyone who sees me tells me how well I look, if only that could make me better I would have been well ages ago, I think we all would!

    I'm glad you are feeling better today, well done for getting through a bad day.

    Hugs

    • Posted

      Thanks Boqer,

      I just can't believe how many mirror images of myself there are on this forum - I think just knowing I can moan to people who understand was the tonic I needed x

    • Posted

      You are welcome eryka, now and always, it's all we can do for each other, and I'm glad that you found some ease.

      Be kind to yourself

      Hugs

      Boqer

  • Posted

    OH BLESS....  what a wonderful description... what a wonderful piece of written work Bee...   Gosh so so good to put into words like that.  Would you mind if I copied this?.. I'd like to give it to my doctor...  !  
    • Posted

      Hi Deb Thank you. Of course you can copy it. Hope it helps x
  • Posted

    Living in hell about sums it up. So glad you are better at present. I guess we need to treasure the good days and hope for many more. 

    Some doctors get it and others don't, that is their problem not yours, as long as you can find the good ones.

    I I love poetry it is a great way to put all your emotions on paper rather than carrying them around with you as a heavy burden.

    Nuture yourself

    Meg

    🌺

    • Posted

      Thanks Meg,

      I use poetry a lot. It feels like that's all I have left since my energy and enthusiasm was stolen from me - mind you I do lose my flow sometimes when fibro fog wants to play sad x

        

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