Fibroids

Hi Patricia I was told I couldn't have a muons ring so got a second opinion and he said the same thing! I really don't want a partial hysterectomy either but my body needs rid of these things and they could grow back!! Ugh!!

I had a myomectomy.  The first consultant said hysterectomy and I said not as a first option, so they did an exploratory hysteroscopy.  The second consultant removed a fibroid by hysteroscopy.  I understood that if it was smaller than 10 cm it's possible to remove via hysteroscopy and not abdominal myomectomy.

Hi Patricia, I've posted a few things to you but never had a response. Not sure why or if you've seen them but anyway, I know you do not want to have a hysterectomy. From my brief knowledge of your situation, I understand why. I too would rather avoid one if I can, but may not be able to in the long run! (And I've been running for 10 years!) What I would say to try to help you, even if you don't get back to me is that there is a surgeon in London who practises with an IR. (Both NHS & private) Both written much on the subject of fibroids. UFE v Myomectomy. The surgeon spcialises in myomectomy for larger fibroids, he's world class. If you want his details PM me. You can be referred via the NHS via your own GP or privately. Everyone is entitled to a 2nd, 3rd opinion, however it does depend on weither your local trust will fund an out of area procedure. Usually they are more liekly to do so if the procedure you want is not available from your local trust, however you can still ask for an out of area referral to see a more experienced surgeon, especially regarding the fact yours is still of a certain size. (You may already know how many large fibroids your local gynie has removed & what is his myomectomy success rate not leading to hysterectomy with larger fibroids. (Appreciating this information can be awkward to ask for & some surgeons do not like to give out their figures. From what I understand myomectomy can be a lot harder surgery (size & location dependant) often if going private the price of the proessionals can double as opposed to hysterectomy. However is pretty affordable, its the hospital stay 4/5 nights that's the expensive part if going privately, but your GP can refer you via NHS. I think with any surgeon doing a myomectomy you must sign a hysterectomy waiver incase of excess bleeding or complications that may require a life saving hysterectomy. Again this is only from the research I've read. However a world class professional will give you the best chance of myomectomy only if that is at all possible with you wanting to avoid a hysterectomy at almost all cost, except obviously your life which is why I think the waiver has to be there. Best of luck should I not hear from you again. Or PM me if you want the information & I will PM you back, his private secretary's email & details, if you want them along with NHS details.