Fibro sufferer- in so much pain,feel hopeless

Hi Lisa98560 I was diagnosed with fibro in 2014 after 10 years of trying to find out what was going on with me. My mobility is very poor use a wheelchair walking stick and walking frame. I suffer with bad depression. I too have lost friends because of this illness it has also put pressure on my marriage. As my husband finds it hard to cope with working full time and looking after me running the home. This condition is most definitly not in our heads. I feel for you feeling isolated as I do too its difficult for you with moving to a new area to live. cbt therapy may be beneficial to you.some areas sometimes have a fibro support group that you could join its worth checking if where you live has one. Has for meds my gp tried me on everything going the last one I tried was pain patches. Im alergic to opids so mg gave me high dose of ibuprophen but they dont do anything. so I dont take anything just have to deal with the pain as best I can I use hot water bottles. I dont think your gp should be taking you off any meds especially if heir giving you some relief. My dr was doing all she could to make sure I had pain relief. I too have felt useless hopeless as we arnt able to do what we once could. none of this is our fault we didnt ask for this condition nor do we want it.we all try help support each other on this forum so your never alone on here take care 

Lisa, we become depressed, or rather develope a low mood, due to the consistant and continuous battle with the Pain and Fatigue...  It is all part of the Fibro.  It's not a totally seperate issue/s...  You would have noticed on your less to no pain remission moments just how much 'brighter and yourself you feel in 'those' moments'...then, when it creeps or slams back up on top of you, you notice how low the mood is all over again.  The battle field on the brain trying to cope with the pain/stiffness and fatigue/insomnia etc...

Sometimes taking so many drugs to try dealing with seperate issues, actually create a mindfield of extended issues, reactions or rejections.  WHEN simply it's a matter of learning to cope, learning to put up with a certain amount of our pain etc...instead of chasing the dream of 'normality', which won't actually come about in a bottle/s of pills in stuff.  Especially not concoctions of varieties which some doc's write scripts for willy nilly, that don't work for long, or not at all, or go on to as I said before, cause other issues and reactions, totally not good.

Getting angry at ourselves and feeling emotional is all normal and very healthy. It is natural and normal.  So just as a thought, why not try tackling your pain, and that Fibro throws at you, naturally and as best you can, with minimal painkillers etc.  Taking only what you need to help dull the worst, on the worst days for a duration whilst pacing/resting yourself.  It is important to pace and rest, also 'sleep'..  It maybe all out of kilter with timing, sleeping through the arvo and awake sometimes early hours BUT if that is what it takes to help minimal stress, duress and Pain!...then so be it.  At least your not battling Fibro issues as well as complications/reactions from other drugs.   This maybe why the doc wants to see you off the drugs, start on a fresh footing.   

It can become to easy for folk/some folk to fall into the drug trap taking all sorts.  If they have to take a concoction, all the time and are still complaining of pain issues etc, then clearly the drug/s are not doing the job, or are only partially which is actually all you can expect anyway.  There is NO Pain Killer to knock it on the head other than Morphine or Marijuana and of course Opium byproduct 'Heroin'...  which is not legal and highly addictive and distructive.

Can't live on Morphine it's kill you when one gets immune to the ever increasing doseage for pain.

Eating or using Marijuana Oil is the safest and best sleep aid, AND ultimate Pain killer for Fibro that I know of..   It works.  Again in moderation without abusing it, brilliant!   That's why folk 'have used it for many many thousands of years'..  It's a natural healing herb and pain killer!...  

Take care and I hope you find the means to best manage and cope.  It won't ever be the bees knees perfect, but it will be your next best thing!!   Whatever it is you chose to do...  Hugs xx

I feel for you I really do. We have all been at a low ebb.  I have come off all meds because of the side effects and that nothing seemed to be worth the trade off of pain relief versus side effects.   can't say my regime has been easy but I am on various supplements which I have posted on here before together with hypnotherapy, cbt, gentle exercise, epsom salt baths and a completely gluten/refined sugar free diet, cooking everything from scratch (not as difficult as it sounds - slow cooker works well, cook more than you need and freeze the rest).  I have pain can't say I don't but it is better than it was before I tried this regime.   Please dont believe that seeing a psychologist means it is in your head, it isn't. Psychologists can help alter the way you think and deal with pain. Give it a go - worth a try just to see if they can help.  Let us know how it goes.

I can relate. My mind is not what it used to be either. I was in school for psychology, honor student too. Now I can barely keep it together to keep up with money, doc appts, and meds. I am still smart at times, its just the simplest things I can't get. Strategic games or games that are in depth don't happen anymore. Social skills have gotten worse too. I guess people think I'm weird or psycho because my friends aren't around anymore either. I like gardening and science, and crafting. The projects take way longer to complete nowadays. Doctors told meet was in my head for years. Had me questioning myself. Don't do that. You know what you feel and that's the bottom line so keep pushing the doctors. Counseling may help find ways to cope and live with this new way of life but as far as a psychological disorder....lol. ...no its not that. My docs think its fibro after all these years of test and aggravation. I hope you get a diagnoses so you can move forward.