Fibro sufferer

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Had fibromyalgia asthma severe neck pain now anxiety frozen shoulder. Knee problems . Had to go threw pip assessment failed then appealed and for three years I was left litter early penniless declare myself bankrupt . Wrote letter as wanted me to find employment on esa then put on morphine for suffering severe neck pain after threatening to take my own life .told pip last year increase in morphone back threw all paperwork again I cannot put up with all the worry and stress of it

It's bad enough having these problems then having to go threw all this now I'm in worse pain than ever I'm taking so many drugs I not knowing what I'm doing at times

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8 Replies

  • Posted

    I'm sorry to here this.

    I know it's easier said than done but try and find some strength to fight the dwp get support if you can or get in touch with welfare rights they can act on your behalf and take some of the stress away.

    My neighbour also has fybromyalgia she was awarded dla for life she uses stair lift and walking stick.

    She's been thru the pip re assessment and lost her mobility.

    How can you get awarded a benefit for life then get it retracted.

    I hope u can find the strength and get the help you need

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  • Posted

    I so do feel for you, i dont generally swear but if anything makes me feel like doing so its reading things like this, to think this lot can totaly take control of ones life and make you beg.  Its gone OTT now and not humane.  No wonder many arnt even considering applying for this PIP.  How can they come to this conclusion with your evidence i just dont know.   You may as well fight this as i think its only the fighters that get anywhere in the end, not that most claimants should have too. makes my blood boil it really does.   

    Sue 

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    • Posted

      I agree, it's sad. Those that need it can't get it and those that don't seem to get it easily. I will keep advicing others though that evidence does help. I don't just mean evidence from serveral years ago, i mean up to date evidence. I know this is hard for a lot of people though. I've read a lot of stories where people haven't sent this in to back up their claim. Also we really only ever hear the bad stories, we don't hear of the good ones. Where people do get awarded and their assessment providers were nice and geniune. Some do actually tell the truth. Mine did at both my assessments for PIP. On my report everything stated was the truth, exactly how i told them, so it does happen.

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  • Posted

    I got mine easily and I do deserve it, have RA can't walk after an accident and 3 other diseases that are incurable, thousands get it every year, this site only shows a very tiny percentage who have a problem and don't get it.

    If your knocked back then appeal, but you do need supporting evidence, not just a letter from your Dr and like Denise said it needs to be current medical reports from the right sources, ie fibromyalgia from rheumatologists, mental health problems from you CBT specialist or psychologist hope this helps

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    • Posted

      well precisely my hubby doenst stand a chance then, like many all written reports now well over 15 years old and havnt got any more, under no specialist so only have the drs report for back up, is it really even worth us sending in his PIP form at all. 
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    • Posted

      You can write a diary of his day to day care and add a letter of support to go with it. Send the Drs letter in also. Does he take medication? if so then a print out of all of these. It's always worth applying because if you don't you may always regret it. If he gets decline then ask for the MR if this fails the appeal at tribunal.

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