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Fibroid treatment and different types of fibroids

Posted , 6 users are following.

creativem
creativem

I've known now for two years that I've had fibroids (quite a few of them).They were diognosed when I had an ovarian cyst removed. All felt ok but over the last couple of months I've had stomach pains, generally a week before my period, during my period and around 2 weeks after. The feeling of fullness, bloating and needing to per more has got worse also. Had another scan at hospital and the ruddy things have grown-from this I had a letter from the hospital detailing what fibroids I have, these include; anterior wall fibroid measuring 9.4cm, a pedunculated fibroid measuring 7 cm, an intramural fibroid and a sub- serosal fibroid. I've got a follow up appointment the begining of October to discuss treatment options. I'm hoping they take them out. I also had to have a smear test, which was awful. I'm sure she mentioned something about polyps as well but I haven't had a clear diognosed of these yet. Just looking at advice on treatment options and how people cope when they have these ruddy things.

0 likes, 5 replies

5 Replies

  • emma44640
    emma44640 creativem

    Posted

    Hi I've got them big ones and one have attached to my right kidney so it is deflating it they put me on prostap injection has I'm going to have a hysterectomy because off fibroids so it's like going through the menopause I'm having my second injection this month been ok so far did have a bad bleed but it's normal they said xx

  • patricia27802
    patricia27802 creativem

    Posted

    Hi 

    There are a few options other than Hysterctomy. 

    UFE where they shrink it ( mine w ent from 11cm to 7.5.

    There is also Myomectomy which removes the fibroid only.

    Steer clear of hormone injections they give you an extreme dose of the Menopause ( gyn have them to me hoping it would change my mind and I would have a Hysterectomy) no such luck for him as I was having hot flushes every 10 Mins including during the night and getting no sleep.

    Luckily I was out of work at the time. If i. Had a job I would have lost it. So I would not recommend hormone injections. 

    Steer clear of Endometrial Ablation also as that can make the Fibroid symptoms worse.

    My advice Myomectomy or UFE is the way to go. I have never regretted it.

    Good luck 

  • jay59548
    jay59548 creativem

    Posted

    yes same here i have 4 fibroids the biggest is 5cm i discussed with the doctor yesterday to remove i wanted the UFE but she said is too risky cos i still want more children that it ould affect the baby so i settled for myomectomy ALTHOUGH i hate scars but is better than have this useless things in the uterus
  • Eeka3
    Eeka3 creativem

    Posted

    Hello,

    I have about 7 (or at least that's what's showing up on the MRI so far) with the largest being 12 com. Most of mine are intramural and subserosal and my options were:

    Lupron: shrinks fibroids (2 years) but puts you in menopause then hopefully do surgery

    Myomectomy- but my OB wasn't confident that he would put my uterus back together and told me that I had an 85% chance that I'd end up with a hysterectomy. 

    No thank you.

    I opted for a second and third opinion and so I am going to see another doctor in my network and I'm waiting on approval to see a fibroid specialist in La Jolla, CA. I'm hoping for the specialist because he specializes in abdominal/open myomectomies.

    My advice, get more than one opinion, do your research, and ask lot's of questions.

    • jay59548
      jay59548 Eeka3

      Posted

      very true i think a skilled doctor can perform a myomectomy successfully without affecting your uterus
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