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Fibroid Embolisation Experience

Posted , 5 users are following.

Minty99997
Minty99997

Hi, I'm glad I found this forum, it's been very helpful to read the experiences of others, and to know I'm not alone. I had my UFE just over a week ago. For me, it was definitely the option I wanted to go for, as opposed to a hystorectomy (I've had a myomectomy in previous years). Like most on the forum, my procedure was 'straightforward' in that I had the procedure and was discharged after a night in hospital.

I found the actual experience of the embolisation quite traumatic and can't understand why it is classed as light proceedure? I think it's underestimated and should give the option of general anaesthetic for those who need it. I did not cry during the experience, but wanted to, I didn't want to be viewed as an irritation which I think is how the surgeon might have been feeling in response to my constant squirming and anxious noise making, I have high blood pressure and this went very high during situation, which lasted 2 hours because of there was difficulty feeding the catheter into my artery.

I could go on, but the main things I want to say are that overall, I remain glad that I had the embolisation, and hope I can come back and add a further update following the wonders to be seen. I'm very grateful to those who have shared the tiredness and lethergy after effect as I am feeling this too, my stomach though not majorly painful is very bloated and I have a mild nervy type pain to my groin area, I was leaning towards pulling myself together to get back to a stressful and pragmatic work situation next week, but am thinking a little deeper between priority of my health and 'letting others down'. 

Thank you 

1 like, 4 replies

4 Replies

  • louise45406
    louise45406 Minty99997

    Posted

    Thank you for sharing your story, I'm sorry to hear it was traumatic. I am seeing an IR tommorrow to discuss embolisation. I suffer from anxiety and embolisation sounds like the least scary option, when compared to a hysterectomy. I am scared of the effects the drugs will have on me more than the actual procedure. Were you sedated during yours?
    • Minty99997
      Minty99997 louise45406

      Posted

      Hi, thanks for your reply, hope all goes well tomorrow. During the procedure I was given paracetamol intravenously and morphine which I was able to control ( but which in truth I couldn't do too consistently because I kept losing contact with the control under the blanket. Lucky I had an attentive nurse close by). I was also given a couple of of other pain killers including codeine ( the other I couldn't remember!). Before I went to theatre I was given painkillers by pessary, so lots of sedation.

      I'm glad I had the embolisation and I guess in a post period of less than two weeks it's too early to give full review just yet.

      Let us know how you get on x

  • velbim
    velbim Minty99997

    Posted

    Hi Marha

    Girl its always best to put yourself and your health first over work. The work will still be there in a few weeks time and then you will be stronger, less fatigued and more able to face the stress.

    Try not to rush back to it! I have not had UFE, i had an open myomectomy(which was problematic) and i am 7 weeks post op now and still have no intention of going back to work yet. I dont get sick pay so financially things are tight but i could not do my job effectively at present as it involves heavy lifting so i press on n look after me😊

    Wish you all the best with your recovery. I hope i dont need a UFE in the future but if i do i will ask to be knocked out😄

    Xx

    • Minty99997
      Minty99997 velbim

      Posted

      Words of wisdom and encouragement, most appreciated. Thank you x
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