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Fibro ? You might be surprised

Posted , 6 users are following.

brenda42506
brenda42506

Hello everyone. After reading some of the stories on here I really believe a lot of you have Lyme disease/ Rocky Mountain spotted fever. My symptoms.tenderness hurts to be touched/neck base skull discomfort & popping & cracking. Same with my back feels like needs popped all the time. Bad fatigue. Ibs symptoms.pain in ribs/ lymph nodes. I've tested positive 3 times now for Rocky Mountain spotted fever. If you haven't been tested please talk to you doctor about getting tested.

0 likes, 20 replies

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  • julie43903
    julie43903 brenda42506

    Posted

    I've been tested for Lymes but it was negative however i spent 5 weeks in Arizona last summer and my symptoms started only two weeks after returning! 
    • brenda42506
      brenda42506 julie43903

      Posted

      Just because it came back negitive doesn't mean you don't have it. There are lots of people that get a false negative with lyme & rmsf.
    • brenda42506
      brenda42506 julie43903

      Posted

      What test they use? ELISA test? If so talk to doctor about western blot test. Please research false negative lyme test.
    • julie43903
      julie43903 brenda42506

      Posted

      I'm in the UK also and my GP has reassured me that although i came back from a very hot state he said it definitely was not Lymes. I will ask however about the western blot test . 
  • shelagh6
    shelagh6 brenda42506

    Posted

    I'm in UK and have been tested for Lyme disease which isn't common this far north yet. I haven't had the normal signs of the red target after being bitten, I have been diagnosed with fibro for over twenty years, if it was Lymes I'd be, at the very least, too ill to function. So yes some people may have Lymes but not in the UK where a lot of the people are from.
    • brenda42506
      brenda42506 shelagh6

      Posted

      https://patient.info/health/lyme-disease-leaflet UK had lyme. It's pretty much every where. Take look at this web page

      Emis Moderator comment: I have replaced the link with a link to our leaflet which includes epidemiology figures and the specific areas in the UK where it is a risk. RMSF is not an issue in the UK

    • brenda42506
      brenda42506 shelagh6

      Posted

      I sent a link but has to be approved. Lyme is every where. I didn't get the bulls eye rash. Not all people get the rash. 10 months took for me to get diagnosed. I have rmsf that led to fibro & arthritis & tendonitis
    • shelagh6
      shelagh6 brenda42506

      Posted

      Lymes disease has only been in the UK the last few years and even now it isn't common. There have been a couple of cases around the Cheshire area and a couple in Scotland but none here yet.
  • woodbon
    woodbon brenda42506

    Posted

    Here in the UK, we do have Lyme disease in certain parts of the country.  I know in Norfolk, where I live some of the Nature Reserves have a warning sign telling  people to take care.  I have been tested and its negative, as we expected.  I don't think its that common, but I don't really know.I've been tested for so many things, you tend to loose count!  Its a good idea to wear jeans or something on your legs, when out in the country-side.
    • shelagh6
      shelagh6 woodbon

      Posted

      Sorry Woodbon I meant in the North of the country I know there is quite a lot in the south. They are slowly creeping north and have reached the Highlands but for some reason there is a gap, we have none here yet! I'm always careful as we walk on the fells in Cumbria as well as walking in the Highlands and Islands of Scotland and I hate tics with a passion, I had one on me last year it really freaked me out lol.
    • brenda42506
      brenda42506 woodbon

      Posted

      Yeah and not just ticks carry it. Mosquitos carry it also.
  • shelagh6
    shelagh6 brenda42506

    Posted

    As the moderator says there are certain areas in the UK Where it is an issue but not everywhere. RMSF is not an issue in the UK. I don't feel it is helpful to introduce another thing for people who are already unwell to worry about. A lot of people don't live in or visit the country in the UK so are unlikely to pick up a tic. Apologies to the moderator if this seems a little harsh.
    • brenda42506
      brenda42506 shelagh6

      Posted

      It's just to let people know my story. And let them know lyme/rmsf can cause fibro & arthritis & all other health problems
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