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Fibro trembling and tingling

Posted , 6 users are following.

linda51222
linda51222

hello,

Does anyone get trembling and tingling when their fibro is in a flare up, I have had fibro for many years and managed it fairly well, but in the last few months I have been in a flare up that has included the things I have mentioned above.

L.

0 likes, 10 replies

10 Replies

  • Magpie2me
    Magpie2me linda51222

    Posted

    Yes Linda. I get trembling and a shaky nervous feeling. I also wake up in the night with papitations. It usually has to do with anxiety. Watch the coffee intake and stimulants of any kind. Also getting our worries out can help. It gives us better perspective on things. Writing my thoughts and worries in a journal has helped me a great deal over the years. So yes, I am sure many of us suffer those same symptoms Linda. Warm hugs. Maggie xx
    • linda51222
      linda51222 Magpie2me

      Posted

      Thanks for that Maggie, do you get the tingling? I have palpitations from time to time but it was discovered I have PAF so have meds for that.

      I will try the the journal sounds positive.

      Linda xx

    • Magpie2me
      Magpie2me linda51222

      Posted

      I rarely get the tingling but many do. Yes a journal is also a good barometer to see how your anxiety can be triggered and how to reason better on different issues. Worry creates stress in our bodies. So learning to cope more efficiently with these thoughts greatly reduces our negative reasonings. All the best Linda. Maggie xo
  • gill50535
    gill50535 linda51222

    Posted

    Yep, i have parathesia (tingling) all the time, it never stops but i also get the inner trembling on and off too. it feels like a seizure but you're fully conscious.

    it's not very nice all. sad 

    • linda51222
      linda51222 gill50535

      Posted

      you can say that again not nice, as if that's not bad enough, the fatigue and weakness I think I find hardest to deal with, its like someone has opened a tap in your feet and every ounce of energy just drains away.

      seems there are lots of us dealing with it, and positivity seems to be the way to go.

      L.

  • kiki74
    kiki74 linda51222

    Posted

    Yes I get tingling in my hands and feet. I had it on and off for years. Even before I got my diagnosis. The doctor even sent me for a nerve damage tests but it showed nothing I also have restless leg syndrome at night when i lay down. As for the heart palpitations I usually get them when I shower. That's when it's most prominent, even though I do experience them at other times. I was diagnosed with leaky valve.

    I lay down and control my breathing to get my heart back to normal rhythm and I take magnesium to stop the tingling.

    • linda51222
      linda51222 kiki74

      Posted

      Thanks for replying,

      My tingling like you is in my hands and feet, and the side of my face, but the trembling is more in my right hand making it difficult to pick up a cup of tea without spilling it.

      I will try the magnesium.

      L.

    • kiki74
      kiki74 linda51222

      Posted

      I don't have the tingling in my face just in my hands and feet. And my hand doesn't tremble like yours . I get muscle weakness in my hands and arms and even have cramping and twitching. It's frustrating when your body doesn't want to cooperate. I have dropped a pitcher of water several times trying to get it out of the fridge and realize that my hands aren't working.

    • linda51222
      linda51222 kiki74

      Posted

      yes Kiki,

      I can relate to that the twitching and the cramps especially in my feet,  and as you say very frustrating when your brain is telling your hands one thing and they do the opposite, I suspect mine is not helped because I have been told I also have Pallindromic Rhuematism, thank fully that comes and goes in varying degrees, but when it and the fibro decide to hit me at the same time its a bit debilitating, I would ike to thank you and everyone else on the forum as I honestly believe that the best people to speak to are those who are suffering the same thing, the clinicians as good as they are just don't get it, they ought to have it for a day and maybe they would be more sympathetic.

      L x

  • bill38615
    bill38615 linda51222

    Posted

    I am still not diagnosed with fibro as doctor does not want to label my symptoms.

    I have had Chronic back pain for nearly 6 years following a car accident.

    Over the years I have had a really wide range of symptoms including the shaking/trembles and tingling on my handscand toes.

    Not sure if the pain relief is slowly wearing down (Pregablin)or the pains are getting worse but I know that I have pain every day,yes sometimes worse than others but pain every day.

    I fear that jobs that I have always done are now becoming too much of a challenge but I am not giving up.

    My biggest issue now is weight gain.! I have put on significant weight but simply cannot shift it. Does anyone else suffer from the weight gain?

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